Twitches/Spasms! Worried that it's something serious

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Twitches/Spasms! Worried that it's something serious

Postby KP3282 » Thu Aug 28, 2014 9:16 pm

Hi all, new here, I've got Fibromyalgia, Chronic Fatigue, Asthma, IBS and COPD, I've only been diagnosed with Fibro this year and I take Nortriptyline .

I get pain in different areas, however, I've been having pain in my left leg for almost a year now, paticularly in the thigh, calf, ankle and foot.

I've been to physio and seen a Rheumatologist a few times, I'm having a lumbar spine MRI next month to see if anything else is causing the pain.

However, the last few months I've been having twitches in my left leg a lot and the last few days it's worse than ever.

Last night my foot was twitching all night and all day today plus my left calf and knee has been twitching, in the foot it makes my toes move sometimes too, is this Fibro related? Just wondered how common twitches are in Fibro?

Thanks all for reading.
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Re: Twitches/Spasms! Worried that it's something serious

Postby major64 » Thu Aug 28, 2014 9:34 pm

I get twitches often and have had 2 bad nights in a row with spasms and RLS. To the point of having friction burns in my inner knees with moving so much.Also get muscle palpatations at times to.Its going to be another bad night as RLS still on the go.
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Re: Twitches/Spasms! Worried that it's something serious

Postby padders » Thu Aug 28, 2014 9:48 pm

Hi
I get massive twitches and spasms in both arm and legs, really annoying but not dangerous unless u are holing something hot or dangerous.which I now don't do as I have had so many accidents.
Try not to worry and go see GP about them. I take 150 mg of amitripyline a night which help but still get them but not so hard.
Lisa x
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Re: Twitches/Spasms! Worried that it's something serious

Postby KP3282 » Thu Aug 28, 2014 9:59 pm

Thanks for your replies.

i know some people might think that i mean Jerking but i mean twitching like when it feels like something is moving under your skin all the time and you can see it on the skin.

It's
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Re: Twitches/Spasms! Worried that it's something serious

Postby pj1943 » Thu Aug 28, 2014 11:32 pm

Hi
Sorry to hear your suffering with these twitches they drive you crazy. Sometimes my twitches feel like there are thousands of wee insects crawling about under my skin and making my legs spasm. Horrible - however my doc gave me gabapentin and its something I don't suffer with very much now.

Could be worth mentioning this to your doc ?

Hope that helps you have my sympathy x
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Re: Twitches/Spasms! Worried that it's something serious

Postby mare2312 » Fri Aug 29, 2014 1:21 am

I first started getting 'fidget's' in my left leg years ago, I put up with them for a long time until they got so bad I eventually mentioned them to my GP whilst on a visit for something else which later turned out to be Fibro related but I didn't know this at the time.
After being referred to a rheumatologist who diagnosed me with Fibro all my symptoms seemed to fall into place including the Fidgets. I'll not go into them as you all know what they are.

The twitching and fidgets sorry to say, have got worse over time, they've also started in my right leg and when things get really bad they affect all four limbs. Husband doesn't stand a chance in bed now when they flare up. I've kicked him and hit him, ooops. Of course you will all know its down to Restless Leg Syndrome, RLS.

For me, which I know won't help all of you as we are all different, I get up, have a bit of a walk round, then sit down and keep my toes on the floor and raise my heels, resulting in stretching my calves. This takes me about half an hour and 90% of the time it works.
I also get cramp occasionally and have the feel of 'pulsing' in my calves.

Earlier this year I went to see another rheumatologist who diagnosed me with CFS/ME. My attitude is, take each day as it comes, live it the best you can, always look on the bright side (yes I know, easier to say than do).

I'd advise you to mention this to your GP on your next visit or make an appointment specifically for your worries. Hope all goes well for you.
Last edited by FluppyPuffy on Fri Aug 29, 2014 1:27 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
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Re: Twitches/Spasms! Worried that it's something serious

Postby Sari mitchell » Fri Aug 29, 2014 12:12 pm

This is the most fantastic site that I have ever found. I believe everyone that suffers from this debilitating illness, must join this site for KNOWLEDGE IS POWER. I wish I would have known half the information I have learned here in the past few months, before. I have had unnecessary surgery's, treatments, injections and more. NOW, I understand about the twitches I have been experiencing for years.

I was just at a back and neck specialist yesterday because the pain is unbearable. I showed him the disc for a past MRI I had taken 6 months ago and he said he see's a line in my MRI that may mean a severe problem with my spine however, he could be sure because I was twitching or jerking during the test. I cannot sit in the same position without moving or twitching for 40 minutes like they need. I was so shocked to see that it had something to do with my illness and that something worse was going on. Thank goodness for this site. It eases my mind a great deal and keeps me from going completely KOOKOO.

Thank for all your comments and Good luck. Please, do yourself a favor and get multiple opinions on problems you experience for in most cases they mimic other illnesses . Be aware and KNOWLEDGE IS POWER. Thanks for letting me share G-D Bless You All
Sari Mitchell
xo
Last edited by FluppyPuffy on Fri Aug 29, 2014 1:29 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
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Re: Twitches/Spasms! Worried that it's something serious

Postby LizzyMac » Fri Aug 29, 2014 12:29 pm

I've had twitches and spasms for a long time. It's nothing to worry about, I shouldn't think.

When it happens to me, I try taking a hot shower or bath, as that seems to relax the muscles and soothes things. I know not everyone can do the same things because some people find showers painful and have no good way to get in and out of a tub, but for me, it's been a help.
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Re: Twitches/Spasms! Worried that it's something serious

Postby alysonpeaches » Fri Aug 29, 2014 1:38 pm

I get lots of twitches and spasms and I know they are all related to my fibro. You are all lucky to have such good GPs. None of the GPs I have seen in the last 10 years were interested when I reported any of these symptoms. I did have a GP that diagnosed it 10 or 11 years ago, but when we moved house I had to switch GPs. The last 2 GPs I have had have acted as though fibro was either nothing or psychosomatic. I have had an MRI of the spine though, as I have several disc lesions, the worst of which preceded my diagnosis. In my case I suppose its hard to say which of the back, thigh, leg and foot symptoms are due to fibro and which are due to the impingement on nerves of my disc bulges. I did find amytriptyline was helpful taken at night for leg symptoms.

My most recent foot symptoms relate to a tingling and burning in my feet, which get very cold in colder weather. The GP did two fasting blood sugar tests which were borderline, as he thought it was peripheral neuropathy. The second time I visited him about the second blood test, he said there was no diagnosis of diabetes as the results were all borderline and dismissed my symptoms. I returned and asked the other partner in the practice, and he just increased my painkillers. I have come to the conclusion that I am on my own as regards the fibro as no doctors are interested in it. Whether this will change because of the so called breakthrough regarding blood vessels that recently featured in the Guardian, I dont know.
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Re: Twitches/Spasms! Worried that it's something serious

Postby dazzleship » Sat Aug 30, 2014 5:12 pm

I also get twitches and things that I guess are spasms. the twitches are quite often visible - I can see a sort of 'pulsing' going on in my muscle (usually upper arm or thigh does this).

I also get a twitchy thumb or little finger, where I can sit and watch it jerk away to itself for several seconds/half a minute or so :-|

sometimes mostly when lying in bed my shoulders will move quickly and briefly of their own accord - either forward slightly or the arm moving slightly 'out' in the shoulder socket :shock:

spasms are what I call the intense pain in my legs that I get usually in the evening, it is so painful it makes me cry and it makes my big toe stick straight up. I don't know where to 'put' my legs when it happens. I hate those.

oh and my left little finger has been numb/tingly at the very tip for several months. I keep waiting for it to go away but hey-ho.
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Re: Twitches/Spasms! Worried that it's something serious

Postby rich44 » Sat Aug 30, 2014 7:16 pm

Yeah I get them too nearly threw my mobile at the wife awhile back really Violent arm spasm luckily managed to keep hold of it lol
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