advice and help needed!

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advice and help needed!

Postby kittycatclare » Tue Aug 09, 2016 10:57 am

Hi there .. I'm new to this forum a good friend recommended me to join this forum .. my name is clare and I was recently diagnosed last year (although suffering for many many years beforehand)
Although I'm starting to come to terms with things I have only told a minimal amount of people close friends and work colleagues .. I've kind of brush it under the carpet when I comes to my parents and as far as they are concerned I had complications with an injury .. I feel almost as if it is too late to explain but also keeping it from them is tearing me a part .. I don't even know where to start and was hoping to get a point in the right direction .. from people that have been in the same boat
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Re: advice and help needed!

Postby *Lisa* » Tue Aug 09, 2016 2:53 pm

I would say I didn't know what was wrong and now that you have confirmation that its fibro your able to tell them and that you didn't say anything sooner as you didn't want them to worry and wasn't sure yourself. You also needed some time to yourself to get it around your own head before you explained to others.

There is some information around the boards that help express what fibro is to family and friends which may help if they don't understand of get confused.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: advice and help needed!

Postby LindyM66 » Wed Aug 10, 2016 6:27 am

Hi Clare,

I think what Lisa has suggested would be a good idea. Just tell them that you didn't want to worry them, until you had confirmation.
It may also be helpful, to download and print off some info about FM, for them.
I tend to find it's helpful, telling people who "need to know", as this allows them to understand our ups and downs (both physical and emotional). It also allows us to be supported.
I remember informing my line manager about my diagnosis, and she asked " is there things we can do to help you?". My reply was "what do you know about FM". Like alot of people, she only had heard of it. I said to her, that it would be helpful if she could educate herself on FM, as it would be impossible for her to support me, if she didn't have an understanding of what FM is, and how it can affect a person. Then I would have a chat with her about how it affects me.
I guess the point of this long winded blab, is this - if people don't know, they can't help :-)
Keep on keeping on Clare.

Much Love
Lindy x
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Re: advice and help needed!

Postby kittycatclare » Thu Aug 11, 2016 7:39 am

Thank you ladies for your replies
I think that that is a good way of aproaching the subject .. I'm finally getting refered to a specialist which hopefully will give me more infor that I can share with them
I too am in full time work .. my managers know and I've changed job to suit me better and they've always got an eye out to check I'm ok and have also said anything I need just say .. I count myself as very lucky in that respect .. my bosses won't ever fully understand but at least I know there ears are open and we'll as there office doors
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