Vitamin D

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Vitamin D

Postby rich44 » Mon Aug 11, 2014 1:25 pm

Had bloods done last year and was prescribed 400 units daily and then taken off it.

Saw different GP today who went through everything again, checked all my meds, reviewed all my test results and get this.

He says your vit D levels were extremely low before you were prescribed 400 units which is way too low I'm going to give you 10,000 units 4 times a day for a week and we'll retest.

So upset about that but let's see what happens now
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Re: Vitamin D

Postby Chickenosaurus » Mon Aug 11, 2014 2:26 pm

That's interesting as I had my blood tested for vit D in May - I didn't hear back, so I assumed it was OK. My pharmacist phoned last month to let me know that my results had been passed to her and she wanted to let me know I was 'insufficient' in vitamin D and I had to start taking at least 800ius and getting 20 mins sunshine a day {gazes out at tail end of hurricane Bertha! :roll: ) I've heard that the recommended 400- 800ius is too low to treat deficiency and 2000ius is better (4000ius/day longterm seems to be the upper recommended limit - but as you need a real boost that's probably why you'll need so much in the short term

She said not to worry as I wasn't actually deficient - but then I owned up that I'd actually been taking 2000ius a day for the last couple of years and only stopped a few weeks before the test. I didn't think they'd do it if I told them that, and am really glad I got it done. I'm also B12 deficient, so I'm working my way up the alphabet!

Just got to start worshipping the sungod now! 8-)
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Re: Vitamin D

Postby carolad » Mon Aug 11, 2014 3:51 pm

It seems that the RDAs for a lot of these vitamins are very out of date and that you actually need a lot more of some vitamins (especially B12 and D) to be healthy. Wouldn't you think that the NHS would pay attention to the latest research and update their guidelines, rather on relying on information from about 50 years ago? :-x

I will continue to take my high strength D and B12 supplements, based on recent evidence. I have more faith in up-to-date medical literature than I do in established NHS guidelines :)
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Re: Vitamin D

Postby iblinkin » Mon Aug 11, 2014 4:09 pm

The one thing i found out about fms is it affects your hormones as well as everything else and most people are not aware that vitamin D is a hormone which brings me to suggest fms patients should have all their hormone levels checked as well. I did and I'm on hormone replacement therapy as well as taking vit. D which has made a big difference in my health as i came down with severe upper respiratory illnesses multiple times a year and now no longer have that problem and i may only get a cold a couple of times a year... big change for me, so don't be alarmed by this as it's very common for us to have these issues when dealing with fms. Actually be very happy your Dr. found out as my Dr. said to me after i went to a specialist and i told him about the results was " you've got more serious things to worry about than the vitamin D! Yea.. he's an idiot! Gentle hugs to all and please stay calm as it works against us if we don't.
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Re: Vitamin D

Postby dejay » Tue Aug 12, 2014 9:41 am

I asked at my last appointment could I be tested for vit d and was told by the girl who took my blood vit d cannot be tested for,now reading other peoples messages it can be tested for, I am thinking now I will talk to the pharmacist and ask what I should take is it only vit d or b aswell or would a multi vit be ok, I do try to eat properly, fruit, veg etc But now I am a bit confused (which happens often) Any advice would be gratefully recieved then I can sift through it to talk to my dr next time lol to all
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Re: Vitamin D

Postby carolad » Tue Aug 12, 2014 10:13 am

dejay wrote:I asked at my last appointment could I be tested for vit d and was told by the girl who took my blood vit d cannot be tested for,now reading other peoples messages it can be tested for, I am thinking now I will talk to the pharmacist and ask what I should take is it only vit d or b aswell or would a multi vit be ok, I do try to eat properly, fruit, veg etc But now I am a bit confused (which happens often) Any advice would be gratefully recieved then I can sift through it to talk to my dr next time lol to all


I have been taking a multivitamin for years but have recently found out that the Recommended Daily Allowance for some vitamins is hopelessly out of date! B12 is one in particular that we should be having a lot more of than the RDA. So I am taking a supplement that is 1000 times more than the RDA! You do need to be careful about taking too much of certain vitamins because some can cause problems if you take more than you need. But with B12, there is no upper limit, the body just excretes what it doesn't need. Taking high dose Vitamin D for long periods can be a problem, but in the short term it is ok to take more than the RDA.

I agree with you though - I would have thought measuring your vitamin levels should be standard practice for anyone who reports fatigue and widespread pain. I can't help thinking that a vitamin/mineral deficiency plays a very big part in our problems. We eat overprocessed food that has been contaminated by pesticides and antibiotics and who knows what...so of course this is going to affect our bodies. Ideally, we should be getting all the vitamins and minerals we need from our food, but if we can't do that, taking supplements is the next best thing.
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Re: Vitamin D

Postby painprincess1 » Tue Aug 12, 2014 12:55 pm

Ppl with fibro seem to suffer low vit D , I do to,
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Re: Vitamin D

Postby rich44 » Tue Aug 12, 2014 1:12 pm

Can't remember if it's vit D or not but if it is it's an expensive test they don't like to run. So maybe that was why they fobbed it off?
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Re: Vitamin D

Postby Chickenosaurus » Tue Aug 12, 2014 2:34 pm

It's a pretty bog standard test for vitamin D - I had asked the nurse about it and she said she had to ok it with the nurse in charge, just in case it was an expensive test, but it was no problem.

Re: vitamin B12 - I had megaloblastic anaemia as I was B12 deficient and am now on injections every 12 weeks for life. Depending on what's causing the deficiency, you may not be absorbing B12 from food/pills if the carrier molecule is absent or out of action. Throwing huge doses in can get some into the blood by passive diffusion, but if you're not deficient, you'll just be peeing it out. :-D
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Re: Vitamin D

Postby rich44 » Tue Aug 12, 2014 4:08 pm

Funny how you hear different things from different medical professionals
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Re: Vitamin D

Postby carolad » Tue Aug 12, 2014 11:29 pm

rich44 wrote:Funny how you hear different things from different medical professionals


That's true. There really is no 'National' Health Service be bay's treatment, advice etc seems to vary so much between different areas. I suspect at least part of that will be due to financial constraints.
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Re: Vitamin D

Postby MPSGuy » Thu Aug 21, 2014 8:59 pm

I think it is about money saving really, some of these tests get quite expensive when you roll them out to millions of people across the country. Of course that doesn't concern the individual patient.

I'm also pretty sure that Vitamin D deficiency is actually very common due to our weather and the amount of time people spend indoors generally. If you look at the vitamin D council website http://www.vitamindcouncil.org/about-vi ... ody-needs/ you can see it is very safe for people to take a standard supplement anyway.

I was tested and my level was low, after taking supplements it went back to normal. Unfortunately I don't think it helped with the pain much but there was some benefit in fatigue levels. I also take a B vitamin complex table that really helps too.
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Re: Vitamin D

Postby rich44 » Thu Aug 21, 2014 9:05 pm

No i've chugged down 300,000 units in a week, still feel awful.
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Re: Vitamin D

Postby MPSGuy » Fri Aug 22, 2014 11:24 am

rich44 wrote:No i've chugged down 300,000 units in a week, still feel awful.

300,00IU, that is a lot!

I think vitamin D has become a bit of a fad. I'm sure some people benefit a lot but for me I found no difference in pain. I think taking B vitamins was more beneficial.

I guess at least there are usually no side effects from vitamins, unlike the prescription drugs.
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Re: Vitamin D

Postby FluppyPuffy » Fri Aug 22, 2014 11:40 am

MPSGuy wrote:I guess at least there are usually no side effects from vitamins, unlike the prescription drugs.

There can be side effects and pretty horrendous issues relating to vitamins, supplements etc, so, just as with pharmaceutical treatments, potential interactions and problems are best checked out before starting to take them.

This linky explains about some of the effects of Taking Too Many Vitamins.
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