Am I the only Fibro sufferer who sleeps well?

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Am I the only Fibro sufferer who sleeps well?

Postby Vixaria » Wed Jan 07, 2015 10:00 pm

I have not long been diagnosed with Fibromyalgia and I have all the symptoms... painful joints, fibro fog, headaches, fatigue, sensitivity to touch.
I do get tired a lot but when I go to bed I sleep well as far as I know... I don't awake unless I need the toilet.
I do, however, feel very stiff and groggy in the morning.
From what I have read about fibro sufferers, they all seem to have trouble staying asleep.
What are your experiences with sleeping?
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Re: Am I the only Fibro sufferer who sleeps well?

Postby SchroedingersCat » Wed Jan 07, 2015 10:19 pm

I sleep fine, just I need about 9 or 10 hours which I rarely get as I work full time. 11 hours last Saturday night :-) :-D
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Re: Am I the only Fibro sufferer who sleeps well?

Postby migrembe » Wed Jan 07, 2015 10:33 pm

Some nights i sleep better than others but it is at least 5 hours in one go.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby juliekp » Wed Jan 07, 2015 10:35 pm

Hi. My sleep varies. Mostly sleep well . Now and again I hardly sleep at all but I never feel rested no matter how much I get
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Re: Am I the only Fibro sufferer who sleeps well?

Postby hils1953 » Wed Jan 07, 2015 11:03 pm

I sleep for Britain... I get at least 8 every night then have to have another 3 or 4 during the day. Im not working at the moment and my family have grown up and gone, so I can listen to my body and get lots of rest. Im sure it helps.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby jaqui45 » Wed Jan 07, 2015 11:42 pm

I dont sleep my legs are always on fire and i got that jumpy leg thing going on so im awake most nights x
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Re: Am I the only Fibro sufferer who sleeps well?

Postby keaedmondson » Wed Jan 07, 2015 11:49 pm

I either sleep loads and loads and loads or I don't sleep at all. There is no happy medium!

I'm never without the tiredness. No matter how much I sleep I never feel any better for it!
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Re: Am I the only Fibro sufferer who sleeps well?

Postby Polaris » Thu Jan 08, 2015 6:01 am

Fibromyalgia can be simulated by 3 days of sleep deprivation in a normal subject. If you don't have sleep disturbances then you are either very lucky, don't have full blown Fibromyalgia or have a different condition.

Most people with Fibromyalgia don't get proper restorative sleep i.e. deep sleep and it's quality not quantity that counts. It certainly affects me considerably and I can wake numerous times during the night. This morning I woke 3 times and at 4 am my arms were completely numb and painful followed by extreme pins and needles and then throbbing as they slowly came back to life. This is a pattern that is repeated almost every night. I used to sleep on a Futon but now have the most comfortable bed I could find with memory foam over springs. The bed is fully adjustable and has built in massage that I keep on almost all the time when I'm awake and even my bed can be painful at times. My mouth can be so dry that I'm unable to speak and on one occasion my lip split in two (taking more than 6 months to heal)

"Disordered sleep is such a prominent symptom in fibromyalgia that the American College of Rheumatology included symptoms such as waking unrefreshed, fatigue, tiredness, and insomnia in the 2010 diagnostic criteria for fibromyalgia. Even though sleep recording is not part of the routine evaluation, polysomnography may disclose primary sleep disorders in patients with fibromyalgia, including obstructive sleep apnea and restless leg syndrome. In addition, genetic background and environmental susceptibility link fibromyalgia and further sleep disorders...." http://link.springer.com/article/10.100 ... 011-0213-3
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Re: Am I the only Fibro sufferer who sleeps well?

Postby coletalbot » Thu Jan 08, 2015 6:35 am

I sleep for England. At least 8 hours every night but also many bouts of sleep during the day.
I never feel refreshed but I'm glad the only thing that wakes me up is my bad back.
I have many of the symptoms but thankfully not the waking or the headaches. She says touching wood.
I think the fog is the worst for me. I can't remember a bloody thing. It's so hard to explain to people that you forgot to be where you said you would be. I write in my diary but then forget to look.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby dazzleship » Thu Jan 08, 2015 8:03 am

I struggle with getting to sleep in the first place (not helped by the window-rattler lying next to me :mrgreen: ) and once I do get to sleep I tend to wake up a few times.

a good night's sleep for me is falling asleep and not waking up until morning (or within say half an hour of when the alarm's gonna go off). but these nights aren't that common.

a bad night's sleep is when I wake up multiple times, sometimes 4 or 5 times, as if I wake up every hour. that's frustrating as heck. but again luckily these nights aren't the most common ones.

so the nights I have the most are ones where I wake up maybe once during the night (the last two nights have been like this and each time I have woken up just after midnight curiously). if I get a night like that I'm reasonably happy.

oh, and then there are nights lately where I wake up in excruciating pain in (a) my hip, (b) my knees or (c) my big toe.. I think these are hypermobility pains.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby Polly62 » Thu Jan 08, 2015 12:34 pm

I can sleep the clock round but always wake up tired. I am on Amytripline 5 a day. However I do have nights when my sleep is disturbed. I no longer work due to fibro, RA & Lichen Sclerosis.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby Queenie_70 » Thu Jan 08, 2015 1:31 pm

Can I ask...what is sleep??? I have heard the word, but not sure I understand what it means..lol

I have obstructive sleep apnea, restless legs, bursitis in the hips, and an incredibly small bladder (especially at night). Thirst will wake me up, or pain, and then the loo trip in the cold, the trying to settle without disturbing my partner, and having thoughts of God knows what swimming through my head, usually make for lots of laying in bed, not much of it unconscious.

My readings from a Cambridge Sleep Study showed my O2 saturation's went below 90 on several occasions, and I stop breathing approximately 8o times an hour in a four hour reading. C-Pap did not help, as I woke up gasping for air as the machine had overheated, melted my duvet and was no longer pushing air, so I was trying to breath through a mask without air flow!!!!! $500 duvet ruined, and no recompense... :shooting:
"Life is not measured by the breaths we take, but by the moments that take our breath away."
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Re: Am I the only Fibro sufferer who sleeps well?

Postby SchroedingersCat » Thu Jan 08, 2015 1:40 pm

Polaris wrote:Fibromyalgia can be simulated by 3 days of sleep deprivation in a normal subject. If you don't have sleep disturbances then you are either very lucky, don't have full blown Fibromyalgia or have a different condition.
I'm going with lucky as 3 different specialists confirmed my diagnosis. I didn't say I wasn't tired, but I do sleep long and well. And the more sleep I get, the less fatigue and pain I suffer.

Oh yeah, and I'm not on meds and I don't have any other health problems. So I fail on many counts at having 'proper' FM, apart from the opinions of several medical professionals. And the pain. And the fatigue. And the fog. And the balance problems. And the small motor issues.
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Re: Am I the only Fibro sufferer who sleeps well?

Postby dotty lotty » Thu Jan 08, 2015 4:26 pm

A good nights sleep is a mystery to me :dunno: :dunno:

I am either wakening with really bad dreams, needing the loo or restless legs going into overdrive then cant fall over again for my hubby :snore1: :snore1: :scream-1:

I can live in hope :teddy-bear:
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Re: Am I the only Fibro sufferer who sleeps well?

Postby Theresa34 » Thu Jan 08, 2015 6:15 pm

Before my sleep meds I had insomnia for around 2 yrs (pre diagnosis). Sometimes I would lie awake tossing and turning til the early hrs then drift off but no deep sleep. Other times I would make it to midnight then drop off but then when I wake up I would feel like I hadn't slept. Like I had just lay with my eyes shut.

Now on the Amitriptyline & gabapentin I sleep great. I forgot to take it on time two nights last week & although I took it much later than usual time, I just couldn't sleep. I rely heavily on my sleep meds!
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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