What to expect?

All your fibromyalgia experiences, questions and answers.

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What to expect?

Postby Storm » Tue Jul 15, 2014 12:56 am

I have an appointment at local Musculoskeletal Rheumatology clinic on Wednesday morning to seek formal diagnosis of Fibromyalgia and I'm not sure what to expect from the appointment. What will they ask? What kinds of tests etc?
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Re: What to expect?

Postby Ali170 » Tue Jul 15, 2014 8:02 am

Hi Storm,

Have you already had blood tests, x rays scans etc. ? If so they will probably go over these with you and ask you where the pain is and how long you've had it and what seems to make it worse or better. If not they will arrange for these to be done.

In my experience of more then 25 years I had a whole range of tests which always came back clear but they sent me for treatments anyway !!!!! My GP realised there was nothing to be gained by sending me to all these specialist clinics so made an appointment at the general medical clinic at my local hospital. I saw a young locum , she asked me loads of questions about where the pain was, examined me by pressing points on my back, legs and hips, she saw that all my tests were clear. Within 20 mins she had diagnosed me ! She explained that FM was a process of eliminating all other conditions that can cause this sort of pain.

I hope you get the answers you are seeking, take care x
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Re: What to expect?

Postby migrembe » Tue Jul 15, 2014 8:42 am

When i was assessed we spent as much time if not more time talking than examining me. She checked my hands for RA nodules, but i don't have any and then did the 18 point finger test, which although felt like someone was jabbing me with a knife, she was very gentle. then she looked at me and said, i know what it is - i think she already knew - said FMS gave me a leaflet, talked a little more and that was it.
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Re: What to expect?

Postby FluppyPuffy » Tue Jul 15, 2014 9:22 am

This linky should give you a general idea of what could happen when you go and see your Rheumy. It's difficult to say exactly what will happen as each Rheumy/clinic/hospital/area tends to do things in their own way :goodluck2: :goodluck2: :goodluck2: and hopefully you'll get some of the answers to questions that you're looking for :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: What to expect?

Postby Theresa34 » Tue Jul 15, 2014 9:41 am

First of all, I was already seeing a rheumatologist for psoriatic arthritis. It was at one of my usual appointments that I mentioned how much worse I was feeling. He took into account these symptoms and listened to how they were affecting me. He then did the point test on me then diagnosed me with fibro. He handed me a leaflet explaining about it. He then sent me for bloods to check vitamin D levels (as we are usually low in it), full blood count, bone density and other bits & pieces. This was all done in Feb this year. I was also put on Amitriptyline to help me with my sleeping problems. Its a mild dose of an antidepressant, he told me it would help with the pains I was getting and it really has. Not completely but the aching flu symptoms I was getting have gone, but I was also put on a Vit D supplement which can help too. I was very low at 10.5 I think. And it should be much higher.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: What to expect?

Postby Storm » Tue Jul 15, 2014 12:37 pm

What's the 18 tender points test? Are there specific places I could try it on myself? Sometimes I prod these so called areas, and don't feel major pain, but there again I have Autism and that could contribute to not really feeling pain when people touch me lol.

I have pretty much every symptom of Fibromyalgia, there's no other way to explain it, just worried I won't react to this test.
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Re: What to expect?

Postby FluppyPuffy » Tue Jul 15, 2014 1:28 pm

Another linky for you, info about the Tender Point Test. I'd normally type it all up into a post, but as I'm not too brilliant today, linkys are my limit for now :( :( :(
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: What to expect?

Postby happybunny » Thu Jul 17, 2014 4:48 pm

Hello!!!
Thankyou for the linky,it was really helpful for me. I didnt know much about the test when i had it,but i do now!!!
Again, invaluble advice and guidance from the Boards comunity.
SO SO glad i found you all out here in cyber-land
xx :-D
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