Coping with my daughter's needs

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Coping with my daughter's needs

Postby emzo93 » Fri Jul 11, 2014 12:29 pm

I have a 3 year old who will be starting nursery soon but the fibromyalgia really affects my joints and how far I can walk. At the moment I can walk to the end of the street and back (just) but every step is agony. The nursery is too far for me to walk and I cannot get public transport because of my mental health issues. I feel I am too young to need a mobility scooter but it seems I have no other choice. Has anyone got any suggestions or had similar issues?
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Re: Coping with my daughter's needs

Postby FluppyPuffy » Fri Jul 11, 2014 1:54 pm

Does she have a friend close by who will be starting at the same nursery??? If so, you could see if she could go/walk with her friend and parents, with you going along for as far as you can manage, then coming back home?? Then for her coming home, you could walk to the point you can manage, and then walk back home with them.

Some schools did used to have walking bus schemes, but as it's a long time since my offspring was so small, such things may not still be used. If you speak to the nursery she will attending, they may have some provisions in place for families that have difficulties with getting their little peoples there.
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Re: Coping with my daughter's needs

Postby emzo93 » Fri Jul 11, 2014 5:01 pm

Unfortunately she doesn't. I hardly go out because of the combination of my mental and physical health problems so neither of us really socialise with other people. I feel so guilty that I hardly take her out. I will try talking to the nursery but don't think there will be anything they can do. We've been waiting for a referral back to social work for months but haven't heard a thing. They said they would help us but then never got back in touch. I just keep wondering how I will manage as it will be the same when she goes to school too.
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Re: Coping with my daughter's needs

Postby Annie54 » Fri Jul 11, 2014 5:06 pm

I think talking to the nursery and explaining your problem would be a great idea. Hopefully there will be someone near enough to help you out and it will be a way of making contact with other people which will help too. I do hope that it sorts itself out for you and your daughter.
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Re: Coping with my daughter's needs

Postby FluppyPuffy » Fri Jul 11, 2014 6:18 pm

Have you tried chasing up your Social Services referral??? Might be worth doing as there may be some way they can help with the nursery getting~to~and~from in with other things.
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Re: Coping with my daughter's needs

Postby emzo93 » Fri Jul 11, 2014 10:50 pm

I have chased it up on several occasions but they just keep saying they are short staffed and they will get back to me ASAP. I've been waiting since before Christmas. I've had other people chase it up too but no such luck.
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Re: Coping with my daughter's needs

Postby painprincess1 » Sat Jul 12, 2014 5:36 pm

you could home school her. whiles shes young until u are more able to get her to school,i have said as my little one is 2 if I cant walk to school come the time il A get a scooter or B home school her myself.xx
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Re: Coping with my daughter's needs

Postby MichelleJ » Sat Jul 12, 2014 10:11 pm

Not much help for right now but once she's school age you should qualify for school transport for her through the council. It's normally done on distance but they also provide it if I parent is ill or disabled and has no way to get the child to school. A friend of mine had it last year (well still does) and at that time she only lived a 10 min walk from the school. So that could be a solution when she goes full time.


If a scooter would help get one. I use one and have for the past 3 years. I'm 39 now so was 36 when I got it. It has been so helpful to me. I use my wheelchair more now as more comfy and I now have a carer who will push me as can't self propel myself but if I need to go on my own and don't want to drive or need it when I get there then I take my scooter. If you feel too embarrassed to use one why not consider an electric wheelchair instead? You may feel more comfortable with one of those if your age worries you. You can try them out and scooters through shop mobility or go into a disability shop and ask if you can try them, see how you feel. You should be able to pick one up second hand though for either option. Good luck.
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Re: Coping with my daughter's needs

Postby denys » Sun Jul 13, 2014 10:44 am

Mobility aids arent just for older people, if you need one to help then it doesnt matter how old or young you are. You will probably find it gives you a sense of freedom actually managing to get to places without worrying
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Re: Coping with my daughter's needs

Postby emzo93 » Tue Jul 15, 2014 7:03 pm

I am definitely considering getting a scooter/electric wheelchair now as I do not want to have to rely on other people taking my daughter to nursery. I would love to be able to go out to places too and not worry about getting there and back. Where is the best place to get a second hand scooter/ electric wheelchair? I have got a support worker to chase up social work for me so hopefully will see some progress there soon. Thanks for all the great advice. I'm very grateful.
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Re: Coping with my daughter's needs

Postby FluppyPuffy » Tue Jul 15, 2014 7:46 pm

I have heard of people picking up some decent scooters on ebay for decent prices. Also thru FaceBook where there seems to be a growing number of Buy/Sell/Swap groups appearing. Maybe try searching to see if there is one for your area. You could also try local newspapers and/or their sites as smaller, independent shops/sellers could well advertise on/in them.
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Re: Coping with my daughter's needs

Postby denys » Wed Jul 16, 2014 7:18 am

Also your local mobility shop may have some second hand ones and they service them as well so you will know its in proper working order, good luck with it and I hope you get sorted in time to take your little girl to nursery :-D :-D :-D :-D :-D
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