worst night sleep since diagnosis

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worst night sleep since diagnosis

Postby Trish140363 » Sat Feb 28, 2015 11:23 am

I worked until 3 am this morning and just couldn't sleep for love nor money...

My legs just would not stop twitching... my rib pain was killing and I just could not get comfy. When I last looked at the clock it was 04.45 and then I was woken by hubby snoring and looked at the clock again it was 05.10 so I got up as i got 20 mins sleep all night.

I really need to try and get some sleep later today... or I'm gonna be in a bit of a pickle as I'm working again tonight... xx
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Re: worst night sleep since diagnosis

Postby ixel-chick » Sat Feb 28, 2015 6:34 pm

I get the restless legs too (and the tabs that took care of the pain, fatigue and fog, did nothing for the restless legs).

I generally get up, as I find they don't calm down by themselves. Legs wanna go dancing - I want to sleep. :lol:

I then take one paracetamol and one iboprufen, watch a film or some telly for an hour or so, and legs have calmed down. I got no idea if it's the painkillers, or just the fact that I get up and move around a little bit (sitting on the sofa watching telly is never actually sitting still and watching telly... there's always cats to feed, and dogs to cuddle)... but the feet always settle, and I am able to go to sleep (unless I've passed the "sleep-window"... then the feet are ready for bed, but the mind is fully awake).


Hope you got some sleep today, and that your ribs are feeling better.


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Edit:

There is apperantly a drug that helps some (as with everything, nothing works for everyone) fibro sufferers with sleep! If you do a search here on the forum, there's a few things coming up, either search for xyrem or sodium oxybate . One of the links is for a trial a few years back. Currently the NHS only has it listed for narcolepsy, so assuming nothing came of the trial for fibro here.

Quite a lot of info about it online, might be worth looking into for those that are desperate for a good nights rest:
http://wholehealthchicago.com/2014/two- ... ally-work/
http://www.medscape.com/viewarticle/747038
http://phoenixrising.me/treating-cfs-ch ... lgia-xyrem
As an example of a few of the links found.
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