Alien planet

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Alien planet

Postby migrembe » Thu Sep 11, 2014 8:17 am

I think i am either been taken up by aliens and placed on an alien planet or i'm living in a parallel universe with people who don't speak the same language anyway????

Like so -

(normal)

Pain - a distressing sensation in a particular part of the body

(n) Tired - weary or bored

(n) sleep - 8 hours usually during night time hours

(n) memory lost - the inability to find your keys or something else

(planet fibro)

pain - a sensation so intense you would like to rip your arms and legs off or give birth instead

(fp) tired - absolute complete exhaustion not unlike the flu continuously

(fp) sleep - oh YES!!!! i slept a whole hour in one go or i really need a nap and i've been awake an hour

(fp) memory lost - date of birth? - erm no idea! name? erm can you ask me something easier!!!

And people think you are kidding, making it up, having them on.

Yesterday i was in the supermarket, not something i do very often and my body wasn't playing fair and i only needed 6 things so i went, and i got a little trolley, more basket on wheels. I went to the disabled check out and was asked 'do you need help packing?' Yes please i replied. There was a huff but they did it, but they do like to pile everything into one bag, but it was cat food and milk and they look at you stupid when you say i can't carry that can you put it in two bags. Then when i asked the taxi driver to put the bags by the door another huff but he did it. I got complained at because i was walking too slow, i was pushed out of the way as i was trying to manoeuvre the trolley past all the stupid displays in the foyer.

Sometimes i think i need a sign 'I'M FROM PLANET FIBROMYALGIA. I HAVE CHRONIC PAIN AND FATIGUE! MY NAME IS...MY DOB...PLEASE CONTACT...IF I APPEAR LOST OR CONFUSED - because i probably are!

:too-upset: :shooting: :banghead: :hit1: :bricks:

Beverley x
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Re: Alien planet

Postby Gromit » Thu Sep 11, 2014 9:14 am

I know exactly how you feel. And now quite fancy a "Planet Fibro" t-shirt :) :) :) xox
Love from Grom :) xxx
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Re: Alien planet

Postby Roger Rabbit » Thu Sep 11, 2014 9:35 am

The minute I was diagnosed with Fibro I was in a different world! People only understood what they wanted to understand and when they wanted to understand it. Perfect strangers would be so kind and family would so inconsiderate. With all our related illnesses and fibro fog I think I put myself in a protective bubble and I have been there ever since, It's mainly happy and easy going bubble and it doesn't matter how much I hurt I am still smiling but can't put one foot in front of the other! We are all here for each other. xxx
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Re: Alien planet

Postby Theresa34 » Thu Sep 11, 2014 9:43 am

Oh I've always had my own planet way before the fibro lol I always drift off into a world of my own. We now joke thats I'm visiting that planet when I drift off lol
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Alien planet

Postby FluppyPuffy » Thu Sep 11, 2014 10:24 am

Neither the Universal Translator or The Tardis are capable of fully translating FMish into any sort of language that can be understood by everyone unfortunately :( :( :( :( It can be most amusing tho when speaking to someone and one of our FMish words pops up in the middle of something. The current one for me is :elephant: I have a complete block with words like essential, elements at the moment, and the only word that will come to mind is :elephant: OH is used to this now, so is one of the few who understands/knows what I mean, and like me, he finds it :lol: :lol: :lol: :lol: when people look at us strangely where there is an :elephant: in the middle of things :crazy: :crazy: :crazy:
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Re: Alien planet

Postby Susan Stokes » Thu Sep 11, 2014 11:54 am

Fibrfomites R US. Get 2 or 3 of us having a conversation and watch "normal" people's faces - they can't follow the conversation. I enjoy having a game of Trivial Pursuit with my hubby. I know the answers but the words won't come so he lets me do a drawing or a description. Have to say though it's much funnier after a glass of wine (or 2).
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Re: Alien planet

Postby migrembe » Thu Sep 11, 2014 8:44 pm

I am always changing one word for another or i am suddenly baffled on how to spell even the simplest of words and am so grateful for spell check
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Re: Alien planet

Postby dotty lotty » Fri Sep 12, 2014 6:08 am

Oh yes I am on that planet too. The oddest words come out in the middle of a sentence, loose train of thought half way through (like now), things just flit in and out of head in seconds. Cant think too straight just now :yikes: :teddy-bear:
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Re: Alien planet

Postby dazzleship » Fri Sep 12, 2014 12:28 pm

ohh I love the idea of a 'planet fibro' t shirt :-) I'd have one of those.

I get so fed up when people don't understand that when I say I'm exhausted I don't just mean a bit tired like I've had a long day. I really mean, as you said, a complete and utter lack of battery power.

perhaps we need a Fibro-To-English dictionary :-D

and my 'word-forgetting' I swear is getting worse. I'll be in the middle of a sentence and suddenly just stop cos the next word just won't come. Then I'm sitting there with my face and head all contorted cos I'm trying to find some connection in my brain to what it is I want. :roll:

does anyone else lose track of television programmes? trying to watch a 'Lewis' the other day and I didn't have a clue who was who or who'd done what.
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Re: Alien planet

Postby denys » Fri Sep 12, 2014 3:29 pm

All the time, means watching repeats doenst bother me at all I never 'got' things the first time round and am unlikely to the second either :lol: :lol: :lol:
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Re: Alien planet

Postby Tel1 » Fri Sep 12, 2014 7:25 pm

Hi Bev

Oh GOD I have been that situation a fair few times... I sometimes use to think to myself, I need to be taken to a mental
ward for 6 weeks in hope that I come out if it all a better person....it is a dreadful terrible unexplainable condition that
we have and at times it can be very frightening as you think... Christ, I can't cope with all these new and never ending
feelings and sensations and not feeing yourself as you once was....I know... BELIEVE me I know what that is like:)
Suffice to say, my ex partner was hostage in Kuwait in the gulf war.....I use to get told, stop moaning about yourself and
imagine what they are going through with your graves being dug out every day in case they decided to kill you... and do
you know Bev,, it did actually pull me back to some sort of mental togetherness as the thought of being in that dreadful
situation made me think *S- - T * I shouldn't be moaning abut my health, but yet Fibro still made me feel dreadful, but
thinking about the hostage situation really did and still does keep me on the straight and narrow... if I had been in their
situation I would be died ( simple as that ) as the Fibro and the MEGA stress I would have just died or done myself in if I
was in the situation, it was bad enough knowing that someone you are close to is there, so I say thank GOD that I didn't
have to go through that....but they say Bev.... Fibro is caused by trauma, illness, stress and things like that... well if that
IS the case, then why did none of the hostages I knew get Fibro? Anyway.... keep going, chin up, and just keep in hope like
me that one day they will come up with a cure for all this... :-)
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Re: Alien planet

Postby migrembe » Sat Sep 13, 2014 7:20 pm

Thanks everyone it's nice to know i am not the only one going mad!! Mental institution would be a a nice respite from life.

Tel1 I am not sure it is moaning it is just that no one can see as so as far as they are concerned it doesn't exist. As for what cause it??? My specialist said the following and to me it made sense - my brain shut down because it had had enough and couldn't cope any more with everything that was going on and my fall down stairs was the last straw and when it came back on again it was broken, never to be fixed.

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