At the end of my tether!!

All your fibromyalgia experiences, questions and answers.

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At the end of my tether!!

Postby judipat » Thu Jan 26, 2017 7:50 am

Hi all,
Well, where do I start! Ah yes, 7 months ago I went to the GP about hip pain which was worsening. I know I have osteoarthritis in my hips so gp sent me for an xray to see what changes there were - there were some insignificant changes but not enough to explain the pain I was in. GP sent me for physio, after 4 weeks it was even worse! Next, she changed my Meds to gabapentin and 30/500 paracetamol and codeine - went through hell for a few weeks with side effects. Still not much relief. Next was a MRI which came back with 2 herniated discs L4 and L5, several other things and arthritis.its sciatica. OK, now we are getting somewhere, only by this time im in agony most days. I think I have a fairly high pain threshold, ive had 3 children with only gas and air and I've had fibro for nearly 20 years, but boy! I have never felt pain like this. The only comfortable position is lying flat!!
So, gp refers me to the royal orthopedic hospital in Birmingham to see consultant and possible epidural injections, but guess what, there's a 13 week waiting list aghhhhhhhhhh. Another 13 weeks of this fills me with absolute horror.
As you can imagine, all of the above has sent my fibro and anxiety into meltdown and needless to say I feel very depressed.
Sorry it's been a bit of a rant but had to get it out there
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Re: At the end of my tether!!

Postby *Lisa* » Thu Jan 26, 2017 12:13 pm


Thats a long time to wait whilst your in so much pain :shock:

I was just wondering whilst waiting if accupuncture maybe of any help? Just something to tide you over? Just a thought :-)
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: At the end of my tether!!

Postby LindyM66 » Thu Jan 26, 2017 8:16 pm

It's awful having to wait 3 months for an appointment to come through. Before being diagnosed, I remember sitting in my GPs consulting room. I could barely walk or move. He looked at me, with a sneer on his face, and flipped a card towards me with contact numbers for physio, and told me to self refer. I asked him, " what do you suggest I do for the 3 months til an appointment comes through?"
Does heat help you? I find heat helps me big time. My ass muscles constantly ache like billy oh - and I have an electric heat pad which I sit on - helps so much.

Much Love
Lindy x
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Re: At the end of my tether!!

Postby Gaia » Fri Jan 27, 2017 7:53 pm

Google for sciatica exercises. They are gentle exercises which help to stretch out the pinched nerve and give temporary relief, which may help tide you over until you can see the specialist.

I've had sciatica for many years, as well as 4x surgery for herniated discs, but there is only so much they can do surgically for sciatica, so they will get you to do the exercises before they consider surgery anyway. I've had 4 lots of surgery for it, but the third and fourth times were to cut away scar tissue which was left by the previous two operations, so do be aware that it may mean a lifetime of gentle stretching exercises, even if you have surgery.
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Re: At the end of my tether!!

Postby judipat » Sat Jan 28, 2017 10:33 am

Hi again
Thanks for your replies and suggestions.
I've tried everything under the sun, nothing seems to help much. Yes, heat does ease it, I tend to put my electric blanket on its highest and lie flat which feels great, but can't do that all day!!! The frustrating thing is, the more I try to do for myself, the worse it is. Oh well! I think I may have to rattle a few cages!
Thanks again xx
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