Diagnosis

All your fibromyalgia experiences, questions and answers.

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Diagnosis

Postby Sue12345 » Fri Jan 09, 2015 11:51 am

Finally I got to see a rheumatologist today after my appointment being cancelled three times.I was very apprehensive and worried that my problems would be dismissed as due to depression yet again as this is the way I have been treated by my GP for years.....I had no need to worry.The rheumatologist was great!She said it is definitely fibromyalgia with some osteoarthritis!She said that, even though some GPs do not believe fibromyalgia exists,it is very definitely real and not all in my head!She mentioned the possibility of vitamin D deficiency so my bloods have been checked ....again! I have been referred to a physio who specialises in treating fibro and who runs a local group.....I can not adequately explain how I feel.I am sure you will all understand.All these years of suffering,all these years of sometimes questioning myself,finally someone believes me!Finally I can say to my family,''It's official.This is what the problem is.It is real and I am not malingering or playing for sympathy.''
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Re: Diagnosis

Postby Jeany » Fri Jan 09, 2015 2:41 pm

Yes I can appreciate JUST how you felt. After years of being classed as an hypochondriac, because I was always back and forth to my doctors, and they found nothing to explain my symptoms I was diagnosed 2 and a half years ago with ME/CFS and fibro.

I found it a bitter sweet moment though, because it was great to know what I was battling with, but yet sad that at the age of 55 I was going to have illnesses that although not fatal were disabling, and no cure for.

I have gone from being a VERY energetic person to being only able to do short spells of any activities either physical or mental, and spend a lot of time alone. I do also have an anxiety disorder, which makes social activities very difficult. What can you do though you have to try and keep going and put a smile on your face.

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Re: Diagnosis

Postby Sue12345 » Fri Jan 09, 2015 4:33 pm

Hi Jeany! I can completely understand where you are coming from.I am aware that I am more fortunate than a lot of people,whilst I do have a lot of pain I am still fairly mobile and manage to at least walk my dog every day.I have had a couple of bad episodes last year when things were so bad that the pain took my breath away but thankfully they did not last long.I do suffer terribly with fibro fog which at one point last year was so bad I was unable to speak coherently and they thought I had suffered a stroke! I also am not the person I used to be,I had to retire from my nursing career at the age of fifty because of ill health.As you say though,you have to keep going.There is a saying that you never know quite how strong you can be until you find yourself with no other option.Take care.x
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Re: Diagnosis

Postby Jeany » Fri Jan 09, 2015 5:35 pm

Thanks Sue all the best.

Jeany x
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Re: Diagnosis

Postby dazzleship » Fri Jan 09, 2015 10:51 pm

hi jeany

im glad you had a good appointment it makes all the difference doesnt it.

good luck :-)
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