by scottydog » Fri Jan 16, 2015 12:50 am
Hi all thanks for your replies.
I am on Co codamol, Naproxen, Pregabalin, Amitriptyline, highest dose of Butrans patches and various others to combat side effects.
I also have a worn out shoulder which the NHS will not replace as I am too young!! The morphine patches are for that pain. I had a nerve block at a different sort of pain clinic. But it didn't work well and they said my GP should refer me to the persistent pain team. I had just been diagnosed with Chronic Fatigue syndrome as well as Fibromyalgia so I think that was a factor in my referral.
I was referred 10 November and received my appointment today. I asked for hydrotherapy but was advised against it, by the physiotherapist, because it could stop my referral to the pain clinic. Mainly because as a patient you need to have exhausted all other help before being accepted by them. They treat you as a whole person and address any depression and anxiety as well as treatment options.
I am hoping to still have hydrotherapy as I can't see me doing graded aerobics, as recommended by the Rheumatologist, as I can hardly move now let alone get my heart racing!!!
I am not looking forward to the psychology side of the course but I have heard of other people finding it very helpful in living with Fibromyalgia.
It is very much the last option for me and I am clinging onto the hope that they will help me manage my pain and, hopefully, reduce the amount of medications I am currently taking.
Gentle hugs to you all.
X