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The UKFibromyalgia Forums • View topic - Diagnosis without further investigation.



Diagnosis without further investigation.

All your fibromyalgia experiences, questions and answers.

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Diagnosis without further investigation.

Postby Kayleigh » Thu Apr 02, 2015 7:44 pm

I was diagnosed about 6 years ago after 4 years of complaining to my GP, I was told this after being in the hospital for 5 minutes. They did not offer me help or explain what it was so I went on for a couple of years in agony and taking co-codemol.
I was struggling so bad in work and having a lot of time off last year (10 years pain at this point) that my work paid for me to go private and low and behold they are now trying to help me even though I only paid private twice, one rheumatologist and one neurologist. Since then I have had brain scans, nerve tests, needles put into my muscles to test the messages that are being sent and last month a muscle biopsy. This is all within 11 months.The doctors are baffled by what's happening. I personally believe I have ME. There is very little difference between the 2. The main differences are people with ME get a lot of sore throats and this is not connected to fibro. A lot of viral infections are had by ME patients which I have at least one every 3 months and the pain starts after the muscle fatigue. Otherwise it is pretty much the same condition. Some doctors even say it was if there was a trauma or bad viral infection before it started that can determine which one you have.

Although I have babbled on a bit sorry, what I'm trying to say is don't just accept this diagnosis, push for tests and make sure every other avenue has been covered. The rheumatologist I saw told me a lot of doctors will say Fibro because they haven't got to do all the tests or even understand the condition. Fibro is a genuine disease but it's not understood so how can they tell us just by pushing on pressure points.
I have now had all the tests I can and although it has made me worse on times and the depression kicks in a lot I will finally have a final answer in May. If it is fibro I will finally be able to accept it knowing everything has been covered.
Kayleigh
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Re: Diagnosis without further investigation.

Postby iblinkin » Thu Apr 02, 2015 8:37 pm

Hi Kayleigh, it's not fun dealing with this illness is it? I have fibro and i did get a lot of sore throats and respiratory infections until i started taking Vitamin D drops and now it has been reduced to occasionally.

You may want to consider your diet as there's tons of info on the net, also look up magnesium for fibro as our minerals get depleted quite easily as it helps with memory and spasms.

Cheers!
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Re: Diagnosis without further investigation.

Postby Kayleigh » Thu Apr 02, 2015 8:45 pm

Thank you for the advice.

No its not fun at all and I'm so fed up of trying to explain to people what's going on with me. I'm pretty sure it's one of the two, don't think there will be a different outcome but I needed that 100 percent this is what you got, you know what I mean.
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Re: Diagnosis without further investigation.

Postby carolad » Thu Apr 02, 2015 11:09 pm

I think the uncertainty is difficult to deal with so I can understand you wanting to get a proper answer. I still have doubts about my fibro diagnosis and I don't suppose I'll ever know for sure. I hate that but I know I just have to accept that whatever the cause, I have pain and fatigue and I just have to learn to live with it!

I hope you get a proper diagnosis soon x
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Re: Diagnosis without further investigation.

Postby Kayleigh » Fri Apr 03, 2015 7:32 am

Thank you
To be honest I was just living with it. Every other illness that occurred I put down to fibro and just got on with it. I only started pushing for further tests when occupational health nurses and doctors from work said for me to do so. Now I'm really glad I did.
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Re: Diagnosis without further investigation.

Postby Jeany » Fri Apr 03, 2015 8:32 am

Very interesting Kaliegh thank you for sharing that info with us, and please let us know the out come and any advice would be gratefully received.

I was diagnosed with ME and fibro 4 yrs ago after years of going back and forth to my GP with different ailments,which followed having the Glandular Fever virus at the age of 47.

I have the pain from head to toe, and the sore throat & glands, and a huge amount of stomach problems which they cannot seem to cure even after 10 yrs of tests.

I have always had really bad anxiety, panic attacks and agorophobia at intervals.

I wonder too if I have been wrongly diagnosed, and I am fed up now of feeling like a 90 year old when prior to the illness, I looked brill for my age and was very fit and walked 40 miles a week.

I wish you all the best and look forward to your updates in May.

Jeany
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Re: Diagnosis without further investigation.

Postby carolad » Fri Apr 03, 2015 10:44 pm

carolad
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Re: Diagnosis without further investigation.

Postby Kayleigh » Sat Apr 04, 2015 3:41 pm

Kayleigh
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