ulcers, sore tongue and soreness in mouth / throat

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

ulcers, sore tongue and soreness in mouth / throat

Postby Wackers34 » Fri Mar 21, 2014 12:24 pm

I was just wondering how many of you with fibro / cfs seem too get mouth problems / throat problems - esp recurrent ulcers or ulcers that dont heal for ages, or soreness around tongue or red patches on arch of mouth (both sides)

I have talked to doc numerous times about this and its really getting me down recently...its like my whole tongue at the back is sore, and when i breathe air down my throat seems to sting or burn a bit

Does anyone else get this?

On my next appointment i am going to ask for referral to ENT because this is just crazy now....its been going on months to varying degrees - dentist has checked red patches, hes keeping eye on them, but doesnt seem too concerned

Doesnt seem to make a difference when i eat or drink

i do have white coating on tongue , which scrapes off, doc tested me for candida, only on red patches on my throat and it showed negative...she didnt test my tongue though

Im starting to get really anxious about it :-x
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby *Lisa* » Fri Mar 21, 2014 1:59 pm

What comes to mind is, have you been tested for auto-immune disorders? alot of them cause ulcers.

Also a dentist maybe able to have a look and see what maybe going on.

Personaly i doubt its a fibro symptom

I hope you get some answers soon
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3901
Joined: Sun Sep 07, 2008 2:01 pm

Re: ulcers, sore tongue and soreness in mouth / throat

Postby libbiek30 » Fri Mar 21, 2014 4:25 pm

I get a lot of mouth ulsers and sore throat s not sure if its connected to fibro x
libbiek30
UKFM Member
 
Posts: 121
Joined: Wed Sep 25, 2013 10:12 pm

Re: ulcers, sore tongue and soreness in mouth / throat

Postby Wackers34 » Fri Mar 21, 2014 5:10 pm

well according to the facebook comments it seems a lot of people get this? Im confused now, i thought maybe it was to do with CFS than fibro - i was checked for auto immune disease mainly Lupus and RA but came back negative...I don t think i have ulcerative colitis or chrons as I have no bowel probs or bleeding

I have asked dentist - he is going to keep an eye on it and give me antibiotics / or refer me if he thinks its bad...I too get all the glands come up under my jaw

I just want to rip my mouth and throat out and someone give me a new one...i was anxious about mouth cancer with the red patches, but dentist said didnt look dodgy...i think its more to do with soreness / rawness than anything...grrrrrr

If its not one thing its another thing ....hugs to everyone with this its not nice :cry:
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby jenfitzy » Fri Mar 21, 2014 5:27 pm

Ask your doctor for a mouth wash called Difflam, I had sore mouth problems, ulcers etc. and was referred to hospital by my dentist. I had a fungal infection and received medication for that. It was about 3 months ago, and I have been OK since then :goodluck2:
jenfitzy
UKFM Member
 
Posts: 14
Joined: Fri Mar 14, 2014 11:11 pm

Re: ulcers, sore tongue and soreness in mouth / throat

Postby FluppyPuffy » Fri Mar 21, 2014 6:59 pm

Diffuse also comes in a throat spray, best one I've used by far

Every once in a while, a dog enters your life and changes everything xx
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: ulcers, sore tongue and soreness in mouth / throat

Postby Kyomii » Fri Mar 21, 2014 7:28 pm

Ask to be tested for systemic Lupus - many are misdiagnosed with fibro who have lupus and visa versa and many have both as the symptoms commonly overlap. Ulcers are VERY common in Lupus.

The issue is catching the blood at the right time as you can still test negative but be positive for Lupus.
Kyomii
UKFM Member
 
Posts: 33
Joined: Thu Feb 08, 2007 10:40 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby migrembe » Fri Mar 21, 2014 8:57 pm

Try buying distilled witch hazel. put a cap full (about a tablespoon) into about an egg cup of warm water and gargle with it, try for 3 times a day. See if it is any better in about 3 days.

If you remember germalene it tastes a bit like that smells, lol, but i find it helps me. You don't say what medications if any you are on, check if this could be a side effect, read right to the end of the list as i have had the weirdest of side effects and they are normally at the end.
migrembe
UKFM Member
 
Posts: 429
Joined: Fri Feb 24, 2012 8:23 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby Wackers34 » Fri Mar 21, 2014 9:14 pm

i have been tested for Lupus twice though an ANA test, showed nothing and I had low ESR both times...i also never have any rashes like that...My friend had lupus, unfortunately she died at 34, not lupus related though, and her symptoms werent really the same as mine...

I was tested for Colieac also - that was negative

Im on nortriptyline, this has been going on a while though, back when i was on amitriptyline, none of them seem to make a difference...in fact when I look back at my symptom diary a year ago, before I was on any meds, i still had the sore throat feeling

But thanks for the advice about the witch hazel - i might try that...I also have just bought some ecinecea and i have also changed my toothpaste

I will ask doc / dentist about mouthwash - i have another dentist appoint in a week as he is keeping an eye on it....dentist is so much more patient than doc - prob cos im paying for it ...lol
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby cbrann58 » Sat Mar 22, 2014 11:12 am

I have had FM for a number of years now and I have had problems from the word go with ulcers on my tongue and bad throat. Two years ago my mouth throat tongue totally covered in white and was told I had a really really bad thrush. Which is something I have never had before. She reckoned I was exhausted.
cbrann58
UKFM Newbie
 
Posts: 5
Joined: Thu Feb 23, 2012 7:43 pm

Re: ulcers, sore tongue and soreness in mouth / throat

Postby migrembe » Sat Mar 22, 2014 12:29 pm

Some of the medication can give you thrush, but also some can lower your immune system so you are more susceptible to every bugs going.

I am slowly coming off all medication because of the side effects. Although i am still on co-codamol when i need it, i don't find any of the symptoms worse for being off the meds than they were on them, i just had bad side effects as well.
migrembe
UKFM Member
 
Posts: 429
Joined: Fri Feb 24, 2012 8:23 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby Wackers34 » Sun Mar 23, 2014 1:06 pm

Ok - so I have changed my toothpaste...i take B complex...i am going to try gluten free for a while and also get dentist to keep an eye on my red patches...get a prescribed mouthwash and will get doc to check about thrush again and hopefully I will get to bottom of it

Thanks for all the comments on this - it has helped me immensely
Wackers34
UKFM Member
 
Posts: 139
Joined: Tue Apr 30, 2013 11:41 am

Re: ulcers, sore tongue and soreness in mouth / throat

Postby LibbyWick » Fri Mar 28, 2014 1:32 pm

I have the same problem. I was referred to an ENT specialist who diagnosed Sialadenitis. Which is a problem with the saliva glands and he put me on a long term antibiotic. The consultant did say it is sometimes associated with auto-immune conditions. Definitely worth checking out and asking for that referral. All the best.
LibbyWick
UKFM Member
 
Posts: 46
Joined: Mon Sep 12, 2011 9:41 pm


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 11 guests