diagnosis

All your fibromyalgia experiences, questions and answers.

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diagnosis

Postby ..:: lisa ::.. » Wed Jul 16, 2014 5:36 pm

How long on average did it take you to get a diagnosis?

I've seen it takes around 5 years!!!

I'm only 2 years in to this journey and already I've had enough!

I am sick of being passed from pillar to post, shovelling down medication, crying, getting frustrated, blah, blah, blah, blah, blah :sleep:

I have my first CBT appointment tomorrow and 2 different psychiatry appt over the next few weeks.

I'm worried that I'm not crazy enough to be seen by psychiatry on a permanent basis so then where does that leave me?

:banghead: :banghead: :banghead:
—(••÷[ I may ramble at times as my train of thought has crashed. Please be patient and bare with me ]÷••)—
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Re: diagnosis

Postby Theresa34 » Wed Jul 16, 2014 5:50 pm

My diagnosis was immediate. No waiting. I'm very fortunate as I had been seeing a rheumatologist for almost a year when my symptoms hit me. He diagnosed me during an appointment.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: diagnosis

Postby daisyp59 » Wed Jul 16, 2014 6:46 pm

It took me about 6 months for a diagnosis, but I thought the pains in my hands was my arthritis spreading so was sent to a rheumatologist, who did x-rays, and then the pressure point tests and diagnosed the fibro. I do hope you don't have to wait much longer.
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Re: diagnosis

Postby MichelleJ » Wed Jul 16, 2014 7:20 pm

I was diagnosed within 3-4 months of pain becoming severe but most of that was waiting for my rheumy appointment and u have to have had it for 3 months anyway. My g.p ran all the blood tests in the time we were waiting. Was diagnosed on the back of those tests all being clear, my symptoms and reacting to all the tender points. The rheumy also ran further blood tests post diagnosis to be safe but they came back clear as he expected them to.
Dx with fibromyalgia m.e/Cfs and asthma
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Re: diagnosis

Postby Lindenp » Wed Jul 16, 2014 7:51 pm

I'm note really sure how long it took for me to be diagnosed. It was certainly a few years. I was suffering from depression so every symptom was put down to that. When I finally got my diagnosis I was sooooo relieved. :-D At last I knew what it was. Keep asking your GP to refer you until you exclude everything else. Blood tests, X-rays, scans the lot. If you don't keep pushing they will just keep fobbing you off. I eventually told my GP that there had to be something else wrong other than depression which is when he finally referred me to a Rheumatologist. I asked him if he thought it could be Fibro which seemed to give him a light bulb moment. :idea:

Don't worry about seeing Psychiatrists in my experience they are lovely people who just want to help. Their expertise is in which is the best anti-depressant medication for you to be on. But expect to have to try several before you find the best one for you.

Hope you get sorted out with a diagnosis soon.
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Re: diagnosis

Postby Theresa34 » Wed Jul 16, 2014 8:18 pm

daisyp59 wrote:It took me about 6 months for a diagnosis, but I thought the pains in my hands was my arthritis spreading so was sent to a rheumatologist, who did x-rays, and then the pressure point tests and diagnosed the fibro. I do hope you don't have to wait much longer.


I thought it was my arthritis too.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: diagnosis

Postby denys » Thu Jul 17, 2014 3:54 pm

Everyones different, hopefully people will be getting their diagnosis more quickly as the condition becomes more accepted
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: diagnosis

Postby BonnGayle » Fri Jul 18, 2014 7:20 am

It took me 5 years of being passed around then I moved to Germany and luckily found a good Reumy here
Fibro,PCOS,Asthma,excema and Dyspraxia ( undiagnosed because it didnt exist then )
what does'nt kill us just makes us stronger!
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Re: diagnosis

Postby ..:: lisa ::.. » Fri Jul 18, 2014 10:37 am

Thanks lovelies.

I'm guessing that as I didn't start off with pain, I missed out on seeing a rheumatologist....

My journey started with ENT specialist....

I had my first CUT session yesterday and after I reeled off symptoms the first thing he said was has your gp mentioned fibro or cfs!!

Hopefully I'm on the right path now...
—(••÷[ I may ramble at times as my train of thought has crashed. Please be patient and bare with me ]÷••)—
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