Still waiting

All your fibromyalgia experiences, questions and answers.

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Still waiting

Postby LindyM66 » Wed Apr 26, 2017 7:25 am

Hi All

Not been around mucb the last couple of weeks. I had to take sick leave from work. I fell in the kitchen, and couldn't get back up. Ian, my husband, was at work (nightshift). I had to do a (rather impressive actually) commando crawl, over the floor to the dining chair, and managed to get myself up -after a fashion! Anyhoo, I went to work the rest of that week. Apart from being a bit sore where I hit the deck, I wasn't too bad. I didn't lose my balance, feel faint - nowt. My legs just stopped but my body didn't, and I face planked the floor.
However, I have been getting, what I can only describe as electric shocks, without the actual shock, sensations, from my feet, right up my legs. I went back to the GP, and he basically said, there's nothing more he can do, until I see the neurologist. He advised me to call the referral management people, which I did, and they advised me that I had been on the waiting list for 13 weeks, and was looking at another 3 month wait - at least. So I informed the GP of this, and I'm assuming that he's writing to them again, as a matter of urgency.
I had to take 2 weeks off work as my mobility has been dreadful. I'm like a drunken bum! Bashing into everything. And my pain has increased like billy oh!
My departmental manager has been supportive, and told me not to rush back ( due back next Tuesday). He had no idea that I'd fallen, or that " things had been as difficult" for me - as my line manager hasapparently not been informing him fully
The job I do requires alot of driving, and I'm in and out various care facilities and peoples homes. My thoughts at present are, WTF if I fall in any of these places? I'm usually quite upbeat, and use alot of humour, bit if I'm being truthful, this fall has knocked my confidence a bit. The GP has said he thinks it may be something more than fibro - MS! So my mind is filled with allsorts at present.
As Arnie says "I'll be back"

Much Love to you all
Lindy x
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LindyM66
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Re: Still waiting

Postby LindyM66 » Wed Apr 26, 2017 8:57 pm

Hi Lisa

I use a crutch when out of the house. I didnt seem to feel off balance, nor dizzy. My legs just seemed to stop bur my bodt kept going, and wallop! Hit the deck with a bang.
Make!s u kinda wary doesnt it.
I have THE fatigue from hell just now. Im exhausted with every little thing. I slept on and off all day today, and just cozied into bed.
If I dont feel any better by next week, it's doubtful I'll manage back to work.

Hole everyone gets some restful sleep. Please god! I can't cope without sleep.

Nidge- I meant to put his on your post, have you tried a slide sheet in bed. I have one as I was really struggling to turn round. Great thing!

Nite nite folks
Much Love
Lindy x
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LindyM66
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Posts: 280
Joined: Wed May 04, 2016 8:30 pm
Location: Glasgow, Scotland

Re: Still waiting

Postby LindyM66 » Thu Apr 27, 2017 5:13 pm

Thank you, Lisa.

I've bought one of those Medipens. Should arrive next week. Cartridges are bloomin expensive, but if it helps with the pain, it'll be worth it.
Keep you posted.

Much Love
Lindy x
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LindyM66
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Posts: 280
Joined: Wed May 04, 2016 8:30 pm
Location: Glasgow, Scotland


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