Have hit a real low...

All your fibromyalgia experiences, questions and answers.

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Have hit a real low...

Postby Mrs Tweedy » Sun Dec 07, 2014 7:20 pm

I've had Fibro 7+ years now. This time of year is hard, so much to do, so little energy. One thing that really gets me down is hearing how family and friends are having a great time, parties, socialising, travelling, seasonal days out etc. I do as much as I can and work very hard at staying positive, but some days I want to be alone, switch off all contact with the outside world and just cope. Life is moving on for the family, mine is in freeze frame. Christmas is looming.....I'm not interested in that. I try to explain and I really thought they did understand but now I realise they absolutely don't. Starting to think I've battled long enough without antidepressants but it's time to see my GP (who is clueless about Fibro so I have no support).

Excuse the brain dump. I belong to some pages on Facebook but need something a little more private that the family aren't likely to read.

Wishing you all gentle days and hopefully some peaceful nights x
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Re: Have hit a real low...

Postby hazely » Sun Dec 07, 2014 7:45 pm

Yes go and see your GP, could you not see a different one if the one you see does not understand. Sending hugs
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Re: Have hit a real low...

Postby Pootle24 » Sun Dec 07, 2014 7:46 pm

Hi I am so sorry to hear your feeling this way, I understand and am feeling much the same at the moment, this time of year is so difficult but don't beat yourself up for feeling this way. Maybe antidepressants are the way to go, make an appointment and explain how you are feeling they may help, sending gentle hugs x
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Re: Have hit a real low...

Postby Mrs Tweedy » Sun Dec 07, 2014 8:01 pm

Thank you. I've watched my life be slowly eroded over the years, I've adapted and added in some new things to replace the things I've given up, but I just don't see any light at the end of the tunnel other than one attached to a train heading towards me!

Anyone else feel like they exist rather than live? It's so hard knowing how different life should be, how everything is such a challenge and feels overwhelming. So very isolating.
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Re: Have hit a real low...

Postby Theresa34 » Sun Dec 07, 2014 10:53 pm

Hi x I've only been diagnosed earlier this year. I've been flaring since last Monday so starting to chip away at my usual positivity :crazy: It would be great if family did understand but they cant truly know what you're going through unless they are with you 24/7 and even then its only what they can see and not experience physically & emotionally. All we can do is give them the info if they ask for it and leave them to it. This can be very isolating yes. I think also wanting to be alone isnt a bad thing. I try to get alone time but can only have that when the kids are at school and then there's housework etc. I week away somewhere tranquil is needed! Luckily I'm not a social butterfly anyway so dont feel I've lost out in any way. It will be harder for those who enjoy social occasions. I think its a great idea to try antidepressants. I'm on one for the fibro and pain at a low dose. I'm sure it helps me with mood too. Try and see a different gp if you're unhappy with the one you have x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Have hit a real low...

Postby morette5 » Mon Dec 08, 2014 1:35 am

I completely understand what you are going through.
You are entitled to feel as you do, you have been very strong for very long.
You do what you know you need to do in order to keep going.
Take an antidepressant break if you know you need it. You don't need anyones permission.
You don't have to justify yourself especially if you don't have the strength to.
You don't have to keep taking them once you feel strong enough to take fibro on again.
Do what you need to. You know you are a survivor.
There are no rules to coping with this, it is different for everyone.
No guilt, no shame.
You are not alone. x
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Re: Have hit a real low...

Postby redplanetgirl » Mon Dec 08, 2014 5:01 am

So sorry your in this state, do go to your doctor, there is nothing wrong with asking for help. Family can be the worst at Christmas time try and ingnore them, if you need to shut yourself off, do so, I'm thinking of you from Australia, take care
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Re: Have hit a real low...

Postby stephdawn » Mon Dec 08, 2014 8:00 am

Hi guys. I was diagnosed about 14yrs ago. It hit me hard at first, as at that time our condition wasn't really properly known, and it's still hard to get some gps to understand now! What I did was get a book from amazon about Fibro and gave it to my gp, he then started to listen . I was very depressed due to my condition and also with the car accident which caused my Fibro . My gp put me on antidepressants and I also asked for counciling. He agreed . That helped but then things went from bad to worse I lost my young sister just after my 40th b'day and she was only 34yrs. It was a sudden death and she had two little children. That's when I turned to the bottle. Of cause that didn't help with my meds. Yet again my gp changed my meds and I then started counciling again. That helped to a degree. Just as I was getting things back on track, we lost our house. So had to move to private accomidation. We had lived in that hose for nearly 20yrs and that's where my girls grew up I was gutted. I then had 3 mini strokes so my husband had to give up work and yet again we had to move to a little bungalow from the council. My health has got worse but I've now got a gp who is very understanding and helpfull. I've been to a pain clinic and also seeing a Fibro physio. My husband is now my full time carer. I've now also got a really good OT and she is sorting out my own social worker. Basically what I'm trying to say is that the time I've had this condition you have to think more about yourself and when people ask what is wrong then just tell them briefly and if they want to understand then let them ask questions and if you can't answer them then tell them to google our condition. That's what I have done and still doing. Well that's enough of my story I don't want to go on any further as I've prober lay gone one to much. I just want to let you know that you are not alone and hugs to you all. :)xxx
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Re: Have hit a real low...

Postby Susan Stokes » Mon Dec 08, 2014 10:36 am

When I was diagnosed 20 years ago I'd never heard of it. I asked the GP what do we do about it and he said the only help I can give is Prozac and co-codamol. I wouldn't have got through all this time without prozac. It's not the answer to everything but it certainly helps me cope with life in general. I also use a lighbox during the winter months - if it is prescribed by your GP you don't have to pay VAT.
Don't be afraid to try anything - if it doesn't suit you, you don't have to take it forever. Hope this helps.
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