wiped out by a migraine

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wiped out by a migraine

Postby scottydog » Wed Jan 14, 2015 8:57 pm

Hi all

What a day I have had. I have been very stressed for various reasons. Then some good news re my Dad. I thought that I would get better now things were settled but over night I was wiped out by a migraine. I could not get my head off the pillow until 1pm. I presume the migraine was the culmination of everything and I will be on the up now. I am so so tired and will rest tonight then try and get out tomorrow.

I haven't had a migraine for a while. Does anybody else suffer from migraines when the stress eases?

Gentle hugs to you all

X
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Re: wiped out by a migraine

Postby robcathy » Wed Jan 14, 2015 9:30 pm

I have had fm for years. I have had scans endless blood tests & suffered migraines all through the years. I have now been diagnosed with arnolds chiari malformation! Perhaps there are others out there that were diagnosed with fm when in actual fact it could be something else. I have to go & see a neuro surgeon & maybe have surgery. Its a thought!
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Re: wiped out by a migraine

Postby scottydog » Wed Jan 14, 2015 9:36 pm

Hi robcathy

I haven't heard ofarnolds chiari malformation. Could you tell me a little about it as it may be worth me mentioning it to my GP. My migraines started at 13 when my parents divorced.

Thanks x
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Re: wiped out by a migraine

Postby MissGems73 » Wed Jan 14, 2015 9:36 pm

I get them too when ive been stressed a while altho thankfully they dont wipe me out to badly the worst thing for me with is the going blind in one eye.

Hope tomorrow is a better day for you :)
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Re: wiped out by a migraine

Postby AllyB » Wed Jan 14, 2015 10:42 pm

I find that my migraines (those that are stress-related) will typically be triggered when I relax - I will get through the stressful event but the moment I relax I can predict a migraine will happen - and often when the migraine has finally gone I am left feeling absolutely wiped out. I have suffered with them for years. Often the beginning of my holidays are ruined by a migraine. So what you describe seems to me to be a typical migraine.

new here - often see the posts but felt I should join to reply!
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Re: wiped out by a migraine

Postby Brian » Thu Jan 15, 2015 12:55 am

I've suffered migraines for over 20 years and I take Pizotifen 1.5mg to prevent them and it definitely helps
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Re: wiped out by a migraine

Postby scottydog » Tue Jan 20, 2015 1:46 am

I had another migraine Saturday and completely worn out again today. I think that I must be in a flare up. Would hope that yesterday will be my worst day then I should start to improve a bit. I need to be able to get to the pain clinic appt!

Gentle hugs to you all
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Re: wiped out by a migraine

Postby Gracious » Tue Jan 20, 2015 9:41 am

Scottydog, if you are getting warning signs of these migraines it may be a good idea to discuss this with your GP and consider the option of Rizatriptan, also known as Maxalt. I have this medication 10mg Maxalt Melt which is desgined to stop the migraine in its tracks if you catch it early enough. Its not a medication they want you to be taking lots of, there not designed for that. There designed to stop the migraine before it takes hold.

There are lots of medications that can prevent you from getting rizatriptan, so thats why I would recommend discussing it with the GP.

If you dont get warning signs then there are other options, amitriptyline (most of us fibros are on, or have been on), alternatively a beta blocker like propranolol, plus many many more. You'll have to exhaust a few medicational options before you get to the point of asking for a referral to a specialist. If the migraines keep recurring, its not the pain clinic you want to be asking to be referred to, it would be a neurologist that specialises in migraines. The nerologist will be looking to see what you've tried and what impact if any it had, plus a history of the migraines, possible triggers/patterns you may have identified, like weather, certain activites, your monthly cycle. So its worth keeping a diary of the migraine episodes.

There's lots of options even beyond this, but this would be the starting point.

Since you have had a few very recent attacks in quick succession, please bare in mind migraines come with a post migraine fatigue and if you try to jump back to normal daily routines too soon, you can trigger another attack. So make allowances with your pacing after the migraine has lifted. For example my last migraine attack, I was unable to stop, it lasted 8 days and I know it will take 2-3 weeks to get back to my normal pacing regime of 2-3 hrs a day, after an attack like that, whereas a 4 day migraine takes 1-2 weeks (25 years at this migraine game). If I tried to return to 2-3hrs a day immediately, I'd not only trigger another attack but also a nice fibro flare for good measure too. Post Migraine fatigue is very normal, but for fibro people, it takes a wee bit of time to recover from.

Hope this is of some help to you, let us know how you get on.

With loving kindness
Gracious
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Re: wiped out by a migraine

Postby scottydog » Tue Jan 20, 2015 12:11 pm

Hi Gracious

Thank you for your reply. I have booked an appt with my Dr shortly to discuss my migraines, depression and Lyrica. I was given Maxalt when I started with shoulder pain in 2007 because I was getting 2 to 3 migraines a week but I didn't benefit from it because it made me really sick. I was put on Pizotifan for a while which helped but stopped taking it after surgery on the shoulder as I no longer needed it.

The last time I asked my Dr to prescribe it he was reluctant to let me have it because I am taking so much medication. I am new to being diagnosed with FMS/CFS and I am in a flare at the moment due to a release of tension. I am still trying to control these conditions and am no where near applying pacing successfully. I am hoping the pain clinic tomorrow will help me. I will see what the clinic say then discuss with the Dr. I am not sure if the pain clinic will 'take charge' of my meds or not. Still I will know more tomorrow.

Thanks x
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Re: wiped out by a migraine

Postby scottydog » Tue Jan 20, 2015 12:26 pm

Hi again

Meant to say the last two migraines I did not get my usual trigger of a wiggly worm across my eyeline. So not my usual sort of migraine trigger wise. To cheer me up my husband found a gluten free chocolate mousse and I had eaten one the day before my migrains. So it is possible the mousse triggered it or the migraines are part of my flare. I suppose only time will tell ie the more flares I have the more migraines I may or may not have.

I have suffered from migraines for 35 years and Pre diagnosis they were usually triggered by stress, monthly cycle (rarer these days) and mainly pain in other areas of the body.

As I have said before I am pinning my hopes on the pain clinic. I keep an eye on my pain by using an App which will help me identify any triggers re the migraines. The App is really brilliant it gives me an average score for my pain so I can see if my new meds are working. Since building up the Lyrica my pain scores have gone as low as a 6, from 9, but usually settle around 7 if I am not too anxious that is.

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Re: wiped out by a migraine

Postby Gracious » Tue Jan 20, 2015 8:39 pm

Scottydog I hope it all goes well for you tomorrow and hopefully they are able to provide some way of either reducing the attacks or helping with pain relief during them.

With regards my own migraine issues, I now need too many Rizatriptan a month so they have gone down the root of occipital nerve block injections (ONB) in the hope it will reduce the number of my attacks and therefore I can reduce the Rizatriptan per month. They chose this root because most medications they've tried caused me really severe side effects.

Topiramate was one they gave me but I had horrendous effects on that drug, long term too, but others have found it an absolute goodsend. What works for one, doesnt always work for others. There are plenty of options out there so dont give up, keep pushing for help.

Will say one thing, establishing your pacing level and sticking to it as best you can, really does make a massive difference. I have headache pain all the time, but now the intensity is more managable and the migraine attacks are less too, though still brutal to deal with, especially as the neuroligist banned all opiods (as they assume they contribute), which is tricky when you also have fibro pain, so I have to be strick and stick to pacing, as there's no real pain relief available now, except for votarol gel, paracetamol and diazepam.

Good luck tomorrow and here's hoping your able to achieve some improvement, not matter how small.

With loving kindness
Gracious
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