Lower back pain

All your fibromyalgia experiences, questions and answers.

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Lower back pain

Postby Lorirach » Mon Sep 08, 2014 1:27 pm

I have had Fm for nearly 2 years now and thought I was getting 'used' to the pain and exhaustion but I am now getting really bad lower back pain. It's getting to the point where I am having to use a stick to help me walk. Is this normal for FM or is this something I should be getting checked out? I hate going to my GP with every pain and ache but this is getting silly! I cannot sit, stand or lie without being in pain and it feels like my whole back is going to seize up if I move too quickly :( My Fm normally affects my legs and arms and hands and feet, shoulders etc but I have not had pain in my back before.......maybe I have just been lucky until now?! Am so tired, I hate this illness! (sorry pity party going on at the moment!!)
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Re: Lower back pain

Postby rich44 » Mon Sep 08, 2014 1:39 pm

Yes I get lower back pain, I wonder if it's because I have altered my gait to compensate painful everything else and it's put pressure there?

I often use a stick but that brings its own problems with my painful arms and hands.

Sorry to hear about your painful back too.

It is always worth discussing new symptoms with your gp, if nothing else they're on record then and sometimes it might be the final piece of the puzzle to identify something else going on.

All the best
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Re: Lower back pain

Postby Garyl » Mon Sep 08, 2014 1:53 pm

I have graduated to a rollator from sticks was a rapid change one week a single stick a week later 2 sticks 3 weeks later a rollator, this has made things slightly easier getting out and about. The lower back pain i still get but not as bad.

All i can say is take things as they come is all you can do.FM is a curse really life us difficult as it is without added problems, i ended up with a rollator as i suffered falls.

My pains lower back and arms and hands vary i hope yours improve and things get better for you
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Re: Lower back pain

Postby soretro » Mon Sep 08, 2014 1:56 pm

Sorry to hear you are suffering :-(
I have had FM for about 10 years now and also, like yourself, developed back pain late into my condition. Mine came on 2 years ago. It wasn't like the rest of my FM pain - I'd never had back pain as one of my trigger points before at all.
I went to my GP and because FM is on my file history they immediately wrote if off as part of my FM and said it must be the FM as well as part of being deconditioned through the illness.
I persisted with finding a proper explanation though as back pain has NEVER been part of my FM illness, and whilst I appreciate that FM can get worse...I also think a lot gets missed simply because new things just get bundled with FM as an easy answer!
I asked to see a specialist but made sure I didn't mention my FM at all to the new Dr - I wanted the focus to be on finding out what was wrong with my back! This specialist ordered an MRI scan which revealed arthritis of the lower spine. Couldn't believe how much time I'd wasted because of my GP's refusal to accept the back pain was something other than FM!
It is ALWAYS worthwhile to check out any new pain or symptom. Just because we have chronic illness, that does not mean new things can't happen. Should we blame our colds on FM too?
I completely understand your hesitation to go to your GP, but that is his job - and it sounds like your quality of life has deteriorated. Mine did too.
Please go get an MRI scan to double-check everything in your back!
Hope you feel better soon and get some answers!
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Re: Lower back pain

Postby Lorirach » Mon Sep 08, 2014 2:05 pm

Thank you for replying. I will get it checked out but I always feel my GP thinks I am just complaining and there is nothing to be done and I am a nuisance :( Probably me just being over-sensitive but I know so many people think I am making it up, especially at work :( Not having a good time of it lately - still hoping this is a flare up and will improve soon......hoping!
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Re: Lower back pain

Postby rich44 » Mon Sep 08, 2014 2:46 pm

Tell you what, I felt exactly like that asking for painkillers every time and being told no.

I wrote it all down explained how I felt, levels of pain and how intolerable it all is and I got a really nice call from my Dr (who appears to have taken over my case as if ask for an appt or call he's always the one I hear from out of the 8 at practice.

Anyway he's going to kick mental health and ask the pain clinic to get me in quicker (not in December)

So maybe worth sticking how you feel in to the practice manager, not as a complaint but just a note to go on file so they take notice of you.
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Re: Lower back pain

Postby Theresa34 » Mon Sep 08, 2014 2:52 pm

Lorirach wrote:I have had Fm for nearly 2 years now and thought I was getting 'used' to the pain and exhaustion but I am now getting really bad lower back pain. It's getting to the point where I am having to use a stick to help me walk. Is this normal for FM or is this something I should be getting checked out? I hate going to my GP with every pain and ache but this is getting silly! I cannot sit, stand or lie without being in pain and it feels like my whole back is going to seize up if I move too quickly :( My Fm normally affects my legs and arms and hands and feet, shoulders etc but I have not had pain in my back before.......maybe I have just been lucky until now?! Am so tired, I hate this illness! (sorry pity party going on at the moment!!)


This was happening to me too. It turns out that I had zero core strength. My rheumy nurse suggested Pilates. I've been doing them at home and there is a huge improvement with the back pain. My core strength has improved dramatically too x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Lower back pain

Postby Theresa34 » Mon Sep 08, 2014 2:55 pm

PS I've had back pain for years, before full FM kicked in in Jan this year. I had an mri on my whole spine in the same month, all clear. Diagnosed in Feb x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Lower back pain

Postby migrembe » Mon Sep 08, 2014 3:08 pm

yes pain there too - but its not where it started and i think its down to altered gait too more than anything else.
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Re: Lower back pain

Postby Sari mitchell » Mon Sep 08, 2014 9:36 pm

Well this is a topic that I am so good at and just got some real bad news about not even 5 minutes ago. I am in tears. I have been in pain with my back since I got Fibro 16 years ago. Recently it has gotten so bad I can't even get up and I have to bend all the way forward or all the way back just to relieve it. I was told to go for another MRI one of the many I have had through the years only to be told there is nothing there and it's the fibro. I went to get an MRI yet they don't understand that with the kind Of back pain I have it is almost impossible to sit in a machine for 45 min without moving. Please who with Fibro can do that.So now, I made it through 1 MRI of the neck the other day and just that 1 test, has caused me to not be able to get out of bed for days. Does this happen to others. If you go out for a day, are you down for days after. So now, I had a new doctor read an old Mri of my back, and he thinks I have spinal stenosis. Great. What else am I going to have to suffer from. THEN , the worst is, I just got a call from where I did the neck MRI and they say it's bad and that I have a buldging disc at c 4 and 5, Degenerative disc disease, and Bone spurs at C 5-6-7 WHAT ELSE.. HOW MUCH MORE AM I SUPPOSED TO BE ABLE TO TAKE. Nothing , even pain meds aren't working well anymore. Why me, what's next. The people that called about my neck stated they would be glad to fix me up and that I am a perfect candidate for their program and for only &13 thousand dollars they will help me. It's bad enough I have been hurting all over for 16 years with the fibro but now this. Please help me Lord. THIS IS ONE NIGHTMARE I WOULD LOVE TO WAKE UP FROM. Thanks for being here for me, it helps to write. . Sari Mitchell
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Re: Lower back pain

Postby rich44 » Mon Sep 08, 2014 9:46 pm

I'm so sorry to read about your experiences, mri's can be a fairly miserable experience.

Is there any scope for changing your pain medication?
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Re: Lower back pain

Postby Lorirach » Tue Sep 09, 2014 10:46 am

Oh my word, Sari, you appear to be going through hell and back :( There is no way I could sit still for 45 minutes, I would be in excruciating pain. If I go out then I am laid up for days which is why I am trying to explain to my doctor - that I cannot go back to work but she says that FM is a vicious circle and that if I stay in it will rule my life.....she doesn't seem to understand it already rules my life! I have to go out to do the school run but sometimes even that is too much and thankfully my Mam can come over and do it, but I don't like to ask her too many times as it is quite a distance she has to travel. How I am supposed to do a 12 1/2 hour shift is totally beyond me. Still looking into whether I can give up work altogether but I don't seem to be getting anywhere fast!

I am so sorry for your pain, for all the extra burdens you are going through right now. At least here, people believe you - I have found that to be a help, even though it doesn't take the pain away. Always happy to listen, wish I could do more x
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Re: Lower back pain

Postby Theresa34 » Tue Sep 09, 2014 11:02 am

Sari I'm so sorry for your pain and new issues. I feel like I'm gathering illnesses/conditions too! I had a full spine mri, neck and pelvis all in one back in Jan. I had to lie still for half an hr plus I'm claustrophobic so it was a blooming nightmare. There was a lot of buzzing and noise going on. When I got up to stand I nearly collapsed. My legs were like jelly and my back pain was excruciating. I ended up having back spasms and pain for days on end because of it. My mri came back clear but they were concerned I might have a spinal problem but turns out I dont.
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Lower back pain

Postby dazzleship » Tue Sep 09, 2014 12:35 pm

hi lorirach, I totally sympathise with you about your lower back pain. :hugs:

I too suffer from this but for me I've been suffering from it from long before I had fibro (I still blame 'Alice' the horse for throwing me off :shock: ) so in my case I don't think it's cos of the fibro

although saying that, it has got worse in the last few months or so. interestingly I had a lower back xray recently (cant remember exactly, early this year or end of last year). it came back 'clear' - nothing found.

nothing odd with that except - I had a lower back xray several years ago (roughly 2008 I would think) and I distinctly remember that it showed 'mild degenerative changes'.

yet the latest one showed nothing :?:
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Re: Lower back pain

Postby Monty99 » Tue Sep 09, 2014 1:38 pm

I also get lower back pain, especially if I sit down for a while. Its is excruciating and extremely difficult to get from sitting position to standing upright. I put it down to FM along with many other symptoms. My life has changed incredibly since being diagnosed and I always seem to feel ill one way or another. The only thing FM can't alter is my will to carry on and pretend its not there. Thats the only way I will win this battle…..
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