new

All your fibromyalgia experiences, questions and answers.

Moderators: perseus, *Lisa*, FluppyPuffy

new

Postby katyl0u » Wed Oct 22, 2014 9:24 pm

Hi my name is katy and im 28 i hope its ok to post on here as im still in the process of being diagnosed with fibromyalgia my gp has done loads of test and come back with nothing wrong was really starting to think i was goin mad then a few months ago i was told about fibromyalgia by my gp am just waiting to see a specialist as also have arthritis in my spine and 2 prolapsed disks the more i read about fibromyalgia i think i have had it for years im ferling really lonely at the moment as i dont really understand whats happening to my body and i dont no any one else that has it that i can turn to i had all my body hurts but my back,hands wrists and ankles seem to b the worse at the moment i struggle to walk most days yesterday was a really bad day i couldnt hardly walk i could not use my hands they r so weak and painfull i could not do any thing for myself im so scared im goin to end up needing a wheel chair coz of the pain i have 2 small children and i really feel like a crap mum as cant do much for them would just like some advice on any thing i can do to help myself and some one to tell im goin to b ok and explain what in happening to me thank u all for reading my post sorry if it sounds like im just moaning and feelin sorry for myself just dont no where else to turn please help me xxx
katyl0u
UKFM Newbie
 
Posts: 2
Joined: Wed Oct 22, 2014 1:59 am

Re: new

Postby juejue » Wed Oct 22, 2014 9:54 pm

Hi,

I'm not sure I can offer much help but you are not going mad or moaning too much, everyone is really supportive on here and you can moan as much as you like. Are you seeing a pain management consultant at the moment, there are quite a lot of medications which can help you , sometimes you need to try a few to see which work for you. In terms of things that might help now, hot baths, hot water bottles, heat pads can all offer some relief, as can relaxation (easier said than done I know)

I hope this helps a little
Take care
Julia
:grouphug:
juejue
UKFM Member
 
Posts: 73
Joined: Thu Feb 03, 2011 5:37 pm

Re: new

Postby Paula200 » Wed Oct 22, 2014 10:16 pm

It's ok to be sad but you are never alone fibro does that to you as well. Don't be ashamed read as much as you can, once your Dr sorts out the diagnosis he can then start to treat you and hopefully you will feel able to come to terms and start to feel better. This never goes away but you will gave good days bad days and awful days on the good days I take my daughter to the park he is 7 on bad days I let her pick a film or encourage her to play a game with dolls were she needs me near but not really to participate. You are a good mum don't ever think your not my sister told me I do more than most healthy mums she knows so I am guessing you do to, to try and compensate you are a good mum and a good person you are not well that's the problem. The Dr will help, you are stronger than you think take care xxxx
Paula200
UKFM Member
 
Posts: 16
Joined: Sun Feb 09, 2014 11:39 pm

Re: new

Postby katyl0u » Wed Oct 22, 2014 10:32 pm

Thank u so much for ur replys my dr has put me in pregabalin and just in the process off upping it to 100mg 3 times a day also take 8 tramadol a day and floxitine i have only seen my gp so far im seeing a consultant on tge 7th of november so am hoping he will explain it more does this illness just get worse over the years or wilk it just stay the same do many people end up in wheel chairssorry thatis just a big fear for me xxx
katyl0u
UKFM Newbie
 
Posts: 2
Joined: Wed Oct 22, 2014 1:59 am

Re: new

Postby Lorirach » Wed Oct 22, 2014 10:35 pm

Hi,

As others have said please do not feel you have to apologise here - we all need to have a moan, get upset, rant and rave at FM etc and this is the ideal place to do it, where people truly understand what you are going through. I was diagnosed about a year ago and have been off work for 4 months now. I don't know if anyone else has tried acupuncture but my GP referred me and the results have been amazing - worth looking into as long as you are not needle-phobic ;)

I am so sorry that you feel so lonely I hope talking on here helps - there is always someone to listen

xxx
Lorirach
UKFM Member
 
Posts: 34
Joined: Tue Apr 01, 2014 1:46 pm


Return to Living with Fibromyalgia

Who is online

Users browsing this forum: No registered users and 8 guests