Is it possible to be pain free with Fibro?

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Is it possible to be pain free with Fibro?

Postby Dawnmc » Fri Mar 27, 2015 5:26 pm

I have recently been diagnosed with FM after suffering for 18 mths and wrongly diagnosed with PMR. I am self employed so must work however I am really struggling! I can't remember what it's like to be pain free. I know it's early days on my new meds but I'd love to know if there are people out there who are successfully managing their pain/fatigue?
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Re: Is it possible to be pain free with Fibro?

Postby Theresa34 » Fri Mar 27, 2015 5:29 pm

Yes it is possible to be pain free with fibro. I've had a very good four days without pain. I've recently dosed up my gabapentin so I think that that is making all the difference!
I am a fibro fighter not a fibro sufferer. I will keep fighting from the minute I get up til the minute I go to bed.
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Re: Is it possible to be pain free with Fibro?

Postby Juliehayward23 » Fri Mar 27, 2015 5:58 pm

I have found a chiropractor who really helps my pain. I have only been diagnosed for a couple of months, having suffered pain for years.
There are periods of being pain free, but sometimes will flare up.
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Re: Is it possible to be pain free with Fibro?

Postby WENMARIE » Fri Mar 27, 2015 6:46 pm

I think my fibro started when I was about 17 (1985). I was diagnosed a few years ago and it all made sense to the origins of my pain. I take lots of medication but haven't had any success with the majority. I know I will find a combination that works for me so don't be disheartened. Ask for a referral to a pain management specialist who will be able to work with you in finding something that helps :-D
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Re: Is it possible to be pain free with Fibro?

Postby smoky » Fri Mar 27, 2015 8:00 pm

It isnt possible to be pain free but I am lucky enough to have fibro reasonably mildly and for the most part have learnt to block my pain enough to work. I take amitriptalyne for the rigidity and to sleep, a analgesic that has ketamine in it for day to day pain (I live in France and understand this is not available in the uk) and then if I have a flare and am off work I will take a tramadol that takes all the pain away but also stops me working as I fall over and have funny turns on it

This year has been a stressful one at work so the pain has been worse and less 'blockable' but I still largely manage to work full time (have an understanding boss who sends me home early if I look tired

Take care :-D
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Re: Is it possible to be pain free with Fibro?

Postby Zia2014 » Fri Mar 27, 2015 8:29 pm

I haven't found any meds that relieve the pain totally apart from Amit, which gave me terrible side effects. Now I just put up with it but take Pregabalin so that it takes the edge off and I can function!
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Re: Is it possible to be pain free with Fibro?

Postby ezdade » Fri Mar 27, 2015 9:14 pm

I wished mine was pain free, I have severe fibromyalgia and degenerative disk disease and only 35, tried everything failed miserably. I just take each day as it comes. :oops:
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Re: Is it possible to be pain free with Fibro?

Postby Susan Stokes » Sat Mar 28, 2015 11:02 am

I have forgotten what it's like to be pain free, the best I can hope for is to keep the pain at manageable levels. As for the fatigue, it's a battle to get through the day - but hey, that's just me being a missery-guts.
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Re: Is it possible to be pain free with Fibro?

Postby Dawnmc » Sat Mar 28, 2015 7:13 pm

Thanks everyone! I have spoke to a couple of fellow sufferers who say they take amitriptyline and tramadol, and that works for them, however when I mentioned this to my doc yesterday she told me that they are incompatible and should not be taken together!
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Re: Is it possible to be pain free with Fibro?

Postby carolad » Sat Mar 28, 2015 10:06 pm

Dawnmc wrote:Thanks everyone! I have spoke to a couple of fellow sufferers who say they take amitriptyline and tramadol, and that works for them, however when I mentioned this to my doc yesterday she told me that they are incompatible and should not be taken together!


Strange! It must depend on the individual doctor because I've been taking both for back pain for about 7 years. I wonder would it be anything to do with the dose? I take a fairly high dose of Tramadol (300mg a day) but a low dose of Amitripyline (30mg) so maybe that's ok. The Pharmacists have never queried it so it must be ok.
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Re: Is it possible to be pain free with Fibro?

Postby carolad » Sat Mar 28, 2015 11:06 pm

I found a site that gives drug interactions...
http://www.rxlist.com/drug-interactions ... action.htm

For Tramadol and Amitriptyline, it says`:
Potential for significant interaction (monitoring by your doctor is likely required)

It doesn't say it is contraindicated though ie that they can't be taken together, so it is ok to take both as long as you are being 'monitored'. Might be worth printing this out for your GP if you want to try this combination Dawnmc :-)
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Re: Is it possible to be pain free with Fibro?

Postby ixel-chick » Wed Apr 01, 2015 5:53 am

Dawnmc wrote:I'd love to know if there are people out there who are successfully managing their pain/fatigue?


I am both pain and fatigue free. :-D So yes, it's possible. I don't know how long it will last for, I've read of people on the same drug as me where it's stopped working after a few years. However, I will cross that bridge when I get there.

Currently (last 2-3 days) my short term memory has been terrible though, not certain if it's the fibro at work (no brain fog, just the short term memory), or if it's the lack of sleep the last few days. However, come Thursday I intend to do a marathon sleep. :-D
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Re: Is it possible to be pain free with Fibro?

Postby Nellyphant » Wed Apr 01, 2015 12:09 pm

I think it depends on each person. For me - no. Origins of my Fibro go back to 1977 when my migraines started and I've been in daily pain for over 20 years. I take each day at a time and try to go to bed thinking the same thing every night - 'I'll feel better tomorrow'. Keep hopeful.
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Re: Is it possible to be pain free with Fibro?

Postby TNK* » Wed Apr 01, 2015 4:01 pm

My pain has fits and starts, sometimes i feel like i have hit the jackpot regarding pain meds and others feel like ive hit a brick wall and nothing is working. I was stuck in a bit of a rut recently so my meds have been changed from Ami to Gabi, im on a low dose of both at the minute so i dont go cold turkey, but i am invreasing the gabi and reducing the ami, but i am a bit disappointed as taking both seems to work at the min, and i like the not so much pain.
I dont think i will ever get the fatigue/pain balance right though, but the fatigue is copable the pain knocks me off my feet for days....but if i fight the fatigue for too long i end up in flare up.

its a catch 22
A Dream Is A Wish Your Heart Makes When You're Fast Asleep ºOº


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Re: Is it possible to be pain free with Fibro?

Postby bandj » Thu Apr 02, 2015 10:15 am

I'd love to be pain free. But I also have osteoarthritis so I get hit both ways. I've been signed off work since January due to the pain and fatigue. I can work through pain (although I suffer later) but I cannot fight the fatigue. I'm on morphine patches and amitriptylinne for the pain. Nothing else worked for me.
All I can say is, is keep trying different meds until you find what suits you. Good luck!
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