questions about flare

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questions about flare

Postby Butterfly8588 » Mon Oct 19, 2015 2:28 pm

Hi everyone,
Sorry to keep posting but I would appreciate your opinions please. Firstly, what do you consider a flare up? I thought I briefly remembered someone else asking this but I couldn't find it.
But most importantly, what do you think is the best thing to do when having a flare up? Try to carry on as normal as possible or rest as much as you can? I just don't know which one works best for making you better the quickest. To be honest I wonder if it's a case of damned if you do, damned if you don't.

Thanks for your time xxx
I'm the ghost of a girl that I want to be most, I'm the shell of a girl that I used to know well.
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Re: questions about flare

Postby Hellyn » Mon Oct 19, 2015 3:09 pm

Just coming out of a 6 week flare. The only thing I find best is be compassionate to yourself, be selfish.
I retire to my bedroom, I have made my hub. Electric blanket a must, heating pad, lots of pillows, varying blanket thickness, duvet, pain meds, laptop, mobile off, a bit of knitting. I make flask of coffee have bickies to hand and just ride it out.
Baths with epsom salts help and I do as little as possible and let others look out for me, it is the only way, otherwise if you push it I find it just takes a deeper grip.
I am having a good day today, but as my son reminds me...enjoy it and don't be superwoman or you'll invite it back again. This has been the hardest part to accept, not rushing into and trying to be what I was before and do everything..pace, observe my body and any signals that it is enough..stop.
I can't think of any other way to handle it...I tend to watch old noir movies as they are gentle and not mentally overstimulating and rather jolly..lol.
A flare up for myself is travelling pain, intense fatigue, mental capacity down, even talking is over taxing, and trouble concentrating and walking like a old duffer....
Just be kind to yourself, you can't be anything else.
much love Hellyn.x
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Re: questions about flare

Postby Butterfly8588 » Mon Oct 19, 2015 3:49 pm

Hi Hellyn,

Thank you so much for you're lovely reply, I'm sorry you're having so much trouble.
I've had fibro for over 6 years and have largely managed to come to some kind of harmony with myself, albeit a slow tired and painful one. I've learnt to manage with my everyday pain with slight detours through rough patches. But the last 2 years I've had a massive change in circumstances where I've had to push myself past my breaking point and ignore my own health for the health of a family member. It was literally a case of sink or swim for them and I had to help.
Recently though I've had the chance to slow back down a fraction with the odd day to myself here and there and have been forced to think of myself a little and it's like the 2 year wave that has been building has finally crashed in on me and I'm being swept away. I hurt everywhere, I'm so tired I can barely function and my brain is just fried. I also can't regulate my temperature which I always struggle with.
I hope we all get relief soon.
Thanks again for your time xxx
I'm the ghost of a girl that I want to be most, I'm the shell of a girl that I used to know well.
Butterfly8588
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Posts: 148
Joined: Tue Jun 07, 2011 2:37 am

Re: questions about flare

Postby AlisonL » Mon Oct 19, 2015 4:15 pm

For me a flare happens quite suddenly - a sudden increase in pain, other sensations such as pins and needles, quite often dizziness and overwhelming fatigue. I find the quicker I go to bed the sooner it subsides - sometimes I can even just crash for a few hours as long as I catch it quickly enough. If I can't (when I am out/have something I must do) I take codeine, tough it out and crawl into bed as and when I can. But always need longer to recover. Think of a sprained ankle 0 the sooner you rest it, the quicker and better the healing, go on using it and you will cause more damage. Recently tried to ride out a flare and found I was literally crawling up the stairs when I finally gave in. Good luck!
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Re: questions about flare

Postby SVG » Mon Oct 19, 2015 5:22 pm

Listen to your body. This condition is rough and thankfully bodies are clever at telling when to give in. Sleep lots. That's the best medicine. Baths are great and others have said use salts. I love Molten Brown muscle or stress relieving soak. Smell lovely as well as releasing every part of you. If you're in pain go to your dr. If he doesn't help then ask to be referred to a pain specialist who will be able to give you more help. Also, gps should be able to put you in touch with a local pain management group who can help with non medical treatments.
I wish you all the best and am sending virtual hugs (so they don't hurt either one of us) x
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