Neck Pain

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Neck Pain

Postby pj1943 » Sun Jun 08, 2014 9:50 pm

I have had fibro for more than 20 years but during the last few months I am having a lot of pain in my neck and shoulder. The pain travels along my right shoulder and up the tendon in my neck causing pain and headaches. Pain is like muscle spasm. My doctor is trying to tell me that its wear and tear. Does anyone else have this problem - terrible time trying to get sleep as I can't get comfortable :( Bought memory foam mattress and v shaped pillow which also helped for a while. I take 4 gabapentin 300mg daily plus 4 dihydrocodeine and 8 paracetamol also citalopram 40mg. Been on this for a couple of years now but not doing much for general pain either. Going to chiropractice which was helping but not anymore and is very expensive. Any suggestions would be helpful.
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Re: Neck Pain

Postby Xena » Sun Jun 08, 2014 10:07 pm

This was my first really noticeable symptom of Fibromyalgia (funny how it's so different for every sufferer). I'd had lots of vague pains, tendon problems etc for a long while, but last year became aware of a lot of neck and shoulder pain. I get a buring pain across my collar bones, too. Carrying a fairly light shoulder bag really makes it worse :( . The only thing that really helps my neck is heat.
Last edited by Xena on Wed Jun 11, 2014 7:35 pm, edited 1 time in total.
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Re: Neck Pain

Postby Xena » Sun Jun 08, 2014 10:11 pm

Also, like you, I find it VERY hard to relax on the sofa or to get comfy in bed. Diazepam helps but my G.P won't prescribe it anymore. I take Citalopram and Co-Codamol, use a fleecy neck pillow (like a plush neck collar), and a hot water bottle. I find gentle Yoga helps too.
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Re: Neck Pain

Postby suzieorangecat » Sun Jun 08, 2014 10:24 pm

I too have had Fibro for many years, and have different pain killers to help me cope. When the pain gets too bad and the tablets don't seem to be working, especially in the arms shoulder and head, I take time out to practice the exercises I was given by the physiotherapist. Sitting comfortably I take my time and do them in sequence as I was shown, very gently. This helps enormously. They can also be done at any time during the day/or night. As for sleeping it helps to be propped up on high pillows so that I am almost sitting up to sleep. Right at the beginning of my diagnosis the doctor sent me to get specialist help with physio and now I have exercises to help with each part of the body. I am able to pass on these exercises if you think it would help you. :roll: :-D Sometimes it is the difference between going to work or not.
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Re: Neck Pain

Postby catlover13 » Sun Jun 08, 2014 10:55 pm

I have had neck pain for years put down to cervical spondylosis..... but as it got worse I developed all or most of my other symptoms that after years of pain have been put down to fibromyalgia. Neck pains are my worst pain. Some nights its impossible to sleep. My head sometimes feels so heavy and I can't get comfortable at any time day or night. My shoulder pain started off quite mild but now when its at its worst I can hardly lift my arms. The only pain killer I get is co/codamol and they dont even take the edge off the pain xx
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Re: Neck Pain

Postby shadavv » Sun Jun 08, 2014 11:14 pm

Hiya the physio has put me on trial for the tens machine now when I was in labour it was rubbish but I find it really helps with the fibro pain that meds cant touch xxx 8-)
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Re: Neck Pain

Postby Kernowc » Sun Jun 08, 2014 11:17 pm

Yes this is a part of my Fibro too, I have had the same since I was 17 and am now 62!!
I am seeing a chiropractor at the moment who is treating me with acupuncture and massage as well as using a activator, he said that he has never seen anyone with muscles as solid as mine! I also suffered from migraine type headaches for years caused by this neck pain and even discovered food allergies which exacerbated the tension. Any stress or cold temperatures also aggravate it and cause the pain to run down my arms. I have been told that I am continually stressed but I am not aware of it. How can you control something that you are not aware of?
Hope this helps you feel less isolated, it is not just you.
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Re: Neck Pain

Postby teddybear7 » Sun Jun 08, 2014 11:26 pm

Hi I have this too. I use heat but suffer constantly. Physio says there's restriction there. Not sure what she means so I'm in the process of doing the Google dance. Lol x :-D
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Re: Neck Pain

Postby Carrie Nourse » Mon Jun 09, 2014 1:55 am

Hi, My neck always seems painful, the pain goes down either side of my neck and across my shoulders and if I massage the sides of my neck it does give a crack so loud sometimes that my husband hears it but it does feel better for a few minutes but then the pain slowly comes back. I find I cannot carry heavy shopping bags as this makes my neck worse and if I pull my chest muscles I then get a flare up of my costchrondritis and then I cant breathe properly. The only meds I use are the Tramodol which do work for me and lots of hot water bottles also help. I could ask anyone who have exercises for bad necks to let me have them as I don't have any if they could post them to me on this site. Thank you.
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Re: Neck Pain

Postby dotty lotty » Mon Jun 09, 2014 6:28 am

Yes I also have neck pain, over shoulders and up the back of my head and it is even into my ears but am doing to doc today just to get them checked out.
Tried using gels, cushions, heat etc but I also have cervical spondylosis so that wont help. :teddy-bear:
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Re: Neck Pain

Postby pj1943 » Mon Jun 09, 2014 2:46 pm

Thanks everybody - now I don't feel so isolated and that it is a symptom of fibro and not wear and tear as my Doctor says. Unfortunately I think they say anything which gets you out of the surgery quickly and not many of them have much information on Fibro.
I am going to try the heat patches to see if that helps. The chiropractice I go to can use acupuncture and she offered to attached a tens machine to it so I think I'll try that.
Thanks again :-)
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Re: Neck Pain

Postby robcathy » Mon Jun 09, 2014 9:05 pm

I have had pain for many years & a terrible pain thats lasts seconds but is excrusianting. I have a neck collar that helps tremedously. I only use when its bad. I also use a cream called pernaton its green lipped mussel extract gel. It helps. Also heat on my neck helps along with nurofen plus. Its hard accepting this illness. I keep hoping its something else! But I have textbook symptoms.
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Re: Neck Pain

Postby freddie » Thu Jun 19, 2014 8:32 pm

I also suffer with neck and shoulder pain constantly. I'm just going through the paces to try medication, my G.P has prescribed gabapentin so fingers crossed. I do use the tens machine most days and get a bit of respite and try and stretch out my neck as often as I can throughout the day. My thoughts are with you as there isn't any let up I know take care :lol:
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Re: Neck Pain

Postby Gilly52 » Thu Jun 19, 2014 11:12 pm

Hi suzieorangecat & Carrie Noursa

Thanks for all the info on neck pain, I have suffered for years with this and have found heat to be the best remedy, in the wintertime I have always got heat patches under my scarf :!: :!:

It would be a great if you could post your exercises on here suzieorangecat, I think we are all open to any new ideas and will give anything a go if it works. My GP does accupunture on the NHS but unfortunately it did not work for me, but we are all different and cannot pass comment until we give things a go, different treatments for different people.

It would be good to have some excersises to do in one's own home on the days we feel up to it :-)

Take Care, Goodnight :sleep:
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Re: Neck Pain

Postby DebiP10 » Sat Jun 21, 2014 8:16 am

I also suffer really bad with neck pain and shoulder pain. i have cervical spondylosis too which ive had for many years. Gabapentin takes the edge off but only just and not all the time. ive had physio and acupuncture in the past for this but it hasnt helped at all, infact its aggravated it and made it worse. Recently i dont know what is worst, the neck or shoulder pain :( I see my Dr regular, about every 4 weeks and although hes a great listener and sympathetic i dont think any of them really know what to do. Ive been on that much medication its upset my stomach and ive been in agony with that and put on lansoprazole for 28 days then i go back to see him. I feel like my life has been put on hold and spend most of my time in the house as i struggle to even walk to my local shop which is only round the corner which is really frustrating as i used to be so active up until 2 years ago :(
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