My poem about fibromyalgia - my way of living with it today

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My poem about fibromyalgia - my way of living with it today

Postby MusicCC » Thu Sep 10, 2015 1:49 pm

Living with fibromyalgia....hmmm
Well I saw a post further down about riding the emotional rollercoaster and thought how much of a rollercoaster fibromyalgia is :crazy: And I get scared of rollercoasters... only managed to ever go on a kids one lol. Currently in a flare :roll: which is frustrating. So my way of living with it today was to write this poem...

Fibromyalgia: Life is a Rollercoaster

When fibro knocks you down
It makes it harder to get up
It gives you pain, fatigue galore
And makes you think you’re nuts!

We knock against the side
And pain shoots through our bones
It makes us dizzy, we feel sick
Our body’s filled with stones

We slowly reach the top
Then down we shoot again
Round and round and upside down
Until we go insane

But if we ride the rollercoaster
We’ll find there are ways off
Sometimes they’re temporary stops
But sometimes that’s enough

A break that gives you hope
And reminds you who you are
So next time you’re on that ride again
Just focus on the stars

Don’t stress about the pain
It only makes it worse
Rest your body and your mind
To get you back on course

Sometimes those around us
Just don’t understand
But others they are wonderful
And lend a helping hand

And when you feel like screaming
Come here and let it out
We’ve all been there, you’re not alone
Of that there is no doubt

We’ll ride this rollercoaster
"Look! No hands!" we say
And in those times it lets us off
We’ll enjoy those precious days.
:-D
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Re: My poem about fibromyalgia - my way of living with it to

Postby natmac73 » Thu Sep 10, 2015 2:50 pm

Great poem! I'm on that same ride daily. ......just waiting to see the Reuhmatologist for help n advice.
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Re: My poem about fibromyalgia - my way of living with it to

Postby crazy_cat_lady » Fri Sep 11, 2015 8:58 am

brilliant poem!! ok if i print it out and stick it above my bed as a daily motivator? lol

(btw - the emotional rollercoaster post was mine)

coming on here is a great help at times, reminds me im not alone in this and there are ways to cope, (get the same support from autism sites when needing a boost when my son is having a rough time)
tired all the time!! zzzzzzzzz
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Re: My poem about fibromyalgia - my way of living with it to

Postby MusicCC » Wed Sep 16, 2015 4:30 pm

Thanks all. And crazy cat lady thanks for the inspiration and of course you can print it out. Hope it helps! I didn't expect as many comments, likes and shares on here and on facebook. But I'm glad I could share it and it reminds me we're all on the same rollercoaster and can feel supported here. xxx
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Re: My poem about fibromyalgia - my way of living with it to

Postby Angie Baby » Tue Sep 22, 2015 3:12 am

Great poem about our struggles with fibromyliga. This is how everyday is! Your right not fun! :-) :nono:
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