8 things not to say to someone with fibromyalgia

All your fibromyalgia experiences, questions and answers.

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8 things not to say to someone with fibromyalgia

Postby Claire'scomfycorner » Tue Jun 21, 2016 1:46 pm

Good afternoon

My latest blog post is about things not to say to someone with fibromyalgia:

http://clairescomfycorner.com/2016/06/2 ... romyalgia/

Is there anything else that people say that really annoys you?

Claire
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Re: 8 things not to say to someone with fibromyalgia

Postby Garyl » Tue Jun 21, 2016 1:57 pm

It is all in your head.
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Re: 8 things not to say to someone with fibromyalgia

Postby Claire'scomfycorner » Tue Jun 21, 2016 2:00 pm

Yes! That really makes me angry :nono:
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Re: 8 things not to say to someone with fibromyalgia

Postby FluppyPuffy » Tue Jun 21, 2016 3:05 pm

Pull yourself together and get on with things.....

Is that a real illness/condition???

If you were to get more sleep/exercise more and push yourself you'd be so much better.....
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Re: 8 things not to say to someone with fibromyalgia

Postby Claire'scomfycorner » Tue Jun 21, 2016 3:10 pm

Grrrrrrr :yikes: FluppyPuffy!

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Re: 8 things not to say to someone with fibromyalgia

Postby Tantalus » Tue Jun 21, 2016 9:28 pm

I'll tell you a great one I got from my DAD before he really understood that I was genuinely chronically ill:

"You've got to decide what you're going to do, you can't be disabled for the rest of your life!"

I've no idea what was going through his head when he said that!
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Re: 8 things not to say to someone with fibromyalgia

Postby Claire'scomfycorner » Tue Jun 21, 2016 9:30 pm

Oh wow! He really didn't understand fibro when he said that. I'm glad that he understands now.

Claire
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Re: 8 things not to say to someone with fibromyalgia

Postby LindyM66 » Wed Jun 22, 2016 7:06 am

Like many of us, I rely on medication to enable me to function. Without it, I can hardly move. I'm like the tin man, and seize up. I can hardly wipe my own backside!
So, I find it a tad frustrating when people who KNOW what I was like without medication say :-

" You need to watch you don't end up addicted to those meds".
Really????
FM is a chronic, life long condition. Yes, I'm glad it's not a life threatening one, but it is EXTREMELY debilitating. If it's a toss up, between sitting in a chair, shuffling across the floor, being in horrendous pain all the time, or taking medication that gives me some life back, I know what I'd prefer. So no, becoming addicted to the medication that allows me my life, doesn't worry me one jot!
If I had a heart issue, and required medication, that would be acceptable.
People who are insensitive, or dismissive to our condition, really need to spend a day in our bodies. I wonder what they would say?

Much Love
Lindy x
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Re: 8 things not to say to someone with fibromyalgia

Postby Claire'scomfycorner » Wed Jun 22, 2016 10:38 am

Sending you an understanding hug. I'm the same Lindy, I have to take pain meds to take the edge off the pain and to function. Fibro is definitely debilitating and I too wish they could experience our pain, even if it was just for 5 minutes!

Have a good day :-) I hope it's a low pain one.

Hugs
Claire
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