Will this flare ever pass?

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Will this flare ever pass?

Postby tintagel » Mon Dec 15, 2014 11:23 am

HI, I have has fibro for some years, but it has always come and gone, so my life has been relatively normal, until mid July this year.
I had a real bad flare start and 5 months on, I have not had one single day without severe pain. At the end of my tether, life not worth living. I cant take pregabalin or gaberpentin due to extreme side effects. All I have is tramadol and paracetamol. MY GP wont let me try Mirapex or xyrem, thinking of buying them online to try, I'm desperate. Im under a rheumy, but just says pain relief is it!
I have always been active and still walk the dog and swim a lot, after copious amounts of tramadol of course. Tried every supplement and alpha stim, all to no avail.
I hear people talk of flares, why won't mine go away, like it always has? My sons talking of starting a family next year, all I can think of is not being able to look after my grandchild as my arms hurt too much to manage or I cant run around and play when it's a toddler. I still work, going job share in new year. I'm drowning in pain and despair. I am already on a high dose of antidepressant (imipramine).
I'm just not strong enough to carry on. I had ovarian cancer at 30, told I had lupus at 40, although I think it was start of fibro actually. enough is enough.
Thanks, Diane.
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Re: Will this flare ever pass?

Postby denys » Mon Dec 15, 2014 11:49 am

Diane fibro feeds off despair, I use distraction to help when things are really bad. Maybe going back to your docs and tell them how bad you are feeling maybe you need to change your antidepressants, or to try one of the talking therapies even for just a short period of time.

Pacing might help too, if you aren't already doing it, most importantly be kind to yourself stop worrying about things that haven't happened yet, you don't know how things are going to be once you become a grandparent.

It sounds as though everything has just become too much to deal with, so breaking stuff down into smaller chunks may help you to take back control sending you some gentle :hugs: :hugs: :hugs: :hugs:

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Re: Will this flare ever pass?

Postby LizzyMac » Mon Dec 15, 2014 12:57 pm

I've had flares last days, weeks, and sometimes many long months, and the anxiety and depression make them worse.

But, the good news is, they will pass.

I'm sorry you're going through this, but it WILL pass. Hang tight and just do what you can. Putting pressure on yourself doesn't help.

>>gentle hugs<<
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Re: Will this flare ever pass?

Postby *Lisa* » Mon Dec 15, 2014 1:00 pm

Have the doctors re done blood tests? to make sure nothing else is going on like inflammation etc ?

Have you tried any therapies like massage, accupunture, trigger point therapy, hydrotherapy etc? to go along with the pain killers.
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Re: Will this flare ever pass?

Postby tintagel » Mon Dec 15, 2014 3:57 pm

Thankyou all for the swift and thoughtful responses. I have had my bloods done and they were all normal. I have an MRI in Jan, just to check, but I know its a considerable worsening of my previously diagnosed fibro. My symptoms are classic, in every way.
Just been out with the dog, such an effort needed, all I want to do now is sit at home and yet I could never have bared being in all day, such an active person previously. I hope and pray this is a flare, which will pass at some point, but at 5 months I'm not hopeful. My fear is that this is it now forever. I'm just 50. twenty plus years of this is too much for me to take. I think all you fibro sufferers are so courageous, I wish I could be more like all of you.
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Re: Will this flare ever pass?

Postby whoami » Mon Dec 15, 2014 4:41 pm

Diane, I won't say I know how you feel because your pain is your own, we are all different. I can relate however. I have been fighting this for 25 years, with other issues also like you.

It is so hard, so tiring. Having to deal with this day after day. I have reached the bottom of the pit but with help have got out. I feel for you, as like you I am in pain daily. It is also the other symptoms that can get you down quickly.

Try to talk to your Dr Who can maybe offer other treatments. Trigger point injections, blocks, etc could possibly help. I must say I have tried them all and for me no good. My "new" Dr does not prescribe narcotics and I have been on a high dose of Fentanyl for over 8 years, with a lot of relief. No full but enough to be able to tolerate. She now wants me off it and there is nothing stronger. I am going back to the pain clinic.

For you, think of the possibility of grandchildren. I am 57 and have 5 under the age of 12. I have always explained from them being youngsters that Nana cannot do some of the things other Nanas do. We have found lots of things to do that we enjoy together. No,I can't pick them up and hold them for long when they reach over 15lbs but they now climb up beside me or I cuddles the babies in a chair.

Those grandchildren are what kept me going. I cherish every moment as I am sure you will.

Diane, try to concentrate on what you can do, even though it may be a small task compared to before your illness. You will find that these small feats will become the normal and you will be surprised the pleasure they bring. Focus on new ventures, new ways of participating.

Diane, when you feel low come here, there are many people who will hold your hand, listen to you and understand without judgement.

Expect the worst in life you won't be disapointed and you'll be prepared!
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Re: Will this flare ever pass?

Postby Gingermama » Mon Dec 15, 2014 5:25 pm

Hi Diane

If you are really desperate and at your lowest ebb please remember you can ring general phone lines such as the Samaritans to help talk you thru it.

Much like the others have said please do go back to the gp or specialist and tell them how desperate you feel. I know how hard it is to think of the good things in your life when you are in the grip of despair and depression, I was like that this time last year when I (in hind sight) was having a major flare.

I know the advice is to stay active etc but I would say listen to your body and your moods and if you need to go to bed and shut the world out for a bit then do it! But then get up, get to the Drs and fight for them to help you!

Please know you are not alone and there are plenty of us out there who can empathise xxx

Gentle hugs x
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Re: Will this flare ever pass?

Postby migrembe » Mon Dec 15, 2014 6:52 pm

Until my Gp started me on duloxetine about 8 weeks ago i didn't understand what people meant by flare as i was in continual pain hell and nothing really touched that fibro pain. I still have really bad days but my life is very stressful at the moment nothing i can do to change that but it is getting sorted, but i do get the odd better day, at least for me anyway.
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Re: Will this flare ever pass?

Postby Theresa34 » Mon Dec 15, 2014 6:58 pm

My flares usually last 3 days. This last one I've just come out of lasted 12 days :shock: Longest yet. Hopefully yours will end soon x
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Will this flare ever pass?

Postby Susan Stokes » Mon Dec 15, 2014 7:22 pm

The answer to your question is YES, it will pass. I think one thing many of us are not very good at is allowing ourselves to be ill. This is a terrible, life-changing illness yet we all try and carry on as normal, sometimes making it worse. Give yourself permission to be ill, ride the flare and stop worrying about things you cannot change, it will pass.
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Re: Will this flare ever pass?

Postby tintagel » Tue Dec 16, 2014 5:01 pm

Once again, thankyou all for your support. I just so hope this is a flare. I am so worried this is it for ever now, the duration it is lasting and the steady worsening of the symptoms. So scared.

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Re: Will this flare ever pass?

Postby Mini » Tue Dec 16, 2014 5:42 pm

I can sympathise with you, I've also had a flare since July and it's still going, mine is mostly fatigue. It does get you down and you do feel like it's never going to get better but im hopeful that it will, just might take a bit of time but I so know where you are coming from
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