What type of person get Fibro??

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What type of person get Fibro??

Postby changeoflife » Mon May 11, 2015 4:23 pm

I,m newly diagnosed after suffering neck and back injury and now fibro :( I was wondering if seems to get to people that in general before were the type of person that thought they could beat anything, never took painkillers, worked when ill, allways pushed themselves to the limit ?? Like my username, this is a complete life changer, not just for me, my whole family. I'm done with the tears, I want to find a way to get better :roll: We are supposed to be intelligent creatures?? Why hasn't anyone found a cure other than painkillers and antidepresents?? I find myself, now past the process of fibro taking over my life, of trying to find some sort of path back to normality!!
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Re: What type of person get Fibro??

Postby Queenie_70 » Mon May 11, 2015 4:32 pm

Hi,

I think I know what you are talking about. I was a 60 hour a week worker, getting my Master's, raising my kids and trying to run the house when this hit me. Now I am lucky to get a few hours sleep that mean anything, can't focus for more than two minutes on a good day, I think of all the things I need to do, and I am stuck with doing what I have to do to survive.....

I now live for each moment because it is the moments that count....

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Re: What type of person get Fibro??

Postby changeoflife » Mon May 11, 2015 5:04 pm

Maybe it's because we're fighters, we get dealt this card? I keep asking what I've done to deserve this sentence I've been given!! I had such plans for the furture, now I don't even know what I'm capable of from one day to the next :-? I think what I'm looking for, is a way of living a normal'ish life somehow.

I hate the weight gain that my body has taken on, the oh so slow staggered walking, the bumping into things, even with a guiding hand on me I still manage it, the hot flushes, the forgetfullness, the pain, the missed life, Fibro has stolen the life I had, and now I feel like a different person trying to find its way in my old life and somehow trying to find a way forward. I've gone from being so outgoing, to now having less than a couple of colleagues who contact me occassionally (probably after the guilt kicks in). I feel redundant, good for nothing. I loved my job, I felt needed, useful, intelligent, hard working (maybe too hard) now a good days work is being able to cook dinner and maybe put the washing out!! Someone, somewhere must be able to find a way to switch this dammed illness off!! I want my life back PLEASE :?: :?:
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Re: What type of person get Fibro??

Postby Honeysmum » Mon May 11, 2015 5:55 pm

You could be right. I had the best job - training people all over the UK, I had no children so it was my career not just a job.
After a minor injury to my neck I was diagnosed FM in March 2006 and since then I have lost everything.

My husband loved money more than me but I couldn't help provide the lifestyle we were used to 4/5 holidays a year, if we wanted something we bought it etc etc. So in splitting up we had to sell our beautiful home that we had redesigned and remodelled to just how we liked it. I ended up renting a house and working part time. Last year I couldn't work any longer so had to give up my rented house, I am now claiming benefits, living with a (very kind) friend while I look for a house with a housing association that isn't in a bad area.

So here I am, with less than nothing, watching everyone else live a life while I watch on. I know I am not alone, plenty of people find themselves somewhere they never thought it would be. I have been having counselling for the last couple of years but I just can't shake the feeling of devastation. And people still say "you don't look ill" ! One day I will think of the right and appropriate thing to say back. My dog has been my saviour.
I know exactly what you mean. xx
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Re: What type of person get Fibro??

Postby caramia » Mon May 11, 2015 7:05 pm

I was referred to a rheumatologist some years ago , believing even at that time that I had fibromyalgia. She diagnosed me with osteoarthritis in my hands , neck and back after doing x rays. Her statement however upset me .... she said I was 'too sane to have fibromyalgia'! :evil: I found this totally disrespectful for someone who actually diagnoses this condition and shows how it is still viewed by many medical staff as a pychosomatic condition!! :nono: I am a trained psychiatric nurse and found this disgusting! :-x I too was a very active person who certainly doesn't want to be like this now! I can only work part time and find at end of working day the brain fog is awful and I am totally shattered, an overwhelming exhaustion! The pain is always there but is always worse at night and early morning, or in evening if really tired. :cry: I hate not getting a nights sleep, parading about during the night and now am up at 5am every day as can't lie any longer! My problems I believe started after I had a hysterectomy. I almost lost my life as I haemmorhaged a week later. My thyroid then became seriuosly underactive and this started, to my thinking it is due to the assault on my body losing so much blood ( ie major stress on my organs etc) . I could be wrong of course .... it's just my theory? :idea:
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Re: What type of person get Fibro??

Postby FluppyPuffy » Mon May 11, 2015 7:13 pm

Altho we all come from different walks of life, there do seem to be some characteristics/traits that a good number of us share, as well as FM. When you read thru different people's stories, busyness features high on the list, along with stress and being the type of person who people come to, in some capacity, to sort out matters/problems. Putting the needs of others ahead of the needs of the self features quite prominently, not wanting to let down those around us, even at the expense of making ourselves worse is also there as well. Keeping going as well, no matter what is happening isn't unusual, nor is having experienced some form of trauma, which can be physical or health related, emotional or psychological, plus a whole host of others that will probably come to mind as soon as I log off.
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Re: What type of person get Fibro??

Postby changeoflife » Mon May 11, 2015 7:49 pm

It really is heart warming to hear from good, strong women (and men) that are going through similar changes to their bodies and their lives. I have read so so many sad stories since finding out about this dreadful, soul-stripping illness. I feel some sollis in knowing I'm not the only chosen one! I'm determined to try and get through this without losing my soul and my sense of humour, but sometimes the beast gets the better of me!! I know like me you are strong and will try to carry on regardless of the empty glazes from people when trying to explain what's wrong, when you cry because you've failed at something that would normally be so easy. I am someone still that thinks I can beat this, I am comforted that I now have others who know exactly what I am feeling. Xxxxxx
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Re: What type of person get Fibro??

Postby loverliesgal » Mon May 11, 2015 9:40 pm

Back in 2003 I somehow managed to work full time, look after three teenagers, and two dogs, have hysterectomy, and boom, I start to lose everything one bit at a time. Couldn't stand, couldn't sit, couldn't walk, then the dreadful tiredness, in the end was advised to take redundancy which cushioned us for a very short time, here we are twelve years later still waiting for the morning I will wake up and it will all be gone. Yes thats what a neurologist told me. Just managing to get by on benefits, I damaged my husbands back with all the lifting of me that he was doing. At last our house is suitably adapted, and he only has to lift me occasionally. But then the dreaded bedroom tax hit us, we did get a discretionary payment last year, but it seems the criteria for a second year are different, they want to know what I have done to find more suitable accommodation, the accommodation I live in now is most suitable thank you.

so yes, I have gone from working from 7 in the morning to gone 11 some nights, to now just barely functioning, barely living,
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Re: What type of person get Fibro??

Postby flashsjill » Mon May 11, 2015 10:14 pm

Hi everyone,
I was told recently that lazy people don't get Fibro, it's usually people who work hard and strive to get to where they want to be in life.
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Re: What type of person get Fibro??

Postby Willow5252 » Tue May 12, 2015 4:00 am

Hi
I can concur with all that has been said. Before this horrible condition took over my life, I was working as a Midwife/Lactation Consultant. I would get up at 4:30 in the morning, work all day. Half hour drive home. Go to the Gym for an hour. My days were busy and full. I played well too. Just before I had my one and only flu vaccine at work, which led to my Fibro, we had celebrated our 25th wedding anniversary in New York. It is the last happy memory I have of being able to enjoy a holiday. We did so much walking, it was wonderful. Now I spend alot of time in bed. I have not had a good day in 8 years. My point is I was far from lazy, but had a real zeal and energy for life, and it has all been taken away by this condition. good luch to all of you searching for a treatment that will relieve your symptoms. I wouldn't even dare wish for a cure. I don't think we will ever see it. I know men get Fibro too, but it is primarily women, so male researchers won't be working so hard to find a cure more than likely
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Re: What type of person get Fibro??

Postby soupdragon » Tue May 12, 2015 5:28 am

busy busy busy people, Although I can probably trace my problems back to having my son by caesarean section, prior to becoming ill I I was looking after 2 children ( 4 and 5) and a sick husband while doing 5 part time jobs. I went to work one day and did not have the energy to walk home. By the time I was reliant on a wheelchair to get out of the house, I was prescribed antidepressants and sent to see a Psychiatrist! He diagnosed me with M.E. and prescribed graded exercise and Cognitive therapy, the first made me worse and the second suggested that it was my "negative attitude" that was making me ill, I have always been a positive , forward looking person and despite being so disabled, this attitude had not changed.

I was however referred to a local pain unit, where I was taught to pace strictly using a digital timer, finding the time it took to get to the point of exhaustion when standing, sitting ect and then halving the time and increasing only when that time was managed for at least 3 days. It took me another 3 years to be able to return to an hour a day job which after another few years increased to 16 hours a week and after a little while, able to work a full day when needed to by my employers. However, each time I caught a (e.g. cold) virus I had to drop my activity back and build up again. Two years ago this necessitated being off work for 3 months. During this time I was offered nothing in the way of medication and managed myself with "over the counter" painkillers when I needed them.

Since being off then I have struggled with energy and have managed to work but have had to give up my social activities and the state of my house had deteriorated rapidly. Last September my job became slightly more physical in nature and resulted in me having to completely rest before work (3 and a quarter hours working) and going straight to bed afterwards, often for the rest of the day. in March I picked up another virus, and ended up with severe pain in spine shoulders and head and moderate pain elsewhere, severe muscle spasms in back and legs. This time, however, I saw a new Dr to the practice he witnessed how I was and he listened. I have been started on Gabapentin for the pain and Baclofen for the spasms. I don't know how these are going to help me yet as it is early days but at least I have been given a bit of hope. I am still strictly pacing and have managed to make some improvement in my activity times so fingers crossed. I would suggest that if you are able to discipline yourself to strictly pace it might help, it definitely have helped me. I often can continue a task by changing position. I have a stool in the bathroom, and a bar stool in the kitchen to help me do this. I hope this helps someone.
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Re: What type of person get Fibro??

Postby soupdragon » Tue May 12, 2015 5:42 am

I did omit to add that I was referred, after being to the pain unit, to a specialist in M.E. who diagnosed me with fibromyalgia and agreed that the pacing was working for me. I saw him for a few years before being discharged.
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Re: What type of person get Fibro??

Postby migrembe » Tue May 12, 2015 9:10 am

What type of person gets Fibro?

A manic person. Who either has a manic life style where they never stop. Yet when they think back over the months or even years before they were diagnosed they will be able to pick out signs and symptoms when the body telling them to stop. They did not stop, because they felt they couldn't - for every reason under the sun. But in the end the body stops them - us - me. Pain is the body's warning system that something is wrong and yet we do not heed it's call and think we are unstoppable, but then something happens and we have to stop and then the pain takes over and yet we continue to fight the pain, instead of accepting it. If we had been diagnosed with just about any other thing that was disabling us and causing us pain, we would stop and listen to our bodies, but it's nothing - isn't it?- it's only Fibromyalgia!?!

I believe the only way to live with this condition is to stop, and listen and wait until the body is ready to get better itself and for some people that may never happen. Some will always live in the worse pain and hell possible. Some will learn to adapt and cope with the pain and some will get passed it and get their lives back. But first we have to grieve for that which was lost - ourselves!

What do i think causes it? Body stress. Whether that is physical, emotional or mental stress, which we allow to build up in our lives or which others cause in our lives and we cannot let go. We are born worriers. We worry about EVERYTHING and we cannot stop, even though we know we shouldn't. Then there is the last straw, that doesn't break the camel's back but breaks our backs and yet we still continue to fight and stress and worry and keep asking the question - when? When? WHEN???

I think anyone can get Fibromyalgia, but those that don't are those that allow life to float by them.

Learn to stop. Learn to meditate. Then wait for the body to move forward on it's own. Wait to get better. I had lived 48 years of my life in stress and it may take me 48 more to live without it!
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Re: What type of person get Fibro??

Postby changeoflife » Tue May 12, 2015 9:26 am

I think you are so right! Thank you for your reply. I remember at the time pushing myself through the pain, chasing around at work, the phone ringing, emails coming through, four people behind me waiting for answers and I broke, literally. I can't believe looking back now, I went into a cupboard area and cried with another colleague corforting me, I tried to hide like a wounded animal, not wanting anyone to see that I had failed, I wanted to disappear at that time. I stumbled out of the lab never to return. I remember feeling like I was in some sort of vortex, spiralling out of control. The pain was unbearable when I actually stopped myself, or it stopped me! I have tried to pace myself more lately, but still get so frustrated that something is governing my life. Do you try meditating? Does it help?
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Re: What type of person get Fibro??

Postby SchroedingersCat » Tue May 12, 2015 10:17 am

I'm still doing what you describe in your post, changeoflife, I haven't stopped, still working full time, still living life to the full, and I'm still not on any meds. If I stop doing what I want to, I stop being me, and at that point I might as well just step under a bus. Life is pain, just some of us deal with more of it than others. I'd love to learnt to pace myself, but I suspect it will never happen.
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