The Fatigue is getting too much

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The Fatigue is getting too much

Postby E-Bunny » Thu Jul 03, 2014 3:08 pm

Hi Peeps,

I was dx with Fibro 1 year ago. In that year things seem to be going down hill so fast.

I was told that Fibro does not get worse over time and that the symptoms i have will not get any worse than they are.

For the last 3/4 weeks the Fatigue is becoming almost impossible to control. In the last 2 hours i have taken nearly a full sheet of pro-plus, 1 bottle of cola, and have now opened a can of red bull o.O but it's not helping.

I am still working full time hence the swallowing of much caffeine, but still the micro sleeps are hitting me every few minutes ! And i don't even know that Ive dropped off till my whole body jumps, and wakes me up :(

I also have to add, that as soon as i get home i go straight to bed, and weekends are also spent bed bound because of the tiredness... What can i do to over come this as caffeine is no help at all, plus to top things off the pain in my arms and legs has become intolerable and the painkillers are of no use either :evil:

I need to overcome this tiredness as my job is on the line, which i cannot afford to lose... Please help :(
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Re: The Fatigue is getting too much

Postby lindauk1 » Thu Jul 03, 2014 3:29 pm

i know how you feel the other day went to pain specialist couldnt even talk properly my daughter said i looked like a drug addict my eyes was
red and kept falling asleep lol :-?
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Re: The Fatigue is getting too much

Postby dazzleship » Thu Jul 03, 2014 3:32 pm

hiya

I'm afraid I don't have anything useful to offer but I just wanted to say that I totally sympathise as I've been going through something similar. :hugs:

I too have found my symptoms getting worse and the fatigue which wasn't really actually a problem up until maybe a couple of months ago when it really started to hit. And I hate it, frankly, because I've never been the sort of person to nap during the day yet now at weekends when I'm at home there aredays that I have no choice but to fall asleep :evil:

I tend to get tired sort of mid-afternoon (kinda now ish :roll:) I too worry about my job - I work full time (and intend to stay that way for as long as I can) but I'm very lucky in that I have really understanding employers.

are your employer aware of your Fibro? have they made allowances for it? I did have an Occupation Therapist which my employers organsized to sort out my desk and stuff. Also they've said I can park in the "yellow spaces" (as I call them :oops: ) which is a huge benefit to me, just saving the distance walking across the work car park helps a lot.

also are you able to take regular breaks? that is something that again was suggested by the occupation Therapist and admittedly I haven't been very good at taking them up until recently, but I'm making myself take them now (hence why I'm on here :-D )

I'm trying to think of things to help regarding your employer, but that's all I can think of for now.

anyway sorry to hear how bad you're feeling, I'm sure one of the really helpful people on here will be along to give you better advice :-D
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Re: The Fatigue is getting too much

Postby iblinkin » Thu Jul 03, 2014 4:47 pm

Hi E-Bunny, sorry to hear you are going thru this nonesense and yes it is horrible and messes with your life. I have been a life long FMS sufferer and didn't know what was going on just that i was always in pain and exhausted, the thing is you have to become an advocate for yourself as i find the Md's don't know everything about this illness and am amazed how little they do know about this illness! First thing you must do to help yourself is to look at your diet and get rid of food that's processed and cigarettes (if you smoke) and caffeine are your enemy and will suck the life out of you. Please if you can stay away from those products that toxify your body as we have to focus on detoxification. We need to change our life and focus on healthy eating and this is a big one Sleep, so please do not fight it as our bodies need lots of rest, rest and more rest. Also stay away from sodapop and redbull as that is pure poison and those drinks are most likely what is making you worse and and try to go without as much as possible "sugar" very, very bad for us. Nigtshade foods are also severley bad as well, such as potatoes, peppers and so on.. yes many of my favorite foods and it does make a differance with how you feel trust me as I've up and down this road many times. Also what one must do is educate oneself as much as possible and find out what works and what does not work for you as all FMS sufferers are not the same and what triggers a flareup in one person doesn't affect another person. There are also some very good sites on the net that will help you with some of your questions and if you check out my earlier posts you will find a link there that's very helpful and informative. Cheers and I hope i've been somewhat helpful and it's important to remember you are not alone and also remember to detoxify your body and mind.
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Re: The Fatigue is getting too much

Postby walrus0871 » Thu Jul 03, 2014 5:07 pm

Hi

I have too struggled last week. For me having caffeine makes my fatigue worse, a CFS sufferer told me about cutting it out and it improved fatigue immensely.

Hope things improve for you x
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Re: The Fatigue is getting too much

Postby migrembe » Thu Jul 03, 2014 8:14 pm

In the 6 years it took the doctors to diagnose what was going on with me, i cleaned up my act. I took up meditation, walking, swimming, organic vegetarian food, limited my dairy, only ate good grain and often made my own bread, never processed food, no alcohol, no tea, no coffee, no high caffeine drinks, no sodas, i allowed myself one small bar of chocolate on a Sunday and that was it. I lost 8 stone in weight 112 lbs but it didn't stop the FMS. It's now been about 11 years and i eat what i like, when i like. I haven't found any pill, potion or lotion that has actually helped in fact most of the side effects have been so bad i have had to stop taking them anyway. Now i take 30/500 cocodamol x2 up to 3x a day and ibuprofen 400 2x a day. Is the pain any worse - nope! Was it any less when i was on more pills - nope! The pills made me more ill than the disability.

I find a very hot bath and meditation are the only things that help. The more you try and ignore FM the worse it seems to be, when you accept your limitation and the fact that it cannot be cured but some people are able to live relatively normal lives with it, but some cannot. I am a cannot. I had to give up my nursing job and now i am officially disabled and some days i feel it too.
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Re: The Fatigue is getting too much

Postby Andyp » Thu Jul 03, 2014 9:52 pm

I was also diagnosed about a year ago and found it very difficult to accept.

I've been able to carry on working during this time, but the last few months I have felt it getting worse - so I have had to ask for some time away from work to try and get some rest - not something I particularly wanted to do as working takes my mind off things a bit, but it couldn't handle it anymore.
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Re: The Fatigue is getting too much

Postby SchroedingersCat » Fri Jul 04, 2014 9:24 am

Ye gods, *how* much caffeine? Seriously, cut that right out, it'll kill you. Have look at the various diet restrictions that this site and Google recommend for helping with FM. I've tried them all, none of them have worked for me, but they do seem to help other people. Also maybe try taking a Vitamin B complex and a Co-enzyme Q10 supplement, I've been taking them for over a year (oh and a small dose of Vitamin D) and they have definitely helped.

I work full time by the way.
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Re: The Fatigue is getting too much

Postby migrembe » Fri Jul 04, 2014 10:57 am

No nothing worked for me either. Not sure how you can cure the mind by what you ingest anyway? :crazy: Beverley
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Re: The Fatigue is getting too much

Postby E-Bunny » Mon Jul 07, 2014 11:41 am

Hi,

Thank you for all the replies. I will try to reduce my caffeine intake slowly as stopping suddenly may not be the best idea.

My diet is as healthy as i can afford o.O trying to lose weight at the moment, and it is gradually going down =)

I had a good day yesterday ( managed to clean the bathroom at last ) but really regretting it now and just wish i was in bed =(

Tina x
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Re: The Fatigue is getting too much

Postby chookie » Mon Jul 07, 2014 12:00 pm

Tina, you have to cut that amount of caffeine down or you risk heart problems, be careful ;-)
Fibromyalgia, M.E, IBS, General Anxiety Disorder, Dyspraxia, Discalculia
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Re: The Fatigue is getting too much

Postby ouchisme » Mon Jul 07, 2014 7:53 pm

for me pain is just there but its the fatigue that totally gets me ..... sometime i will have 3 lie downs a day because so out of it with fatigue. My best time for doing most things doctor appts, shopping (on line) and pay bills on line is in the mornings. After the first couple of hours i feel totally drained. We just have to listen to what our bodies say and not push ourselves til we are a gibbering out of it with fatigue mess

hope you are having a good pain and fatigue day
Had symptoms for 5yrs. Dx February 2011
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Re: The Fatigue is getting too much

Postby tabithakat64 » Wed Jul 09, 2014 11:52 am

I'm really struggling with fatigue atm too. Like you I find my self reaching for caffine and also chocolate as a quick fix to help me through the work day.

You really should speak to occupational health to get adjustments made for your disability.
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Re: The Fatigue is getting too much

Postby E-Bunny » Wed Jul 09, 2014 3:25 pm

Hi,

And thanks again for your replies..

Someone mentioned having a hot bath... I wish i could :( but i am not allowed to have baths due to my epilepsy not being controlled.. I would love to do that, or just go to the local swimming baths and chill in the water as i think that would do me some good..

I have cut most of the caffiene out, but still having the odd cola.. I am really struggling, and being hit by microsleeps ( alot ) :evil:

Work has been the only constant in my life... Reducing my hours or leaving my job just feels like i am giving in...

Tina x
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Re: The Fatigue is getting too much

Postby FluppyPuffy » Wed Jul 09, 2014 3:39 pm

Do you have a seat that could be used in/under the shower??? Just thinking that if you could sit for a while with some nice warm water running over you, it might make a bit of a difference to how things feel.
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