Possible Diagnosis due to pain in hands, wrists and arms

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Possible Diagnosis due to pain in hands, wrists and arms

Postby wretchedgirl » Mon May 25, 2015 7:57 pm

Hello all! :-)

I am a newbie, I felt that this post would be most appropriate here so I hope that's alright! I have come seeking advice and stories of others experiences, I hope you can help me!

My name is Amy and I am 29. I was diagnosed with CFS/ME over 10 years ago now, although it's debatable whether I was left undiagnosed for many years before this. In November 2014 I woke up one morning with severe pain in my hands and wrists, it came on very suddenly and previous to this I had not suffered any problems. At first the GP believed this to be a case of tendonitis and prescribed me anti-inflammatories. After more than a week of rest and no improvement I returned to see a different GP who was a little perplexed by my symptoms and as such tried me on different medication as well as sending me for blood tests. These blood tests returned with the results being completely normal, ruling out inflammation to indicate tendonitis and also rheumatoid arthritis. As such she referred me to a specialist/hand surgeon, but at this point she told me that she didn't believe it to be carpal tunnel syndrome but more likely that it could be linked to the CFS/ME or indeed that it could have evolved into Fibromyalgia as hand symptoms are often present.

On my meeting with the specialist/hand surgeon he said that I presented some symptoms of Carpal Tunnel Syndrome, but that it didn't sound like a typical case. He injected my wrists with steroids and after a week of feeling very ill, my hands and wrists felt a good level of relief. Unfortunately this was short lived and a month afterwards my symptoms worsened again, as such I had to leave University. The level of pain has thankfully not returned to being so severe as before the injections. I was sent for nerve tests which indicated there was no problem as everything was normal. I was then referred for a second opinion with another specialist/hand surgeon, I had the appointment on the 14th May and came away feeling very upset and disheartened. I had been holding out for the hope of a diagnosis of carpal tunnel syndrome as despite the surgery this would result in relief and a return to normality... It looks like this is not to be. The second doctor doesn't think it is carpal tunnel and again it was suggested that it was linked to the CFS/ME, or Fibromyalgia. I am waiting to go visit my GP and be prescribed medication, a neuropathic one I can't remember the name of and also Amitriptyline which I have previously been prescribed.

I feel like I have been left hanging. I am still not clear on what the problem is and what the prognosis for me is, but I feel like I will have to come to terms with the possibility of a Fibromyalgia diagnosis. It's turned my life upside down and I don't know where to go from this point onwards. I was studying Textile Design at University, which was something I battled for years to get back to. It means there is a great deal of working with my hands, I may not be able to return to University and also any hopes of a job in the creative industry currently feels like it has taken away from permanently.

I wondered if anyone else has faced a similar situation to me and whether they had any knowledge or experience they could share with me!? Oh, and if you read through all of that then I should probably award you with a prize!
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby Garyl » Mon May 25, 2015 8:28 pm

I was lucky when diagnosed as the doctor at the hospital said straight away it was Fibro the clincher for him was the feeling of tiredness all the time, whilst i am on strong pain relief nothing else because of other health problems i do manage to live albeit a pain ridden day everyday tiredness and my hands at times feel as though they do not belong to me.

Was reading earlier about a product called bio freeze which i am going to try if it works will see if it is obtainable on prescription. As is expensive but available in a cream a roller ball or a spray. try anything to get some relief. What did concern me at first was the consultant was close to tears and kept apologising.
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby wretchedgirl » Mon May 25, 2015 8:42 pm

Garyl wrote:I was lucky when diagnosed as the doctor at the hospital said straight away it was Fibro the clincher for him was the feeling of tiredness all the time, whilst i am on strong pain relief nothing else because of other health problems i do manage to live albeit a pain ridden day everyday tiredness and my hands at times feel as though they do not belong to me.

Was reading earlier about a product called bio freeze which i am going to try if it works will see if it is obtainable on prescription. As is expensive but available in a cream a roller ball or a spray. try anything to get some relief. What did concern me at first was the consultant was close to tears and kept apologising.


Thanks for your reply Garyl.

I suppose the reason why a Doctor might not automatically go for a diagnosis of Fibro with me may have been due to me suffering with CFS/ME for so long and this being a new symptom. I guess at least it gave me the hope that there was a cure to my problem, and not yet again nothing they could do for me! :( I sounds like your consultant was genuine and caring, they obviously understand the implications the illness has.

I will look into the Bio Freeze. I hope that it will help to give you some relief from your symptoms! :-)
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby KazED » Mon May 25, 2015 10:55 pm

Please be careful with Bio Freeze.

I don't suffer as badly as many of you but had a flare up when I went on a break to London. I was on the go from home on a very early flight and didn't really stop travelling and trekking around shops, etc for about 12 hours at which point I became very ill - exhausted and in pain. I used Bio Freeze which actually made me much worse, shivering cold and I needed to wrap up in layers and two duvets. It took me hours to start feeling a little bit normal and not so cold. I have never suffered so badly with symptoms.
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby LymeLongTime » Mon May 25, 2015 10:57 pm

Pain in hands, wrists and arms !!!

Oh Boy ! I sure can relate !!!

As a Massage Therapist Here in New York, USA. I can surely state that those symptoms are suggestive of
my own "LYME" disease symptoms (as well as being co-infected with Babesia and Bartonella).
They were amazingly painful and truly worrisome to someone that relies on their hands, wrists, arms, shoulders and neck !!!

I hope you have asked for and/or have been given lab testing for Lyme (Borreliosis) and co-infections.

If you haven't been or are unaware of these tick born diseases... answer this questionnaire here at...
http://www.cangetbetter.com/symptom-list

I'm not selling ANYTHING !!! just giving away FREE KNOWLEDGE ... take the test found on that page here... http://docs.google.com/viewer?a=v&pid=sites&srcid=ZGVmYXVsdGRvbWFpbnxjYW5nZXRiZXR0ZXIyfGd4OjViM2FhOTFjYWViY2RmNzI
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby LymeLongTime » Mon May 25, 2015 11:02 pm

LymeLongTime wrote:Pain in hands, wrists and arms !!!

Oh Boy ! I sure can relate !!!

As a Massage Therapist Here in New York, USA. I can surely state that those symptoms are suggestive of
my own "LYME" disease symptoms (as well as being co-infected with Babesia and Bartonella).
They were amazingly painful and truly worrisome to someone that relies on their hands, wrists, arms, shoulders and neck !!!

I hope you have asked for and/or have been given lab testing for Lyme (Borreliosis) and co-infections.

If you haven't been or are unaware of these tick born diseases... answer this questionnaire here at...
http://www.cangetbetter.com/symptom-list

I'm not selling ANYTHING !!! just giving away FREE KNOWLEDGE ... take the test found on that page here... http://docs.google.com/viewer?a=v&pid=sites&srcid=ZGVmYXVsdGRvbWFpbnxjYW5nZXRiZXR0ZXIyfGd4OjViM2FhOTFjYWViY2RmNzI


http://lymetube.com/thread/814/horowitz-lyme-disease-chronic-illness
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby KB-browneyedgirl » Tue May 26, 2015 2:50 pm

Hi Wretched,

I am so sorry you are feeling so, well, wretched.

What I know is this... IF you have Fibromyalgia, it is NOT the end of your life, as you know it, you WILL be able to adapt. It will take time and perseverance but you mentioned that you had to persevere to go back to school - you did it once, you can do it again because you are strong woman.

Do not accept a diagnosis from anyone but a specialist, please. So many people are diagnosing themselves or getting a diagnosis from a GP, then Googling Fibromyalgia on the Internet, from there they are taking to bed, never to get up again because it can be debilitating. This so wrong! Our brains are powerful tools!

My first sign of trouble showed up in my hands and my wrists when I was 11 years old, I am now, ahem, 44, okay I will be 45 in September lol. However, when I was 13 years old and finally getting a diagnosis of Lupus, I was not supposed to survive, so little was known. My latest diagnosis was Fibromyalgia but Lupus is always part of the equation because my first Rheumatologist was a pioneer in the work being done at the time and if he thought I had Lupus, then there is a good chance that I do. The rash on my face, which has also been there since I was 11, also tells the story.

I choose not to read about what I cannot do because I have Fibromyalgia, and instead I listen to my body and let it tell me. Granted, it has been a long road and I am lucky that I have found a great team of health professionals to support me, such as, an acupuncturist; the next is a massage therapist; a therapist is a necessity as being in chronic pain is extremely hard on the head, you may need to shop around for one that fits you, this is a case of one size not always fitting all; I also have a nutritionist, although, I am not very good at this part, basically I still eat what I want, but I would probably feel better if I followed her advice; last but certainly most important is my Doctor! I have had the same family doctor for the past 23 years, he has supported me through the darkness and through the light, and I know how fortunate I am!

Wretched, I am not supposed to be here today, my disease has spread throughout my body but, I am able to walk and use my hands because we have found a combination of medications that work for me. Do I still have pain, oh yes, but I have techniques that help me continue. If you ever want to chat, let me know ☺ You are going to be okay!

KB-browneyedgirl
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Re: Possible Diagnosis due to pain in hands, wrists and arms

Postby wretchedgirl » Sun May 31, 2015 10:15 pm

KB-browneyedgirl, that was so amazingly positive and reassuring... Thank you! :-D

I am due to start a course of acupuncture in a few weeks time. I've never had it before so I am looking forward to giving it a go. I am currently having sessions with a cognitive behavioural therapist, but these will end soon. I am going to contact my doctor about a referral to a specialist so I can get a firm diagnosis, if they believe it is Fibromyalgia. I shall try and stay strong, and embrace your positivity! I hope the management of your health continues on as well as it is, I am sure partly this is due to your fantastic attitude towards it all!
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