Sjogrens Syndrome

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Sjogrens Syndrome

Postby kitten » Fri Nov 11, 2016 4:56 pm

Well after being diagnosed with Meibomian Gland Dysfunction and Blepharitis it would seem that this eye condition goes along with the autoimmune condition called Sjogren's Syndrome a lot of the symptoms are the same as Fibro

I have a lot of the symptoms dry eyes fatigue muscle pain really all the lovely symptoms that go along with the Fibro , now going for blood test to see if it is the Sjogren's . I notice on the blood form a test for RA as well ,had some blood work done about 6 months ago RA was one of them that one came back slightly raised but not enough to be concerned about !!!!! waiting for an appointment to see a eye specialist , Have had to increase my eyes drops to 5 times a day and then the thicker gel twice a day wake up in the night and have been putting them in then . can't read etc for long all goes blurred

Has any one been diagnosed with both fibro and Sjogren's , my gp said a strange thing last night when I went to see him he arranged for the blood's to be done and a phone call to the hospital later in the day look at me and said "of course you have Fibromyalgia as well "

Has any one else got both these condition
kitten
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Re: Sjogrens Syndrome

Postby mauriziodel » Sat Nov 12, 2016 12:47 am

Hi I was diagnosed Sjogren Syndromes in 2013 but had it for many years. I also have fibromyalgia ,osteoarthritis and many others. The anti nuclear blood test for sjogren are that Both or one antibodies ( LA and/or RO )are positives.in my case I got the high RO and make me a systemic primary sjogren syndromes patient. Gp are very generic as well as nhs rheumatologist. I have to pay private consultation with a rheumatologist whom specific understand this autoimmune systemic diseases..I do not know in what part of the uk you reside.i go and see a sjogren syndromes doctor in Swindon at the great Western hospital.she is fantastic .and very reasonable.she is also the president of the British Sjogren's syndrome association (BSSA)
.Regards mauriziodel
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Re: Sjogrens Syndrome

Postby kitten » Sat Nov 12, 2016 3:40 pm

Thank you for taking the time to reply and explaining the procedure
I had a check of what he had ticked and notice that he has also ticked for thyroid ,but not T4 test and also a full blood count

I do have OA in fingers and neck but we all know that OA does not show up as an antiinflammatory

I moved to West Wales 3 years ago, small sea side resort the medical practice seems very good 3 gp etc for a population of about 1200 before then I lived in South Cheshire , and I have to say as far as getting a Dr's appointment here ,it's very good not only do they have an appointment system they still have an open surgery, the draw back of living in a small resort is the distance you have too travel for the hospital's . but then they are closing hospital all the country and people are having to travel all over England now as well .

What do you take if anything for Sjogrens ? do you have regular check ups ? does it goes worse ? or does medication keep it on a level?

Sorry for so many question

Thanks again
xx
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Re: Sjogrens Syndrome

Postby kitten » Sat Nov 12, 2016 3:45 pm

Forgot to mention that he his also checking RH factor
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