Is seeing a Rhuemy recommended?

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Is seeing a Rhuemy recommended?

Postby TNK* » Wed Aug 27, 2014 5:01 pm

My GP diagnosed me earlier this year, she was the one who brought up the subject and put me on Ami, and ive been quite happy so far.

But I cannot help but feel i am missing out on some valuable advise and treatment as i have not been referred to a Rhuemy.

I did mention it on one of my follow up apps, and was told its a clinical diagnosis and she has diagnosed me...i sort of felt happy with that, but im wondering if i should push for a referral a little bit more?

TIA
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Re: Is seeing a Rhuemy recommended?

Postby sue66 » Wed Aug 27, 2014 5:11 pm

i feel exactly as you dox my gp as said just about the same to me she said theres no cure so no point in sending me to them also as i have seen the nurologist there was no point either. i too feel as though im missing out a bit as lots of others seem to get usful help and info from rhuemy x ive just been for another mri today and when i go back to the gp i will be asking if they will consider a referalx
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Re: Is seeing a Rhuemy recommended?

Postby Lindilou » Wed Aug 27, 2014 5:22 pm

Yes, I've just literaly come back from seeing mine. Have slight arthitis in my knees, maybe down to vit D deficiency which is being tested.
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Re: Is seeing a Rhuemy recommended?

Postby steve_728 » Wed Aug 27, 2014 5:44 pm

You can ask for a referral to see a specialist and you can also ask for choose and book so then you can pick the best hospital to go to. I see mine at a specialist hospital that just deals with all forms of arthritis. I have had my feet moulded to make insoles for my shoes, I see the hand unit for wrist splints and have access to the physiotherapy department. If I were you I would push for referral. Also if you end up needing to claim any benefits, such as PIP, you have a far better chance of succeeding in your application if a Consultant agrees with the diagnosis.
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Re: Is seeing a Rhuemy recommended?

Postby rich44 » Wed Aug 27, 2014 5:46 pm

Try seeing another Dr, I've not seen a rheumatologist but I have now finally been referred to one and a neurologist too.

I don't think it's necessary to see one but seeing one could rule out other illnesses and could also be a pathway to a pain clinic.
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Re: Is seeing a Rhuemy recommended?

Postby elainejennings » Wed Aug 27, 2014 6:27 pm

I asked my Gp to refer me back to the rhumy as im having a lot of problems in my hands, feet neck and shoulders. She said as id seen him over 2 years ago and he confirmed the fibro, that a re referral would not find anything else. I was less than pleased, but not a lot i can do about it.
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Re: Is seeing a Rhuemy recommended?

Postby TracyJ72 » Wed Aug 27, 2014 6:30 pm

I was diagnosed by my GP. I've had his support from day 1. He's referred me to everyone possible. Orthopaedics picked up a lumbar spine issue Rheumatology ruled out arthritis. I had to endure many tests along the way X-rays, MRIs etc. Then eventually the rheumatologist confirmed Fibromyalgia. I promptly got discharged from them as there was nothing more that could be done by them.

By going to a rheumatologist you're ruling everything else out which eases your mind BUT to confirm what has been said, if you're applying for ESA or PIP the diagnosis has more credibility if it comes from rheumatology. I was once told that my GP was telling me what I wanted to hear because he didn't want to upset me. He wasn't impartial enough. Believe me, he tested for everything before referring me for confirmation. If he was doing as I wanted he'd give me a cure!!

So go ahead and ask for a referral. Somebody within the practice will help you.

Good luck x
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Re: Is seeing a Rhuemy recommended?

Postby Hholding » Wed Aug 27, 2014 8:01 pm

I found it useful although they are very drugs focused which isn't necessarily the best for everyone xx
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Re: Is seeing a Rhuemy recommended?

Postby hazely » Wed Aug 27, 2014 8:28 pm

I didnt find it useful when i saw rheumy he was so rude. As soon as I sat down he told me he doesn't like labelling people. Then went on to say that i was not typical fibro suffers as i wasn't overweight or depressed and i exercised. did blood tests and vit d was at 44 which was not unusually for the time of year january. After that gp just went with orthpe diagnosis
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Re: Is seeing a Rhuemy recommended?

Postby TNK* » Wed Aug 27, 2014 8:36 pm

Mixed bag of replies, i think i will suck it and see and mention it at my next gp appt!
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Re: Is seeing a Rhuemy recommended?

Postby carolad » Wed Aug 27, 2014 8:53 pm

The Rheumatologist I saw diagnosed me and then discharged me back to my GP. So I would say if you already have a diagnosis, there's probably not much point being referred.
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Re: Is seeing a Rhuemy recommended?

Postby robbiecramp » Wed Aug 27, 2014 9:36 pm

I had a diagnosis of Fibromyalgia 14 days after having the most shocking pains I had the pains before but put that down to work but on new years day I actually thought I was having heart attack.

But anyway as I say I was diagnosed was referred to pain Clinic in April quite good and been referred now to a Neurologist and a sleep clinic without forcing the issue.

I had mentioned MS to my GP but he said probably not so I left it and his suggestion for these referrals.

If you are concerned you can ask for a second opinion or if you think possibly something else write a diary for a couple of weeks and then read through it before seeing the GP and take it with you
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