Fibromyalgia Mystery Finally Solved! - is this new?

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Fibromyalgia Mystery Finally Solved! - is this new?

Postby Sals » Thu Jun 26, 2014 7:23 pm

http://guardianlv.com/2013/06/fibromyal ... rIZWpT4.01

Fibromyalgia Mystery Finally Solved!

Researchers Find Main Source of Pain in Blood Vessels
Added by Rebecca Savastio on June 20, 2013.
Saved under Health, Rebecca Savastio, U.S.
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Fibromyalgia Mystery Finally Solved! Researchers Find Main Source of Pain in Blood Vessels

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

RELATED: Fibromyalgia: Proof of Physical Origins Vs. Two Danish Psychiatrists
Read more at http://guardianlv.com/2013/06/fibromyal ... ZFvLMvM.99
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby LibbyWick » Thu Jun 26, 2014 7:37 pm

I can't believe this is true. It was originally posted in June 2013... so wouldn't we all be laughing our way to the pharmacy for our miracle cure by now. I think we're being toyed with. :nono:
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Sals » Thu Jun 26, 2014 7:54 pm

LibbyWick wrote:I can't believe this is true. It was originally posted in June 2013... so wouldn't we all be laughing our way to the pharmacy for our miracle cure by now. I think we're being toyed with. :nono:


oh :(

Sounds about right...
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Sals » Thu Jun 26, 2014 8:06 pm

I'm considering cutting off my hands, in theory that should cure my FM ............ ;-)
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby anitamason » Thu Jun 26, 2014 8:41 pm

This is so ridiculous that I am even wondering why I am replying to it....lets all chop off our hands and problem solved....what about the hundreds that mainly get it in their feet....there is no answer at the moment...all I would like to see is a complete recognition of this awful illness that has changed my life completely....and am constantly battling with the people in authority, even after specialists, doctors etc. have said I have this and also rheumatoid arthritis and other ailments, but constantly tell me I am fit to work. I would love to change 1 day in my life for theirs. I was a very pro active person living a great life in Spain and working very hard...now it takes me all of my time to just get out of bed and start the day....by that time the day is nearly over and it starts all over again. The most simple things in life have become the hardest. I am so totally shattered every day that there are times I wonder if it is all worth it.
But then I look at my children and grandchildren and know it is. I go to court next February for the 3rd time hoping that I can get some form of invalidity....I doubt it. Anyway gentle hugs to you all and sorry about my rant...but I feel better now. xxxx
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Sals » Thu Jun 26, 2014 9:18 pm

anitamason wrote:This is so ridiculous that I am even wondering why I am replying to it....lets all chop off our hands and problem solved....what about the hundreds that mainly get it in their feet....there is no answer at the moment...all I would like to see is a complete recognition of this awful illness that has changed my life completely....and am constantly battling with the people in authority, even after specialists, doctors etc. have said I have this and also rheumatoid arthritis and other ailments, but constantly tell me I am fit to work. I would love to change 1 day in my life for theirs. I was a very pro active person living a great life in Spain and working very hard...now it takes me all of my time to just get out of bed and start the day....by that time the day is nearly over and it starts all over again. The most simple things in life have become the hardest. I am so totally shattered every day that there are times I wonder if it is all worth it.
But then I look at my children and grandchildren and know it is. I go to court next February for the 3rd time hoping that I can get some form of invalidity....I doubt it. Anyway gentle hugs to you all and sorry about my rant...but I feel better now. xxxx


Unfortunately we know how you feel.
The cutting off my hand was/is sarcasm, sorry :(

We wish too that it was recongnised. I'd like to see a doctor live with it for a while or any other person who gets to class what illness goes where in the big scheme of things.

I have my fingers crossed for you in Feb
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby FluppyPuffy » Thu Jun 26, 2014 10:02 pm

When this was originally published, around this time last year, there was a fair bit of buzz about it on t'interweb, esp social media sites. Like so many things that are supposed to show the root/cause/origins of FM, there has been virtually no follow~up or updates found to see how this has progressed.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby scoke » Fri Jun 27, 2014 10:27 am

I was about to say the say as fluppypuffy - I would love to think that this is true, but more that it means there is still research going on around these findings and that a proper medical test can be found from this research and then a cure. Treating the symptoms only half works for some people, we really need a cure or at the very least, something to treat the base cause..... So many of my (non-fibro) friends have sent me this article over the last year, so thoughtful of them but they seem to think that on reading it, I'll be able to get better! If only.....
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby flatbunny » Fri Jun 27, 2014 11:48 am

In fact my hands are the least affected by FM! Although it may be a contributing factor and may be the case that can lead to more sensitivity in FM patients hands how on earth can it attribute to the rest of your body? I believe it may be both. That the hand thing makes it worse for your hands and occurs in FM patients but that it is also about the pain centres in the brain overreacting.

Just as a interesting note. A good while ago a friend lost loads of weight and kept it off after the now famous weight loss app, basically a hypnotherapy track through your phone, so I looked it up on the same site she got it from. The site gave me 'free credits' at the time and so I was able to browse and pick what I wanted without having to pay. Not only have I downloaded the weight loss one to my PC so I can use it on my MP3 player at a later date, but I also found a Fibromyalgia Hypnotherapy session pack I was also able to purchase with my 'free credits'. I started it yesterday although I met problems as for some reason my MP3 player decided to play them in backwards order so I had to be more awake and less relaxed which is less than is helpful as I had to continually go back a track (there is 11 in all). I have started again and put them onto my MP3. This time made sure they are in order and I am going to see if I experience any relief from my FM symptoms.

Professional therapeutic hypnotherapy is nothing like the stage shows on TV making people do a chicken dance! lol It's a form of meditation with a talk through that gets through to your subconscious to try and re set what ever is triggering the pain, fatigue and lethargy. It tackles FM problems like sleeping through pain and Fibro relief. So far listening to it all the way through it sounds really helpful and not harmful at all. I will have to see what happens with it! If this works I may share the therapists name, so you know which is the real deal. xx :-D (I am not selling anything and I am not endorsing or promoting use of these methods. Please consult your GP before commencing on any treatment or helpful programme to do with your illness).
Last edited by FluppyPuffy on Fri Jun 27, 2014 12:50 pm, edited 1 time in total.
Reason: Split larger paragraph into smaller ones for easier reading.
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby FluppyPuffy » Fri Jun 27, 2014 12:57 pm

If you're unsure about posting the linky/web address on the forum, you can pm the details to me, and I'll have a bit of a looky at it to see if it's OK.
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Tel1 » Sat Jun 28, 2014 6:56 pm

Hi People:))

Yeh I have seen this in medical journals as well....IF IF IF this is true, then perhaps we can have all of our veins checked :yikes: :yikes:
My hands and fingers feel fuffy especially after I have eaten which sounds mad, but that is what I get :crazy:
But deep down underneath, I also think we all get all this Fibro because of how we have lived our lives, I truly believe that, even though we have all got to the stage now whereby we are wondering what all the symptoms we get are and how to get rid of it all.
Also.. I have seen several NHS articles which have said that they are now planning to give all Fibro patients CPAP machines which is for sleep apnoea etc... ( which I have myself ) yes it actually does make you more alert and stops the tiredness, but it doesn't stop all the
rest of the symptoms.... If I can find that article I will let you guys know....
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby scoke » Sat Jun 28, 2014 7:04 pm

Interesting theory that we have got it through the way we have led our lives -Tel1 - do you think there's a common factor? I did read in a forum several years ago that maybe we were all over-achievers. I don't think I am but I was very busy, fit and active in early-to-middle age adulthood. But I now know I showed symptoms from age about 11 so not sure about it. Or do you think it was our diet? Please elaborate.
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Tel1 » Sat Jun 28, 2014 7:28 pm

Hi there:))) you know... I really don't know 100%,,, but I really do believe that Fibro people do have a lot in common with how we feel, and although like me, like you, like everyone else we are dying to find out why we are like we are....and I still believe that it is to do with how we live our lives or have lead our lives and also how we justify our feelings....however my ex partner was a hostage in Kuwait and we all went through hell.... however all the people who were hostages who were under great stress, none of them have all that we have.... or put it this why, none of the ones that I know from that time have any of symptoms we have....and I think that is because their stress, even though it was extremely terrible, it was only short lived for a few months, and so perhaps with all of us lot our brains/bodies and feelings have created this dreadful Fibro illness....It is all SO difficult to actually know what is causing what, but we can only hope that somehow we will in time get to the bottom of it... I am a very positive person even though I have this dreadful Fibro, but I also know people who have Fibro and ME etc who just walk about like zombies because they take all the medication offered, and I am sure that the pills they give us for Fibro DO make a lot of people worse... Although, I was offered pills for this that and the other, I wont take them as I just think, if I can get through life without pills then I will do that as I would hate to be dependant constantly taking pills for this that and the other.... obviously if a doctor said, take this pills otherwise you will die, then of course I would, like anyone would... but regarding using a CPAP machine, they certainly do work and stop the tiredness....I will really try and find that article on what the NHS are thinking of doing for Fibro patients.... be good, stay safe.....X :-)
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby Tel1 » Sat Jun 28, 2014 7:36 pm

Forgot to say,,, Yes I do think it is our diet..:)) also how we slept when we were younger, and also if we were very active or not.
I use to half walk run everywhere, running up and down escalators running for tubes / trains/ racing around at airports, jetting, here, jetting there. I am sure all that, with mental stress that lasted for too long without us really knowing what it was actually doing to us.

I really do believe that Fibro is all part of the burn out in our bodies, that we have stressed it out for far too long and that is why we are all like we are:) the trouble is, we will ever get back to normal if there will ever be such a thing for all of us again...? :yikes:
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Re: Fibromyalgia Mystery Finally Solved! - is this new?

Postby scoke » Sat Jun 28, 2014 8:22 pm

Certainly most people have led full lives on any of the fibro groups online, but I know a lot of busy people who haven't got FM and a few who have it have definitely not led busy lives at all. I never jetted around but my husband did and he doesn't have it. I've never been in really stressful situations, not long term unless you count the stress that I occasionally felt when supply teaching over the years but that was always only ever on a short term basis. So, though I agree stress, as seems to be recognised, is a factor, I'm not sure it's down to stressful previous lifestyles. By the same token I can't see how diet can be the cause - I know a lot of us have found certain foods help/harm us but I was a vegetarian for almost 40 years from the moment I left home. I started eating meat a few years ago again and can honestly say it's made no difference to me. I have watched my food intake from about age 12 and have always tried to eat healthily so can't agree it's caused by diet either. I am intrigued though with this idea and wonder if something specific triggered it in our bodies but medical opinion states that there are many triggers and I think that's one thing we can believe! Anyone else have any thoughts on this?
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