the cramp chronicles!

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the cramp chronicles!

Postby JDWench » Wed Apr 30, 2014 3:27 pm

Day 26! I have finally seen a gp. She diagnosed tendinitis she'd like to check my b12 but I told her I had blood taken friday she asked why and I had to tell her that it was to check inflammation markers because I have fibromyalgia and joint hypermobility syndrome, she then said "it's all connected, your other conditions will be having a flare up." CAN SOMEONE PLEASE READ MY NOTES?! She's upped my amitriptyline to 20/30mg she said "take two or three it's only amitriptyline, we give them out like m&ms" which I think was meant to be a joke. I also have to spend money on insoles for arch support and ask work for rest breaks. Hope this helps anyone having cramps and/or pins and needles.
Last edited by JDWench on Thu May 01, 2014 9:08 pm, edited 1 time in total.
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Re: the cramp chronicles!

Postby Garyl » Wed Apr 30, 2014 4:04 pm

Not cramps as such, pains yes, was referred to hospital for arch insole supports, see if your GP will do same for you
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Re: the cramp chronicles!

Postby painprincess1 » Wed Apr 30, 2014 5:54 pm

How many amitripoline did she tell u to take a day.?
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Re: the cramp chronicles!

Postby topcatt72 » Wed Apr 30, 2014 5:57 pm

Hi....
i 2 have hypermobility and fibro plus another hip condition....i suffer from bad cramps in my legs and feet and also get tendonitis (more in right than left).... iv tried insoles but didnt help me much as could only wear with 1 pair of trainers.....i now can only wear flat shoes/boots/trainers....im on 30mg of amytripalin which iv been told by my doc i can increase 2 50mg.....dont know if it will work or not though.....but gd 2 know that all these symptoms r connected hope yr cramps get better..... :-) :-) :-) .....
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Re: the cramp chronicles!

Postby JDWench » Wed Apr 30, 2014 11:46 pm

My fibromyalgia is secondary to hms and the tendinitis is connected to both so unfortunately it is a vicious cycle, can't catch a break!
I'll let you know how the insoles work out. I found myself trying not to jump in and defend the good name of Doc Marten when she said my shoes wouldn't help, they're all I can stand up in these days without feeling my legs are all wobbly.
I've gone from 10mg to 20-30mg depending on how I'm feeling. Work won't let me have rest breaks so I can see me having to get something in writing.
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Re: the cramp chronicles!

Postby FluppyPuffy » Thu May 01, 2014 12:04 am

You have protection under The Equalities Act 2010. As your employer knows about your condition, they have a legal obligation to bring in "reasonable adjustments" to help you do your job as well as you can with your problems taken into consideration. It's customary for these requests to be put in writing, so ask your GP about doing this.

You might want to consider seeking more advice about your situation and how else you could benefit from it.

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Re: the cramp chronicles!

Postby zappa20 » Thu May 01, 2014 1:44 am

Just wondering with your GP recommending insoles if she could get you a made to measure set from the Orthotics dept at your hospital, or maybe even special shoes made. The shoes designs aren't exactly what you'd call fashionable but even if you could wear them just at home they might help. If made to measure at least you'd know they were the right ones and offering some support.

Imagine with your HMS that the range of stretching exercises they recommend aren't suitable for you which is a shame as they can help a bit.
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Re: the cramp chronicles!

Postby JDWench » Thu May 01, 2014 9:00 pm

My company aren't aware of my conditions, they know I have a lot of joint pain but when I tried to tell my old manager about fibro and how it goes hand in hand with hms he didn't have time to talk so I left some literature in the office for us to talk about on his next shift and the assistant manager threw it out (she's horrible!) I have a new manager now but I'm too scared to approach him incase he doesn't believe me like the other employees (all except one supervisor who is brilliant!).
The doctor just told me to buy some and didn't say anything about getting them on nhs, I suppose my case isn't severe enough to warrant a referral.
We've always laughed about my clicky joints, the hip I can pop and my manky feet but today I had to try and not cry on the bus home from college because I thought my boyfriend would be angry I called in sick to work abd because I'm 25 and feel so helpless but I got home and ny boyfriend cuddled me to keep me warm then wrapped me in the duvet and covered my icy feet with cuddly toys lol. Then after a good sleep I searched online for these insoles and found myself sobbing again. I'm so pathetic!
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Re: the cramp chronicles!

Postby denys » Sat May 03, 2014 12:16 am

You arent pathetic, you are human and when you have to deal constantly with disbelieving people it gets you down, glad your boyfriend gave you a cuddle and made you comfy. Dont worry about crying its good to get it out sometimes, my old doc used to say our heads are like pressure cookers and sometimes the stress has to be let out in the way of tears because if it didnt we would explode, not a pretty sight :-D :-D

Try to pluck up the courage to approach your new manager, if you dont tell him then he doesnt have a chance to understand, take some literature with you, make sure you approach him and ask if he has time for a chat and if not there and then, when he would be able to then things wont be rushed and you will be able to explain things in a more relaxed way :fingerscrossed: :fingerscrossed: :fingerscrossed: the insoles help
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Re: the cramp chronicles!

Postby FluppyPuffy » Sat May 03, 2014 11:41 am

JDWench wrote:My company aren't aware of my conditions, they know I have a lot of joint pain but when I tried to tell my old manager about fibro and how it goes hand in hand with hms he didn't have time to talk so I left some literature in the office for us to talk about on his next shift and the assistant manager threw it out (she's horrible!) I have a new manager now but I'm too scared to approach him incase he doesn't believe me like the other employees (all except one supervisor who is brilliant!).

What about putting it in writing and sending it to your HR/Occy Health type dept/peoples. Doing that means you should receive an acknowledgement as well as your manager being advised, which could then facilitate a meeting being set up that gives you the time and chance to go over things. If you include copies of letters etc from doctors/specialists/other healthcare professionals you have seen in relation to them, it will provide irrefutable support and then mean you are definitely covered under The Equalities Act.

Unfortunately most of us have come across some that can't or won't believe that something like FM exists, let alone can be as debilitating as it is for some. And when it's those that we spend a lot of time with, it can very quickly drain you of precious energy.
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