This might be a silly question,but...

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

This might be a silly question,but...

Postby Millymo » Wed Aug 20, 2014 8:00 pm

Hi, I am very new to this.I have only been recently diagnosed,dispute then fact I have had symptoms for over 30 years. I am relieved to have a diagnosis,but I always knew something was wrong. I obviously don't know how old some of you ladies are,I am 60.Everything seemed to escalate about eighteen months ago,it just seemed to get a lot worse. Luckily I had a new GP who ,thank heavens,didn't blame it on menopause or anxiety (like the previous one) Any way the question is, I have SO many weird and ( not!!)wonderful complaints. "How on earth would you ever know if you were really I'll????". No way could you keep going to the doctors with every complaint,but I tend to just ignore everything the best I can. Sometimes,when I'm feeling at my worst,I think well why think about that as I'm not sure I really care anymore. Its not easy is it????
I suppose I kind of hoped that as I'd felt so bad for so long,I might just be one of those people that felt better as they got older...what was I thinking!!!!!
Its nice to know there's somewhere to go where you will be understood,....feeling pretty fed up!
Thanks for reading x
Millymo
UKFM Newbie
 
Posts: 3
Joined: Wed May 28, 2014 8:55 pm

This might be a silly question,but...

Postby Millymo » Wed Aug 20, 2014 8:02 pm

Hi, I am very new to this.I have only been recently diagnosed,dispute then fact I have had symptoms for over 30 years. I am relieved to have a diagnosis,but I always knew something was wrong. I obviously don't know how old some of you ladies are,I am 60.Everything seemed to escalate about eighteen months ago,it just seemed to get a lot worse. Luckily I had a new GP who ,thank heavens,didn't blame it on menopause or anxiety (like the previous one)

Any way the question is, I have SO many weird and ( not!!)wonderful complaints. "How on earth would you ever know if you were really I'll????". No way could you keep going to the doctors with every complaint,but I tend to just ignore everything the best I can. Sometimes,when I'm feeling at my worst,I think well why think about that as I'm not sure I really care anymore. Its not easy is it????

I suppose I kind of hoped that as I'd felt so bad for so long,I might just be one of those people that felt better as they got older...what was I thinking!!!!!

Its nice to know there's somewhere to go where you will be understood,....feeling pretty fed up!
Thanks for reading x
Last edited by FluppyPuffy on Thu Aug 21, 2014 7:33 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
Millymo
UKFM Newbie
 
Posts: 3
Joined: Wed May 28, 2014 8:55 pm

Re: This might be a silly question,but...

Postby DonnaMorgan14 » Wed Aug 20, 2014 8:50 pm

Hi, i know the feeling, if we went to the GP every time we had another pain, ache or symptom we would live at the DR's. You never know if it's something related to FM or not. I have just got to the stage now that everything that i feel is down to FM :-?
DonnaMorgan14
UKFM Member
 
Posts: 15
Joined: Sat Mar 15, 2014 10:00 pm

Re: This might be a silly question,but...

Postby Fibroised » Wed Aug 20, 2014 9:21 pm

Hi Millymo,
Gosh 30 years is a long time to have suffered without a proper diagnosis. I'm 59 and was diagnosed 18 months ago, having been ill for the previous 2 years. Though now, in hindsight, various "twinges" came and went over the years.

I put everythig now down to fibro. I usually look it up on the internet, and sure as day is day, there it will be among the symptoms! Have scoliosis and all over osteoarthritis to keep it company.

Of course I was diagnosed with all sorts of stuff at first but once I began to feel the pain of the "fibro points", I was properly diagnosed. By that stage my other half and I had worked it out, because everytime we put the symptoms into the computer, no matter what order, it kept coming up as fibro. Had never heard of it until then.

No, it isn't easy. You sound like you have a doctor who at least knows their stuff and that is a great start. Have you been to a pain specialist? Maybe you could get your doctor to send you to one. It may take a while to get on the right meds which suit you but hopefully when you do, you will get some relief. I am on a good cocktail which works for me and no nasty side effects. But of course when I say works for me, it isn't all the time, but I do get good days I also try to stay as positive as possible and while I may not be as mobile active as I used to be, I do try to keep my head active and I find that helps.

This forum is brilliant too because everyone knows what you are up against, so you are never alone.
The best of luck to you, and sending you soft hugs xxx
Last edited by FluppyPuffy on Thu Aug 21, 2014 7:34 pm, edited 1 time in total.
Reason: Made paragraphs a little clearer for easier reading.
Fibroised
UKFM Member
 
Posts: 33
Joined: Sun Feb 23, 2014 10:43 am

Re: This might be a silly question,but...

Postby Fallen » Wed Aug 20, 2014 11:14 pm

Hi Millymo, sorry to hear you are fed up, but I totally get why you are. I have been living with FM officially for 7 years but probably more like 30 years, I'm 49 now. 7years ago a Dr told me I had psoriatic arthritis, in all that time I kept saying, there was more going and finally last month they agreed. In a way I can see why they thought that as PA does mimic some of the symptoms of FM.

It is always hard trying to explain to people what is going on at any one time, as our pain can change by the minute. I made a list of all my medical problems, everything from, 'please don't touch me cos it hurts', to 'blurred vision' and muscles spasms to name but a few. I could now show my GP, or anyone else who wants to know. But be warned, you might see some peoples eyes glaze over after the first page. Lol.

I made my list by reading other peoples symptoms on this forum and relating them to mine, it is a long list, but every ailment is very much a part of my FM and effects how I manage each day. I am on good medication, allowing me to keep hold on to my job. I admit by Thu/Fri I am extremely tired and in a lot of pain but thank goodness for Flexi time and a good manager.

I hope you find this forum as useful as I have, I read each persons story and want to sent gentles hugs to everyone. So take this as a hug from one FM sufferer to another. Best wishes. Cx
Fallen
UKFM Newbie
 
Posts: 7
Joined: Tue Aug 05, 2014 10:35 pm

Re: This might be a silly question,but...

Postby Gracious » Thu Aug 21, 2014 12:06 am

The one thing I had an issue with once diagnosed, was when to actually got to the doctors, because lets be honest our health and symptoms change moment to moment. So I asked my Doctor, I explained I was having anxiety about coming to discuss health issues, because how would I know if they were serious or temporary symptoms, or if they (The Doctors) would take them seriously. She gave me a little piece of advice. She recommended that patients with Fibro should get there bloods checked every 3 months, just to ensure everything was at normal, no deficiencies etc. She also said that if a new symptom had come up and was severe to make an appt. If it was an irritation but not lifting after a couple of weeks then make an appt. But she also said it takes a little time to get to know your symptoms and also the dugs and your own personal side effects. But she reassured me that I could arrange an appt anytime if I was concerned and not to feel I was wasting their time.

One tip when going to the doctors I tend to have a list of problems and then generally stick to the bigger ones. I tell them quickly the list but then get them to concentrate on the issues impacting most on my life, health, function, wellbeing. Once they are under contol I move onto the next most impacting. I learned you cant fix several things all at once, because you wont know if given several meds, which are helping and which ones are disagreeing with you. Its a slow process, but I feel its the best way to look after my body, my mind and my Fibro.

For example tonight I am having a major flare, body is on fire, I have a red rash all over, prickly painful pins and needles on my skin, tightness in my joints, sollwen, dizzy, headache and abdominal pain. I did not have the skin issues a year ago but I dont need to see the doctor about this now, for I have learned this past year my symptoms changed and if I now eat chocolate I will burn and if I eat pastry, then by body really gets upset. It never did before but it does not. Today I eat a sausage roll and I had far too much chocolate, so I am paying the price for that indulgence. If I eat what now suits my current body, tomorrow it will settle down. But it takes time to learn all your symptoms and wee triggers, from food, meds, exercise, products etc.

But while your getting to know your own body, don't feel you can't go to your doctors, if only to reduce the worry that can build up.

Hope this is of some help
Loving kindness Joanne x
Gracious
UKFM Member
 
Posts: 116
Joined: Thu Aug 14, 2014 6:45 pm

Re: This might be a silly question,but...

Postby migrembe » Thu Aug 21, 2014 8:28 am

Try and keep a diary of your main symptoms and then add any extras. I tend to give Pain and Fatigue levels a number out of 5 every day, 1 being c**p and 5 = my normal. This way you will get to know yourself and know when a symptom changes or something new appears. Also if you are ill, i had a kidney infection in February, then you will know it - i couldn't explain how i was ill all i could say to the Dr was i felt terrible and ill and sick.

Beverley x
migrembe
UKFM Member
 
Posts: 429
Joined: Fri Feb 24, 2012 8:23 am

Re: This might be a silly question,but...

Postby crazycat36 » Thu Aug 21, 2014 9:36 am

I've found over the yrs the best thing to do is go to drs if u have a new problem which is there for more than a few days just incase its something serious. Its worked well for me over the yrs and I've had fibro for 8yrs now although drs think I've always had fibro as theres not been a time when I haven't been in pain even in my childhood but I just thought that was normal and everyone was in pain but just got on with it then 8yrs ago things got really bad from stress and an emergency operation resulting in me being diagnosed within 6 months with fibro.

It does get u down from time to time expecially if ur going through a bad flare and also the not being able to do things that u used to really gets u down from time to time but on the bright side coping with fibro proves that we are strong people as there are loads of people who simply couldn't cope with this horrible illness
crazycat36
UKFM Member
 
Posts: 192
Joined: Wed Apr 27, 2011 8:02 pm

Re: This might be a silly question,but...

Postby theduke58 » Thu Aug 21, 2014 3:52 pm

not just ladies on here,Crazycat. :roll: :-P
theduke58
UKFM Newbie
 
Posts: 3
Joined: Wed Aug 06, 2014 4:31 pm

Re: This might be a silly question,but...

Postby FluppyPuffy » Thu Aug 21, 2014 7:50 pm

When something new pops up, the usual advice is to get it checked out, just to be sure there isn't anything else adding it's effects to the mix. With the randomness and frequency that things can appear tho, going to see your GP every single time can be a mammoth task, so I tend to work on a similar basis to what crazycat has said and give things a few days to see how they go before making an appt. If it's something that becomes worse much more quickly, then I'll make an appt as needed.

Living with FM can pull you down, esp in the early days. As you find what your capabilities are and learn to work within them, things do tend to become a little lighter and brighter and more positive.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: This might be a silly question,but...

Postby denys » Thu Aug 21, 2014 8:22 pm

I agree with Fluppy and Crazycat and tend to do exactly the same, you would never be out of the doctors if you went with everything but something new, that lasts a few days generally needs to be checked. Its never safe to assume everything is fibro related :!: :!:

Hi Duke and :welcome: to the forum, you are very right there are a number of men on here and that number seems to be rising recently
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: This might be a silly question,but...

Postby denys » Thu Aug 21, 2014 8:36 pm

I have merged this topic together with your other one on the same subject otherwise it gets really confusing and as you had replies on both then it makes more sense to merge than delete so that you get to read all the replies
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 11 guests