Has anyone quit work?

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Has anyone quit work?

Postby Consciousy » Sun Dec 06, 2015 8:08 pm

I've been diagnosed with fibro for about a year but was in denial. However, I'm at the point now where I'm slowly starting to accept this diagnosis but still getting my doctor to get me checked thoroughly and to refer me to various specialists to check for other conditions. I saw two musculo-skeletal doctors who initially diagnosed me with fibro but I wasn't happy about the diagnosis so I asked to be referred to a rheumatologist. I saw two at the same hospital who gave me the same diagnosis. I've had xrays, MRIs, bone scans and nothing has been detected. When I was 1st diagnosed I was off work for 3 months. I went back to work but my employer is refusing to let me work from home due to my numerous symptoms like daily headaches, nausea, pain etc... I'm a 41 year old marketing graduate and have been working in marketing since I graduated almost 20 years ago. I've been at my current job in Fundraising for almost 6 years but I'm struggling to cope because I go into work sick every day. Despite this there have been no issues with my work. We have a sick room I can go into for some respite during my lunch break and I do this about twice a week. I could go there five a days a week if I had my way. I went to my doctor's last week and he's signed me off sick for 3 months and I don't think I'll be able to go back to work. How do you keep busy? I'm single with no kids but have a supportive family. I need to find things to keep myself busy. I'm considering going back to full-time study at some point and to change careers so I can be self-employed to give me some flexibility. I'm not sure which career yet.
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Re: Has anyone quit work?

Postby scoke » Sun Dec 06, 2015 9:27 pm

I gave up work before I was diagnosed. I just felt generally off colour, tired, kept forgetting stuff, as a primary school teacher it just didn't work - wasn't diagnosed till several years after that. I tried to continue my walking, swimming, badminton, yoga and dancing, joined a gym and started making cards. I have had to give up most of the physical activities, one by one but still make cards, read and do puzzles. I run a few book groups and started up a craft group. Also just started painting lessons so I manage to keep busy. Can't always manage everything but it's good to have lots available - stops me thinking about how I hate fm!
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Re: Has anyone quit work?

Postby AlisonL » Sun Dec 06, 2015 9:41 pm

I dropped down to part-time, which I found suited me as I was getting a lot of job satisfaction. Don't know if I would have gone on so long if I hadn't loved my work. I have since retired and find I really have to push myself to do things or I sink into a lethargy that tends to slide into low mood and a tendency to feel sorry for myself. It's a very individual decision. Good luck
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Re: Has anyone quit work?

Postby FluppyPuffy » Sun Dec 06, 2015 10:33 pm

Have you been provided with an explanation as to why your request to work from home has been refused??? If not, then maybe you need to ask about it, as under The Equalities Act, an employer has an obligation to an employee with an illness/disability to explore the possibility of what could be done to help the employee continue in their role with their disability/illness taken into consideration.

The types of changes will vary from job~to~job, but can include things such as ergonomic equipment, changes to working hours, location etc. There are people who can work with both you and your employer to see what could be helpful, as well as implementing any changes. If you have a union rep, they should be able to advise you about this, or there are Disability Employment Advisers based in job centres who could provide you with info.
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Re: Has anyone quit work?

Postby migrembe » Sun Dec 06, 2015 11:19 pm

I was a staff nurse and had to give up work at 48 after a fall down stairs. As for keeping busy i am often in too much pain or too fatigued to care, but I do read a lot.
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Re: Has anyone quit work?

Postby Crystal pink » Mon Dec 07, 2015 1:19 am

Some days I'm too tired, too exhausted, to actually want to do much of anything.. Due to having good days/bad days, I just cannot commit to anything on a regular basis. Like most of us here, I have to take each day as it comes.

I also do card making, always got a jig saw on the go, I've got my PC, I go to beading class most weeks. Sometimes that takes a lot of effort just to shower, dress, hair, and drive just 1/4 of a mile.. but I get there most of the time.

Before I started struggling and found out why... Fibro, I was working full time, but activities faded away..

I can truthfully say, once or twice a YEAR, I will have a run of 3 or 4 miraculous painfree days when I can WALK absolutely normal.. I feel unbelievably great!!! If only those days would last longer or be more frequent!!

So yes, I had to give up work, the sleepless nights were a big contributor.

I won 2 tribunals (DHSS). The sleepless nights was a huge factor at the time.

It's surprising how you will adjust to not working. You'll find a hobby to suit yourself which will help pass the time.
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Re: Has anyone quit work?

Postby Susan Stokes » Mon Dec 07, 2015 11:27 am

After dropping down to part-time I finally had to take early retirement. The main thing is having an interest or hobby which can take you out of yourself for a while. You won't always feel like doing things, but if you do break it down in to short spells, don't overdo it.
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Re: Has anyone quit work?

Postby scoke » Mon Dec 07, 2015 11:47 am

That's exactly it, Susan Stokes, I have so many things in my list that I do (see above) because I lose concentration easily, my fingers won't always hold a book, a pencil, scissors, a paintbrush, I might not be able to walk or to brave the weather so I have loads of different things on the go so there's almost always smashing yo keep me occupied
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Re: Has anyone quit work?

Postby JanetB » Mon Dec 07, 2015 5:17 pm

Although I've only recently been diagnosed with fibro I've not worked since 2003 when I had major surgery for cancer and was made redundant. Afterwards I never felt truly well again and have had a wide variety of symptoms since then. I kept my mind occupied by studying for a degree with the Open University and since graduating in 2010 have done other online studying.

Without the symptoms that I now know are part of fibro I could probably have worked once I recovered from the surgery and got used to a different regime.

I did voluntary work for a while but only 2 to 3 hours per week, I really enjoyed this.

Its important to have social contact if you aren't working so try to find other men or women who you can meet up with for a chat.

Working when you get home too exhausted to do anything else and in pain is not good for one.
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Re: Has anyone quit work?

Postby SchroedingersCat » Mon Dec 07, 2015 7:28 pm

I'm in my third week of not working. I didn't quit because of FM, but because I hated my job, was bored rigid, and my OH got a promotion allowing me to take a career break for a while. I'm hoping to start something new and exciting a couple of days a week in the new year, and after that, I may extend to temping on my other days. I've been incredibly busy, have not been bored for a second, and have walked the dog for miles - he thinks he's died and gone to doggy heaven. I cannot imagine being bored without work, I have so many hobbies and a big house and garden that take a lot of work, but then I'm in much better shape physically than the vast majority of FM sufferers as far as I can make out. Get some hobbies that involve making things and you'll not be bored.
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Re: Has anyone quit work?

Postby Natasa » Tue Dec 08, 2015 11:38 pm

No, I work full time as a housekeeper at a residential home and it is hard. I push through and am one of the quicker, "better" workers and I try my best to not let the pain show while there. However when I get home I am done, I get in shower, grab a snack to eat and that is it for my day. I spend the rest of it in bed. I cannot imagine how I would cope if I had a family (not just hubby like now but kids as well) and responsibilities of cooking and doing all that extra stuff.
Then I hope for a bit of rest over night and start it all over the next day.
I am too frightened to quit work, both for financial reasons as well as ... I don't know... letting it "beat me"... if that makes sense?
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