How important is diagnosis to you?

All your fibromyalgia experiences, questions and answers.

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Re: How important is diagnosis to you?

Postby KenRP » Sat Apr 18, 2015 11:09 am

Butterfly8588 wrote:Having a diagnosis was extremely important to me, I dont mean I wanted to be diagnosed with fibromyalgia, I just wanted a reason for the way I was feeling no matter what the name of it was. In my mind I was completely cast adrift for several years bouncing from drs to neurologists to pain management specialists (and I use the term loosely!). I had no idea what was happening to me, if it was causing damage to my body and, more importantly, would it get worse? You can't accept what you don't understand.
I liken it to meeting a stranger, you're always weary of them until you know their name and a bit more about them. When I got my official diagnosis (and I found out about it by accident and mentioned it to the dr) I read up on it and stuff made some sense to me, where other bits didn't but I could start to understand what was happening. With understanding could finally come acceptance.
I was very lucky that I had a supportive family around to help me and who believed me when i said I was in pain/tired etc. I cant imagine how important a diagnosis must be to people who dont have that, at least they can finally explain.

Gentle hugs xx

This is my take on the subject.

For 15 years I've been treated (with very little effect) for Psoriatic Arthritis. This diagnosis was probably due mainly to nothing showing up on blood tests, and me having Psoriasis!

Anti-inflammatories have made no difference, an MRI scan actually showed no inflammation, but the diagnosis wasn't questioned!

I was telling people that, basically, the Doc didn't know what was wrong with me.

I have a friend who was recently diagnosed with Fybro, who has very similar problems to me. This prompted me to look on the NHS website. I printed off their list of symptoms and took that to the Doc after realising that I'd actually suffered from them all!

It's a great relief to know what is wrong, even if little can be done.
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Re: How important is diagnosis to you?

Postby bandj » Sat Apr 18, 2015 7:01 pm

Hi all

I needed a diagnosis so I could change my hours at work and get other equipment like keyboard and mouse that didn't cause me extra pain.

I also wanted a diagnosis so I knew what I was facing. I feel I can face anything if I know what it is and fibro explains so much of why I feel the way I do. I do not feel labelled, I am not fibro judi im judi who jusg happens to have fibro.
There are these three things that remain: faith, hope and love. And the greatest of these is LOVE.
1 Corinthians 13:13
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Re: How important is diagnosis to you?

Postby Yorkbelle77 » Thu Apr 23, 2015 11:15 pm

Having received my diagnosis just over a week ago I'm still trying to get my head around it. Yes, I'd suspected Fibro especially as my mum has it and my symptoms were similar. It was when the fatigue struck the I needed to know what was wrong, as like others I worried about other potential problems. Now I have a name for it, I know it's not in my head, I'm not being lazy, I just need a lot of sleep at the moment... Whether it helps or hinders me at work I'm not sure, have an OH appointment coming up.
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