Fatigued or something else?

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Fatigued or something else?

Postby Knowleka » Wed Jul 08, 2015 9:36 am

How does anyone know whether the extreme fatigus fatigue is normal or another illness? I have been off work for 3 days now, initially thought it was a flare but don't seem to be getting any better. Ive never had a flare this long before, any ideas? Tried to call docs no appointments available, not that they would be of use. Also did anyone when diagnosed just get signed off by rheumatology and back to gp with no proper support outlet other than gps who know nothing about it?
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Re: Fatigued or something else?

Postby lizashfield » Wed Jul 08, 2015 9:55 am

The fatigue is a huge part of FMS. Most of us do not get enough good quality sleep but the fatigue goes way beyond just feeling tired. Am battling it myself at the moment.
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Re: Fatigued or something else?

Postby SchroedingersCat » Wed Jul 08, 2015 9:59 am

I saw a neurologist and a physio who both said 'FM, we can't really help', and then a rheumatologist twice, she signed me back to my GP as we were both happy that I would cope on my own, although she did offer a pain clinic (useless as it was weekdays and I work full time). I don't think I've seen my GP since. So yes, I think it's quite common, though to be fair, I'e never explored any avenues for treatment or meication, and the specialist did say I could ask my GP to refer me back to her at any time if I needed more support.
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Re: Fatigued or something else?

Postby Polaris » Wed Jul 08, 2015 11:22 am

You can expect fatigue with Fibromyalgia especially as you won't get restorative sleep. You could sleep for 10 hours and still not wake refreshed. This is because people with Fibromyalgia don't get the quality stage 4 sleep. Last night I woke up at every hour from 1:30 am to 4:40 am and then didn't sleep again. I average about 6 hours a night but often have to make do with 4 or 5 hours. It's really quality not quantity that matters.
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Re: Fatigued or something else?

Postby neferhapi » Wed Jul 08, 2015 11:41 am

I think the fatigue is definitely a symptom of fibro I have been constantly exhausted for the past week. It feels as if someone is ducking the energy out of my limbs and replacing it with lead. I don't bother with the GP anymore all they say is it's depression (I have had a diagnosis from a rheumatologist but my surgery doesn't recognise fibro) and offer me counselling and psychotropic drugs to emotionally anaesthetise me. Normally I can lead an active life (I have a very mild case and most days I'm even able to work out) but this morning I can barely walk all my muscles feel bruised and battered, my skin feels like it's tearing every time I touch something and it feels like someone is ducking the energy out of my limbs and replacing it with molten lead. However on the bright side so far no fog. A lot of people I know with fibro are suffering at the moment and I wonder if it could be the weather / high allergen count. Tomorrow and Friday I get to work from home because of industrial action on the transport networks which is a relief....I never thought I'd be happy about a tube strike lol
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Re: Fatigued or something else?

Postby neferhapi » Wed Jul 08, 2015 11:48 am

Ha ha ...I post that on the bright side no fibro fog at the moment and then repeat myself in the same post!!! Yeah I think I might have been a little premature in saying that lol
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Re: Fatigued or something else?

Postby Zia2014 » Wed Jul 08, 2015 12:47 pm

Yeah sadly we don't get that key restorative sleep so whether I sleep for 10 hours (rare!) or 2, I feel like a truck has hit me and survive on caffeine (not good kids, don't do that!). It sucks, but that's fibro for you :crazy: :mrgreen:
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Re: Fatigued or something else?

Postby carolad » Wed Jul 08, 2015 1:02 pm

Definitely true about sleep quality :-) I would say I sleep for around 6-7 hours at night (with the help of 75mg Amitriptyline). But my Fitbit sleep tracker shows that my actual time asleep is around 3-4 hours, and that is very broken, I rarely get more than one hour of uninterrupted sleep at a time. So this is what causes the fatigue because you aren't getting the 'restorative' deep sleep. I'm actually going to try coming off the Amitriptyline and onto Gabapentin, because I've read Gabapentin can actually improve the quality, not just the duration of sleep. I know it doesn't work for everyone but I thought it was worth trying.

If anyone has any other suggestions for improving the quality of sleep, do please share :-) x
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Re: Fatigued or something else?

Postby TheHud » Wed Jul 08, 2015 1:13 pm

I work on about 2 hours solid sleep twice a night and although totally knackered all the time feel less stressed than trying to sleep any longer. I also try to keep moving sometimes I have no idea what I am doing but it stops me sleeping during the day. This believe it or not, is much better than my old routine without the pregab and codiene, ibruprofen, paracetamol sleep. That was wake up constantly with spasms cramp and pain, startled and drenched in sweat, every 30 minutes, I was like that for 12 years.

So as far as I am concerned the way to get a good couple of hours is accept that is all I am getting and remember how horrendous it used to be. Very rarely I sleep for 4 hours solid, usually from about 4am to 8am (weekend and hubby leaves me asleep). Trouble with that is I can't move a muscle, not one single part of me so hubby has to help get me out of bed and get feeling and movement back, even my left eye will not open by itself. :roll:
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Re: Fatigued or something else?

Postby carolad » Wed Jul 08, 2015 1:14 pm

I think it is fairly common for a Rheumatologist to give the diagnosis and then discharge you back to your GP. And then it is really down to the individual GP - some are helpful and proactive, others just seem to leave you to it. With my own GP, I have found I pretty much have to do the research myself and then tell him what I want :roll: Though at least he is happy to go along with what I want so I suppose I can't really complain!
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Re: Fatigued or something else?

Postby Sarah_89 » Wed Jul 08, 2015 3:12 pm

Polaris wrote:You can expect fatigue with Fibromyalgia especially as you won't get restorative sleep. You could sleep for 10 hours and still not wake refreshed. This is because people with Fibromyalgia don't get the quality stage 4 sleep. Last night I woke up at every hour from 1:30 am to 4:40 am and then didn't sleep again. I average about 6 hours a night but often have to make do with 4 or 5 hours. It's really quality not quantity that matters.

I take dosulepin to help me sleep & I sleep for roughly 8 hours every night without waking up, which I would consider quality restorative sleep. I'm in a very deep sleep where I have vivid dreams. Before I took dosulepin I couldn't sleep well at night & kept waking up. I feel a lot better than I used to but I still feel fatigued so I guess it's a fibro thing. It can be improved but never fully goes away. That's my experience with fatigue anyway, everyone with fibro is different.
I am a fibro fighter! :-)

Keep fighting guys and gals and stay strong! Gentle hugs

Sarah x
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Re: Fatigued or something else?

Postby Icarus » Wed Jul 08, 2015 3:45 pm

Sarah
I thought that you only dream in NREM and REM not in stage 4 restorative sleep. I may be (and probably am) wrong though


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Re: Fatigued or something else?

Postby Sarah_89 » Wed Jul 08, 2015 5:14 pm

Icarus, I don't know you could be right. But all I know is I sleep much better now than I did before I was taking dosulepin to help me sleep.
I am a fibro fighter! :-)

Keep fighting guys and gals and stay strong! Gentle hugs

Sarah x
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Re: Fatigued or something else?

Postby Zia2014 » Wed Jul 08, 2015 5:25 pm

Icarus wrote:Sarah
I thought that you only dream in NREM and REM not in stage 4 restorative sleep. I may be (and probably am) wrong though


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That's right, you only dream during REM not Stage 4. I checked a while back as I am always dreaming and thought I was getting good sleep, turned out I wasn't! :sleep:
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Re: Fatigued or something else?

Postby mrsmoomoo » Wed Jul 08, 2015 7:55 pm

I was diagnosed and referred back to go. No leaflets, no support groups or anything he just asked if I knew what it was and as I did that was that. I too am suffering with awful fatigue and fibro fog at the min. My doctor has put me on antidepressants as apparently they're meant to help but no joy yet. Keep smiling :-D
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