Life with this illness

All your fibromyalgia experiences, questions and answers.

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Life with this illness

Postby BlueBerry » Sat Feb 21, 2015 12:51 pm

Not sure if this written on right page but here goes anyway....

Been a while since I posted on here but I've been thinking I now had this Fibromyalgia going on for over wow 13 years wooo didn't relise it been that long and was wondering that I been not working who know me on here for now this be my 6 years time pass by so fast heh :-)

and i've still find the illness a pain in the neck but still can't get use to it seem changes year on year, I think I am try ask is it ok not to work and aka be on sick for this long with this illness and not feel what the word guilty weird isn't it.

But I am glad at min well since I had this i had Anime and manga lol it like an escape from reality I think we need something like that in ower lives cause this illness is a hard one to have :-| :cry:
Image Pingo is my middle name :lol:
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Re: Life with this illness

Postby denys » Sat Feb 21, 2015 1:12 pm

Blueberry this condition makes things hard and some people manage to push through and carry on working and some dont, there is no right or wrong it just is what it is :!: :!: :!:

Guilt will only make things worse, so there's no point. You just need to carry on trying to do the best you can every day like the rest of us :-D :-D :-D :-D
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Re: Life with this illness

Postby dawnydoo » Sat Feb 21, 2015 2:53 pm

Its hard enoughtrying to manage this illness on a day to day basis, never mind the pressure of work on top. You have to put gourself and your needs first and dont feel any guilt. You do not deserve this illness, none of us do but we dont get the choice. I honestly dont feel I will ever work again so ive got to adjust my lifestyle to fit that concept. Dont punish yourself by thinking you should be at work. Everyday is different with this illness, and we cant predict how we are going to feel each day until we have got out of bed. Or in some cases, woken up, as we areunable to get out of bed. The pain is evil and my "job" each day is trying to manage that. I think thats about all I can cope with at the moment. Take care of yourself. ☺☺☺
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Re: Life with this illness

Postby Charmed » Sat Feb 21, 2015 3:14 pm

Worked all my life, but know I won't work again either. I couldn't expect an employer to rely on me. I agree with dawnydoo, it is a job enough just to get through each day. Although on a positive side, I do employ my Personal Assistant who enables me to live as independent life as possible. :-D :-D :-D

An 'escape from reality' Blueberry, oh yes that would be lovely :wine: :lol:
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Re: Life with this illness

Postby BlueBerry » Sun Feb 22, 2015 12:31 am

thank you guys for make me see the light heh lol

dawnydoo I took what you said and put it in my diary never had one before but it helps put my thoughts down and put my worrys in and I can lock it way helps me in my depression heh cbt xD

"Take a day at a time, is to manage this illness it self is a job" maybe I got it little bit mix up but this illness is a job to keep it in check and work on top would be to much , heh must rember that it in my diary :-D :-D :-D

Thank you guys " blows a kiss and hugs heh "
Image Pingo is my middle name :lol:
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