pain clinic

All your fibromyalgia experiences, questions and answers.

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Re: pain clinic

Postby MPSGuy » Thu Feb 26, 2015 10:39 pm

Oh and as for the pain clinic....

I went in with low back pain and some other pains and the consultant examined me, he diagnosed the problem and then said pretty much "you have to learn to live with it, you will always have some level of pain", try X or Y medication (both of which I had tried already), try exercises like stretching, tai ch, swimming or walking (I already do 2 of those).

So yes, my experience was a bit disappointing and I left quite fed up because no cure or even any treatment was on offer. However with the benefit of hindsight I can see it was useful because it at least gave me a diagnosis and explanation for my pain. That was a few years back now and my pain is no better or worse really. I manage it with the same medications as I did back then.... co-codamol basically.
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Re: pain clinic

Postby denys » Fri Feb 27, 2015 8:58 pm

It can't be applied across the board though as it involves human beings. Some people can manage their pain better than others, at the end of the day this site is to be supportive not competitive.

We all suffer in our own way and deal with things in a way that best suits us, I for one would never say my suffering is worse than the next persons and if I had one wish it would be that this condition was banished for ever and no-one ever had to put up with it and its associated conditions
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Re: pain clinic

Postby SchroedingersCat » Sat Feb 28, 2015 10:58 am

Pain scales are useful to some extent, but not perfect, it's still going to be somewhat subjective. As to reaching for the painkillers, some of us have very little option in that area. Even if I wanted to take strong pain relief, which I don't, I can't really go much above paracetamol and ibuprofen as I'm allergic to opiates, which means codeine and anything stronger are off the menu. So I either learn to cope with my pain, whatever the level, or kill myself. No brainer, really.
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Re: pain clinic

Postby Zia2014 » Sun Mar 01, 2015 6:01 pm

denys wrote: if I had one wish it would be that this condition was banished for ever and no-one ever had to put up with it and its associated conditions


Amen to that. Surely that's one thing we can all agree on.
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Re: pain clinic

Postby Charmed » Sun Mar 01, 2015 8:40 pm

Well said Zia, amen to it indeed. Lets hope that's an end to it! :nono:
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Re: pain clinic

Postby funnylady » Sun Mar 01, 2015 9:06 pm

I have got appointment at the pan clinic its starts next mouth April .
Hope they can help with easing the pain.
The clinic appointment is 2 hours at a time.
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Re: pain clinic

Postby dazzleship » Mon Mar 02, 2015 8:45 pm

Some great responses there, and I agree Denys, getting rid of this illness once and for all would be great!

I don't know about the pain scales really, I would imagine that they are subjective in a way, but really on here we should be supporting each other rather than being competitive about it.

:hugs: To all.
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Re: pain clinic

Postby Zia2014 » Tue Mar 03, 2015 5:20 pm

Well yesterday we talked about sexual intimacy. Which wasn't awkward AT ALL... :yikes: :oops: :mrgreen:

funnylady wrote:I have got appointment at the pan clinic its starts next mouth April .
Hope they can help with easing the pain.
The clinic appointment is 2 hours at a time.


Is it a group course or a one off appointment you have? Good luck!
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Re: pain clinic

Postby funnylady » Fri May 01, 2015 7:25 pm

The Couse last 8 weeks and you learn a lot about fibromyalgia.
How to coup and how you spread the things you do in the day.
It helps a lot gives you good advise.
You can explain it to other people who don.t understand.
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Re: pain clinic

Postby funnylady » Sat Jun 13, 2015 10:31 pm

How did you find the pain clinic did it help you or don.t.
It help me a lot they told me all different things.
One thing they did is how to be positive and how to explain in a positive way to family and friends about fibromyalgia.
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Re: pain clinic

Postby Zia2014 » Mon Jun 15, 2015 1:48 pm

I really liked the pain clinic programme I went on. They covered a lot of stuff, some useful some not as it was aimed for chronic pain, but I did notice that those who were quite defensive didn't get as much out of it. Something I've also noticed on the fb pages I belong to. So I think as long as you go along with an open mind you can take a lot away from it :)
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Re: pain clinic

Postby clairbear » Thu Jun 18, 2015 4:06 am

Zia2014 wrote:I really liked the pain clinic programme I went on. They covered a lot of stuff, some useful some not as it was aimed for chronic pain, but I did notice that those who were quite defensive didn't get as much out of it. Something I've also noticed on the fb pages I belong to. So I think as long as you go along with an open mind you can take a lot away from it :)


I noticed this too Zia - in fact from a group of 15, there were 4 left at the end as they didn't like being told the cold hard facts / were disappointed a magic pill wasn't handed out.
My feedback to the team was not to hold the psychological sessions at the beginning because an "Its all in your head" day as the 2nd session seems to put people off! The session was quite good and actually about the effect on you and surrounding others and coping mechanisms - I prompted them to choose their phrasing carefully as others were quite vocal on their non attendance to be told off by a shrink!

I went for the full course as I felt I owed it to myself to see it through. For a start it meant every Tuesday for 12 weeks I had to get out of bed and plan a day ahead properly in order to get there on time! Being out of work for over 12 months now I'm able to manage life at home with fibro much easier than in work (the financial repercussions of this are their own mental battle) but I still suck at planning as I'm such an impulsive person so this task in itself made me have to create a day.

I felt less isolated (although at times it did feel like a competition to see who had the worst symptoms) and more positive about going forward with fibro as another condition. My partner came along to the family day and met other partners and was able to talk openly about the elephant in the room (I blame the back pain for my elephant size! :-D )

Having an open mind and willingness to explore options is something that can't be stressed enough, the NHS just don't hand out things like they used too and if its offered just take it and try it - even if its a tick box exercise, what's the worst that can happen?
Just so you guys know I asked about session timings etc.. The hospital I was at tried to do it after morning clinic but before afternoon visiting time to give you chance to park - so the logic is there just not ideal if you work and end up losing a whole day for 3hrs!

P.S For the guys that work - I refused Hydro and Support groups whilst I still worked as they were always mid day - full day off work kinda things, however in hindsight I wish I'd been a little harder on my employer in respect of treating/managing my condition - These kind of treatments are still that...treatments if you can get your employer to allow you paid "medical" appointments even better.
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Re: pain clinic

Postby Zia2014 » Thu Jun 18, 2015 12:04 pm

Totally agree with your whole post clair - going out in a tick so don't have time to respond properly but yep, 100% agree :)
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