Histamine and fibro

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Histamine and fibro

Postby iblinkin » Wed Mar 18, 2015 9:31 pm

I have subscription to Health rising and an article about histamine and fibro was in it and i thought it was important to share here and it touches on amitriptaline (i think i spelled that wrong) and they may be on to something here!

Here's the linky: https://go.madmimi.com/redirects/142662 ... 9003692021

Cheers and i hope everyone is doing the best they can! :-)
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Re: Histamine and fibro

Postby Azteka » Wed Mar 18, 2015 9:56 pm

Think thats all WAY over my head i bearly understood one in three words lol
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Re: Histamine and fibro

Postby *Lisa* » Wed Mar 18, 2015 9:57 pm

Trying to digest the artical :crazy: a topic i feel i can relate to as i have been "suffering" with chronic hives and Angeodemia for many years now.

I react to pressure / stress & change in tempreture.

Mornings seem the worst as lips swollen and eyes added to that the pressure hives from sleeping.

The trigger point therapy i have makes me extremely ill with hives but im dammed if i do and dammed if i dont!

I also have hayfever and rhinitas :crazy: :crazy: :crazy:

So you can say i suffer with lots of histamine :lol: :lol: :lol:

Doctors ran loads a tests, came back idopathic :-| although when seeing the consultant specialist he did mention a possible connection with the CFS saying my body was "run down"

Iv not had a remission period yet like some do and apparently it burns itself out in time but im still waiting :lol:

When the hives are up im so ill and it also causes muscle pain.

Just been given all different types of anti-histamines that dont work! next step would be something like steroids :shock: so i try to avoid triggers but thats a daily struggle with the pressure hives as things like wearing belts, sitting on hard suffices, grasping items, leaning on anything etc etc

I find hormone changes a trigger also.

Alot of chronic hives is related to auto-immune diseases
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Histamine and fibro

Postby carolad » Thu Mar 19, 2015 1:10 am

Interesting - thanks for posting :-)
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Re: Histamine and fibro

Postby Zia2014 » Thu Mar 19, 2015 2:15 pm

Azteka wrote:Think thats all WAY over my head i bearly understood one in three words lol


Err yeah this lol :crazy: Not in the right frame of mind to take it all in, but I just wanted to say that last summer (my first with fibro), I didn't get ANY symptoms of hayfever - something I've had badly every year for 13 years! Not sure if it's related or not, but it was very strange...
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Re: Histamine and fibro

Postby Maryanne » Thu Mar 19, 2015 5:15 pm

Zia2014 I have found it quite strange that I suffered with hayfever from the age of 26. Fast forward to March 2013 diagnosed with fibro, started amitriptyline at low dose and increased over time to 50mg and no hayfever. :-D
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Re: Histamine and fibro

Postby Zia2014 » Thu Mar 19, 2015 6:56 pm

Maryanne wrote:Zia2014 I have found it quite strange that I suffered with hayfever from the age of 26. Fast forward to March 2013 diagnosed with fibro, started amitriptyline at low dose and increased over time to 50mg and no hayfever. :-D


Ah that's interesting - I had to think about the dates last year! My hayfever usually starts in mid May but didn't last year. I wasn't on any meds then as I started Amit in mid June, so the only difference in my health was having undiagnosed fibro!
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Re: Histamine and fibro

Postby Susan Stokes » Fri Mar 20, 2015 11:47 am

That sounds very interesting, having had allergies and intollerances for years this makes me feel optimistic.
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Re: Histamine and fibro

Postby divingforPearls » Fri Mar 20, 2015 11:30 pm

Thanks for this post; very interesting, it seems that maybe, maybe! we're finally getting somewhere, possible answers are slowly emerging?; a long way from 20 years ago when it was almost never diagnosed, and even if it was they thought we were making it up (as if)...I'd keep my fingers crossed if it didn't hurt so much. lol.

I too have a history of allergies. I had to stop taking over the counter anti-histamines - hmm just before the fibro set in - when my hair started falling out.(It stopped falling out when I stopped taking the anti-histamines). I think there could well be a link somewhere with histamine. And noradrenalin. And seratonin. And dopamine. And endorphins. And diet / gut flora. And stress and trauma. And over-doing it. And side-effects from medications that changed my hormone balance (the pill, steroids,SSRI's). Life is definately too complicated!
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Re: Histamine and fibro

Postby Gilly52 » Sat Mar 21, 2015 12:58 am

I suffered badly with hay fever from the age of 11 until 49 when fibro set in. Over the years I was prescribed many anti histamine a nd also preventative injection through the winter months. In the 60's the tablets were very sedating, very often in school I struggled to stay awake !

Fast forward to 14 years ago, menopause, then fibro set in quickly, ....but no hay fever at all, so after 38years on anti histamine I could finally stop this medication.

Fast forward again to 3years ago.... Aged 60 eczema rears it's ugly head on my legs only, but this last year has spread to my arms as well, back on anti histamine, together with lots of moisturing cream, and steroid cream if it gets beyond itchy. My brother suffered eczema as a child but quickly grew out of it (I think fellas get all the luck lol)

So my life has been on and off antihistamines for a good many years...I do believe that histamine can cause big problems within the body, also our emotions play a part too.....stress being a huge factor.

Fibro is complicated enough by itself, but then we get a host of other problems to throw in the mix for good measure ;-)

Take care Gilly x
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Re: Histamine and fibro

Postby iblinkin » Sat Mar 21, 2015 4:31 pm

Thank you all for your positive responses to this article :-D :-D hopefully someday soon we will have an answer to this terrible illness.
Have a great and painless as possible weekend everyone! Gentle hugs to all! :-)
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Re: Histamine and fibro

Postby Maryanne » Tue May 26, 2015 9:17 pm

A month ago I had a second episode of anaphylaxis (first was in 2007) as I finished work, I drove home, knowing what was happening to me with my throat closing up and swelling of my uvula. I got hubby to phone 999 and was rushed off to hospital yet again :yikes: I was discharged later the same day after observation, with prednisilone and chlorphenarmine (piriton), a letter for the gp to refer me to dermatology / allergy clinic. I was advised by the A&E consultant to take one piriton each night as it would help me. Had to go to the gp the following morning to get a adrenaline auto injector (Jext ). I felt absolutely wonderful - no pain and no swelling in my hands, it had disappeared. The gp said it's all down to the steroids. After finishing the course of steroids and piriton I have continued to take the one piriton each night. I have had almost four weeks with no fibro pain. I have had loads of energy and have felt like the " me " of twenty years ago :-D The last few days things have started to go down hill with fatigue setting in and a unusual and different type of pain in my right shoulder. I have been doing some research regarding the anaphylaxis and have come across articles that suggest a mast cell disorder maybe to blame. No sign of the appointment with the dermatologist yet, and can take up to 18 weeks to be seen :roll:
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