Research on experiences with fibromyalgia

All your fibromyalgia experiences, questions and answers.

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Research on experiences with fibromyalgia

Postby hmbowers » Thu Jul 02, 2015 11:07 am

Hi everyone,

I hope you don't mind me posting here. I'm doing a PhD with a heavy focus on fibromyaglia and various elements of the experiences of people living with it. There's so much we don't know about the disorder and not enough research is being done, which is why I've chosen to make it one of my main focuses in my PhD.

Together with my supervisor, I am running an online questionnaire study looking to gain more insight into the experiences of people with fibromyalgia. You can read more and take part at the following link.

If you take part, you can enter into a prize draw were you can win £25/£50.

Questionnaire link: http://www.surveygizmo.com/s3/2035145/I ... xperiences

Thank you!
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Research on experiences with fibromyalgia

Postby Icarus » Thu Jul 02, 2015 11:39 am

Hi hmbowers
I'm more than happy to help! Thank you for focusing on fibromyalgia, which you will know, is quite an unknown entity with so many misconceptions and bias towards it.

I am more than happy to help you.

Karev

Edit: completed


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Last edited by Icarus on Thu Jul 02, 2015 12:53 pm, edited 1 time in total.
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Re: Research on experiences with fibromyalgia

Postby SchroedingersCat » Thu Jul 02, 2015 12:15 pm

Completed
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Re: Research on experiences with fibromyalgia

Postby UnderSiege » Thu Jul 02, 2015 4:10 pm

Hi hmbowers.

Thanks for doing this study. I hope it goes a long way. Good luck with the PhD.

Strange coincidence, I actually live right next door to the RHUL Kingswood Hall campus and have a lot of dealings with the students (my mother rents out student houses in Englefield Green)

It's a small world eh?

Anyway, questionnaire completed.

Have a good one!
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Re: Research on experiences with fibromyalgia

Postby Zia2014 » Thu Jul 02, 2015 6:04 pm

Done :) Good to see people doing research!

Just noticed a couple of things while doing it though:

Q 38/46/55 I couldn't leave blank
Q 61 needs an N/A option
Q167 The use of wording "back to normal" - I personally wouldn't use that in relation to fibro as there is little consensus on whether people actually "get better"!!
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Re: Research on experiences with fibromyalgia

Postby hmbowers » Fri Jul 03, 2015 2:50 pm

Thanks so much to those of you who have taken part! I really appreciate it. And thanks for some of the feedback you've given as well - I will try to address those. If you know anyone else who might be interested in sharing their experience with fibromyalgia, please feel free to share the questionnaire with them! The more people we have, the more perspectives we can represent. :-D
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Re: Research on experiences with fibromyalgia

Postby Patsb » Fri Jul 03, 2015 3:02 pm

Done :fingerscrossed:
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Re: Research on experiences with fibromyalgia

Postby Queenie_70 » Sun Jul 05, 2015 9:10 pm

check :crazy:
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Re: Research on experiences with fibromyalgia

Postby galio » Wed Jul 08, 2015 12:25 am

done
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Re: Research on experiences with fibromyalgia

Postby bandj » Thu Jul 09, 2015 4:38 pm

I'm sorry but I couldn't complete the survey as it came up with an error message.
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Re: Research on experiences with fibromyalgia

Postby Butterfly8588 » Fri Jul 17, 2015 2:21 am

Hi there,
I have completed the survey to. Just a thought, the 'working status' question should have 2 more options. Firstly, in light of who you're asking to fill this in, there should be a 'Disabled' option and secondly there should also be an 'Other' option to.
Also, at the end of your survey you said we could talk to IAPTS, from my experience of them they told me they couldn't help me because my depression was caused by an on going illness rather then it being my illness. I was very surprised!
Thanks for highlighting this condition.

Take Care and Good Luck xx
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