fibro after an op?

All your fibromyalgia experiences, questions and answers.

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Re: fibro after an op?

Postby Lyssie » Sun Jul 27, 2014 12:09 am

Thinking of you! That's absolutely terrible :(


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Re: fibro after an op?

Postby gwenmoon » Sat Aug 16, 2014 2:17 am

I was diagnosed a while back with fibro after an accident at work. I had an ablation done on my heart a week ago, that has flared my fibro up really bad after a few months of it being quiet low. I had been off my strong meds for a few months, but are now back on them. The flare up is actually worse than the op.
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Re: fibro after an op?

Postby TNK* » Sat Aug 16, 2014 7:04 am

My op was 2 days ago now...I'm still in hospital hoping to go home today. ....I'm not to bad at the min but I can see myself getting fed up as I'm not allowed to do much for next 6 weeks.
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Re: fibro after an op?

Postby denys » Sat Aug 16, 2014 12:01 pm

Glad to hear you are the other side of it now and :fingerscrossed: :fingerscrossed: you dont flare to badly :hugs: :hugs:
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Re: fibro after an op?

Postby Lindenp » Sun Aug 31, 2014 2:45 pm

Hi Everyone

Well I had the Gallbladder op as expected. Everything went fine with op and the endoscopy was normal. I had to stay in overnight because I had a drain in and that is when the fun started. My temperature suddenly shot up, blood pressure the same and my oxygen levels dropped. I never slept a wink that night as they were constantly coming for blood tests, putting in a drip, drip pump in one ear and fan in the other, checking vitals every hour. In between all of that I had to keep calling them to go to the loo and to get more pain relief. :yikes: :yikes:

By the end of the next day I had the drain taken out and was transferred to a main ward which was something more like a normal hospital ward. I finally got some sleep that night still interrupted with needing to go to the loo all the time and other people needing to be attended to. :cup1: The Friday the surgeon and his team came round and all he seemed interested in was getting me out as quickly as possible. Eventually got home about 5pm fighting to stay awake so went straight to bed and kept getting up to take tablets, go to the loo etc.

I tried to reduce the pain killers after 2/3 weeks but the pain was really bad so had to increase them again. I spoke to my GP who advised not to start reducing them until between 6-8 weeks. It is now 5+ weeks since the op and although I am much more into my normal daily routine the slightest thing I do seems to knock me for six. I had a cleaner come on Thursday and she gave the shower cubicle a bit of a clean but last night I could see a wee bit of dirt still on the door. I spent about 5-6 mins giving it a wee clean and today I am really really tired again. :snore1: :snore1: :snore1: :snore1: :snore1:

I haven't managed to go out yet (except down 1 flight of stairs to collect my post) mostly because I haven't been able to wear a bra. I am very heavy busted so need to wear a tight fitting bra to lift my boobs up. This causes me some discomfort although it is much better now. I am hoping to go out to a friends house on Tuesday for a wee while so hoping it won't have a huge impact on me again. :goodluck2:

So from my recent experience it can take a lot longer to recover from an op when you have Fibro and it does seem to have set my Fibro off big time. I had been able to get about with just a walking stick before the op but just coming back up the flight of stairs is making my right hip pretty sore.

Hope this is of help to somebody. Expect the possibility that it may take longer to recover but hope for the best that it won't. :goodluck2:

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Re: fibro after an op?

Postby *Lisa* » Mon Sep 01, 2014 10:29 am

Hi all, Hi Linden :mrgreen:

I hope everyone is recovering well :grouphug:

I hope you manage to get out tuesday Linden and have a fab time :mrgreen: :fingerscrossed:

Ok... so just feeling well enough to tell my story. Hadnt had the energy before now and just was popping in & out.

Again i was having my Gallbladder removed. Some of you may remember my topic on it? as i was suffering badly with pain attacks worse then giving birth!! :shock: and ended up at the hospital to be told to bagger off as they had no space and to *come back* next day :-? well funnily enough i WAS really ill that time as my consultant told me i had a gallstone trapped somewhere as the bloods for my liver enzymes had confirmed that!. Luckily i must have passed them through :shock: :shock: as i refused an MRI to dectect them and opted for a blood test weeks after and all was ok and it settled down.

So... it was touch & go until the lastminute to whether the Op went ahead as my liver enzymes had been showing up that gallstones were/had been trapped. It was a few days before the op that i was told all was ok to go ahead.

Went in Tuesday 7am :yikes: sat next to another lady going in for same thing and she had back and neck problems and when i heard her speak with the doctors she told them she may also have fibro but they didnt want to look into this yet as the gallbladder pain maybe masking symptoms so she has to wait! Nice lady but didnt get to speak about the fibro but did chat about how we had got here!!

Speaking to this lady also made me realise that if i had of waited and gone for MRI etc to see about stones trapped i could have been in her situation as she had the same senario and had all tests going which took months yet nothing was detected! she had been in hospital on many attacks on morphine pumps as shes in chronic pain and its pain on top of pain.

I should have said i had fibro but not knowing her i just sympathised with her and told her i know what you been thro as i have chronic pain to and left it at that.

They wasnt sure about beds either :roll: took a while to see if the op was gonna take place but again luck was on my side and a bed came up for me. I was supposed to be with this woman on same ward and was looking forward to seeing how she was and talking about the fibro but i was put in a 2 bed room and she wasnt there :-? i couldnt get up to find her either :( oh well... but i was told all went well and she was ok :-D

Now my previous operation many years back had gone wrong and i suffered years of anxiety and had years of therapy to recover so i was so anxious and panicking that i waffled to anyone and everyone about aload a crap :roll: :lol: :lol: but met a few good people :lol: as i waited for my turn i got speaking with a lovely lady who was also waiting.. She had, had a gastric bypass and lost 12stone :yikes: and was havinf the excess skin removed so we had good chattings :-D

I mentioned to anesthesia man my jaw is stiff as was worried about the tube and told him of my anxiety and then went on to tell him that my life was in his hands and to make sure i dont wake up when being operated on and to make sure i did wake up after!!! :nono: he laughed :lol: and we had a good ole joke.

I mentioned about fibro and that i was worried about pain levels after to the consultant & anesthesia man.

I was taken down at 11.30 so had been panicking since 7 :yikes: so by time i got on the anesthetic table i said ** i think im gonna have to leg it now as i cant do this** :( :shock: :shock: :shock: so the lady that was in there with him started talking to me to get my mind of him trying to get the thing in my hand but it didnt work :roll: so anesthesia man said **have this oxygen this will help relax you** well i nearly flipped as this mask came over my face :shock: :shock: felt clostraphobic and panic with him holding it over my face so he let me take control of it and hold it.

So there telling me to take deep breaths in the oxygen... then i felt all whoozy and realised he had given me gas & air Hmmmm... :nono: :lol: :lol: :lol: :lol: so then i hear him call out for all these meds.. diazapam, anti-inflamms, morphine etc....

Then he says **you will feel sleepy soon** with that my whole arm flopped down and i said **im on my way*... :lol: :lol: :lol:

Next thing i know im waking up with a nurse by my side. I told her off as i was having a **good sleep** :lol: :lol: :lol: and then asked if all went ok and she said all went fine and had, had it keyhole and no complications :woot:

I could feel some pain but was so out of it i didnt notice much only that i felt a little sick and had neck pain. I kept asking her the same question if the op had gone ok as i was away with the fairy_dust and then i felt the love... :lol: :lol: :lol: whatever he had given me in that concoction of meds made me love everyone :lol: :lol: :lol: i even told the nurse that **that anesthesia man is lovely, he's a good man!** :lol: :lol: :lol: think it was cause i was so overjoyed all had gone well and i was ok plus that i was so out of it i could barely see or feel anything because of the meds he gave me :shock:

I have an anxiety of not being in control so feeling so out of it did start to panic me but i soon chilled out and slept. Thing was the meds kept me asleep for rest of the day! i was alowed home that night but was soooo :sleep: :sleep: :sleep: i asked to stay put :lol: i came to every now and again when docs and nurses came.

They came every 30mins to ask about my pain levels and to do the obs but i just smiled and said i was ok then passed out a kip again :lol: in fact they made a huge fuss with me which i am grateful for and always asked how my pain was and if i needed any meds.

When i woke up i chatted away to everyone as it was my 40th b/day and they all said happy b/day. For me it was like a social outing :shock: :lol: :lol: i rarely go out and never socialise so was grate to chat and speak with people. I had a good natter to the lady next to me who had surgery on her knee. We had a free TV :shock: felt spoilt :lol: :lol: :lol: restored my faith in the NHS! everyone was fab from the tea lady to the consultant and really took care of me and my needs :welldone:

The pain was ok. More bruising and uncomfortable. For 3 days i slept :shock: only waking here and there for the loo, meds & food... yea food! :bear-dancing: :woot: I can eat anything now (even had a chineese last night) and all was fine :mrgreen: :mrgreen: :mrgreen:

I have 4 cuts which are healing fine, i have no post op complications.

I was worried about a sharp pain that was around the belly button when trying to move but thats now gone.

The Op went well and the pain was fine. Now the problem i did and have got is the fibro!!!!!

Where i could only stay in one position to sleep and rest (on my back) the muscles stiffened so badly they all went into spasm :yikes: it was this that has put me back a bit. I could not get up and walk for ages because of the pain/pulling and spasms.

Now tho i have changed my medication regime and things are so much better! I took away the codiene and replaced it with naproxen & diazapam.

I am 13 days post Op and have been able to walk about for 2 days now. I can manage a small slow walk with the dog to the park as long as when i get there i sit for a while then return. Ok i come straight home back to bed but thats a huge improvement.

My belly does feel sore a little but im able to lay on my side now as long as i have a pillow for it to lean on.

My tiredness and dizziness for the op has lifted.

So in my case (ATM wont jinx it) all is going well :-D :-D :-D

The pain is fine and controlled just concentrating on the muscles & fibro

I still best rest through out the day as it takes 6 weeks to fully recover and cannot lift anything heavy nor strain myself etc

Now looking forwrd to my break away in 4 weeks time, i just hope things stay as they are and i continue to improve and the fibro settles down. I shall have my physio come son to help that.

Linden... I have been taking Naproxen. This i feel aided my recovery and pain levels. Trouble is its an anti-inflammitory which you cannot have :( :( i hope you continue to recover and shall PM you in time to see how things are :flowers:
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Re: fibro after an op?

Postby TNK* » Mon Sep 01, 2014 11:36 am

well my op was just over 2 weeks ago now, i think im recovering ok, just really tired, i can tell if ive over done it as i just take myself to bed.
still not allowed to do certain things, cant go swimming or walk the dogs, (internal surgery) i think they are frightened im going to pop all my stitches, im gutter about the swimming as i used to go a few times a week, but its an infection risk!

Dont want to go into all the gory details but i still have a few aches and twinges (down there) so i know things are not quite fixed yet!
Got a post op appt in 3 weeks so hopefully they will tell me im ok for light exercise.

the FM seems to behaved itself, although i am noticing my old pains coming back especially in the morning, if i have over done it the day before.
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Re: fibro after an op?

Postby whoami » Mon Sep 01, 2014 9:14 pm

I haven't been on much lately but can't believe I missed this topic....so sorry!

I am so glad that you both are doing OK after surgery. Do as your told and I feel you will come along just fine. Xx
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Re: fibro after an op?

Postby zoomie » Mon Sep 01, 2014 11:29 pm

I'm 5 days post infected gall bladder surgery. Still very very sore, can't lift a kettle, can't bend, walking very slowly (I use a trolley)3

First thing make sure you raise all concerns with you your surgical team (they will see you the morning of your op. Secondly ensure you have help for the first week post op, I've been able to do nothing! (I can just about pee on my own but that was about it) I wouldn't have been able to cook tea for the kids etc. That of course could be just me, but get help in place just in case.
Your possibly already on high levels of pain relief, be very honest about your pain levels, they will send you home with more of whatever you need, in my case they doubled my butrans patch, have me ibuprofen and codine to add to my tramadol and paracetamol they also have need oramorph to take if needed.
DO NOT WAIT for pain to build before taking relief, take it on time, without fail!

My Gp was sure I'd be kept in for a few days, be warned they like to fix you and get you out now, no matter what!

Good luck hon xxx
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Re: fibro after an op?

Postby zappa20 » Tue Sep 02, 2014 12:52 am

That's a great report on your OP experience Lisa. So glad it happened if eventually, they managed to operate without you doing a runner LOL and that so far you are making a recovery. Imagine that Chinese went down well, try to go easy on the fats for a while as overdoing them can cause you problems with the other end if you know what I mean! Hope you have a great holiday when it comes. Take care
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Re: fibro after an op?

Postby *Lisa* » Tue Sep 02, 2014 9:43 am

Thanks Zappa,

I definatly agree zoomie i stayed with my mum for a while to recover and all i done was sleep :sleep: :sleep: they cooked me meals to help keep my strength up and helped me shower and dress also sorted my meds out and helped me get comfi etc..

Mum has kept my wounds clean and put on new dressings.

The doctor sent some meds to the chemist for me and they delivered them.

Its about organisation and making sure things are set up before hand that also helps.

Mum has done my shopping but by day 11 i was getting cabin fever so mum took me out to tesco where i slowly pottered around with her help sitting every few minutes then returned to bed soon as i came home with a dose of meds.

Zoomie did you have your gallbladder removed also?

TNK i hope you continue to recover well :grouphug:
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Re: fibro after an op?

Postby zoomie » Tue Sep 02, 2014 2:56 pm

*Lisa*
Yes I did, I was put on the wrong list, so by the time they got to me it was a very long surgery, 2hrs 45mins :yikes:
The consultant confirmed that with fibro your looking at double the recovery time, he also said don't be fooled into thinking you feel ok as one wrong move can put you back a week :(
Although I'm still in a tremendous amount of pain, it's different than the pre op pain. I'm just very slowly letting myself recover, I've had fibro for 20 odd years now, so I know only to well not to push my luck :nono:
I'm finding eating a problem, I'm just not hungry, the closest I get is nausea if I don't put something in at med time....that may just be because for 4 months most of my diet had been skimmed milk as its all I could keep down out not have pain with :cry:

How are you feeling now? :-? xxx
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Re: fibro after an op?

Postby *Lisa* » Tue Sep 02, 2014 7:37 pm

zoomie wrote:*Lisa*
Yes I did, I was put on the wrong list, so by the time they got to me it was a very long surgery, 2hrs 45mins :yikes:
The consultant confirmed that with fibro your looking at double the recovery time, he also said don't be fooled into thinking you feel ok as one wrong move can put you back a week :(
Although I'm still in a tremendous amount of pain, it's different than the pre op pain. I'm just very slowly letting myself recover, I've had fibro for 20 odd years now, so I know only to well not to push my luck :nono:
I'm finding eating a problem, I'm just not hungry, the closest I get is nausea if I don't put something in at med time....that may just be because for 4 months most of my diet had been skimmed milk as its all I could keep down out not have pain with :cry:

How are you feeling now? :-? xxx


On the wrong list? I woke up 2 hours after i was put to :sleep: not a clue how long i was actually being operated on was just glad to know all went well.

I can only assume that if you had a bad infected gallbladder this may have contributed to the long surgery?

I wasnt given any info what so ever in regards to fibro & op just given the same ole info that everyon else had although they were very concerned and aware on pain levels and always checkd to see how i was.

Trouble with me is i get very impatient :shock: cant stand to be chained to the bed, have to get up and hate much fuss so being in bed for those 11 days was bad enough! had to try and get some fresh air. I did feel it very much first time i popped out (onlywalked 100metres) so knew i wasnt ready and then kept trying each day after until my body agreed that it was time to have a walk :lol: so yes its mainly a case of listening to your body.

Im on my 16th fibro year which is why i suppose i was confident enough to know when to start getting up and about but as soon as i return i go straight back to bed for rest of the day. Im not doing any chores nor pushing myself in any other way which is why i feel i can do some slow walking. They say walking is good in recovery (when you can) as it relives the gas that hey pump you with and helps prevent blood clots etc....

You say your not hungry, im always hungry now :shock: :shock: :shock: i lived off dry bread and lost over 4stone. Soon as the dinner lady came round i was on it like a raveshed mad man :-P :-P :-P and havnt stopped eating since!! :yikes: :yikes: :yikes:

Maybe try some build up drinks as you need vitamins to recover, your GP can prescribe this until things settle for you?

I hope you start to feel better soon!

Im doing very well just trying not to let my head take over body and rest as much as i can even tho i have no pain just tenderness were the op is concerned.

Its bang on 2 weeks since the op and i thought things would be much worse concidering other health conditions to. Just dont wanna jinx myself :fingerscrossed:
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Re: fibro after an op?

Postby TNK* » Wed Sep 17, 2014 11:45 am

Was doing so well, but am now an abx as ive got an infection!

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Re: fibro after an op?

Postby denys » Wed Sep 17, 2014 4:20 pm

Poor you TNK hope it clears up soon for you so that you can get back to your swimming
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