One to show the non believer's

All your fibromyalgia experiences, questions and answers.

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Re: One to show the non believer's

Postby FluppyPuffy » Mon Jan 05, 2015 11:30 pm

Queenie, you can print copies of it up to give to people. When doing that, or sharing it on other sites, all Shaz {who wrote it} would ask is that a note of who had written it, and where it had come from was added as people had tried to claim it as their creation. And altho Shaz hasn't been on here with us for a good while now, we continue to ask members to add the acknowledgement on her behalf. So please feel free to print it up or share in other ways as every little bit of awareness we can raise is always good.

Every once in a while, a dog enters your life and changes everything xx
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: One to show the non believer's

Postby shell123 » Fri Jan 16, 2015 2:05 am

hi the im new here and so confused,
I was diagnosed with fibromyaligia 2 days ago cant seem to get my head around it ,iv been suffering with pain for a few years,iv read the post written by fluppypuppy and I think its brilliant because its just the way I am I have pain constant from the top of my scalp to my feet well you all can a carer for my 21 year old daughter and feil quilty because im the 1 now that has to ask for help,i never thought day to day life could be so hard,iv been on gabapentin so far but not doing much good been on them for 2 months,i don't know were to turn for advice or help imso scared my children and hubby don't understand they thought I was making the whole thing up until I was told what I had iv asked them to read fluppys post but their not interested ,my hubby says I need to do loads of exersice and use his weights lol that's a joke as some days I struggle to lift the kettle or get out of bed,iv looked for a support group in Cannock but cant find one does any 1 know were their is one near my area as I cant travel far would be most grateful for any advice as im alone in my fight ,ty michelle xxxx
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Re: One to show the non believer's

Postby chezz » Mon Feb 23, 2015 3:07 pm

sooo well said. I will also print this off. Thank you for taking the time to write it all down. hope your fingers didn't suffer for to long.... chez. x
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Re: One to show the non believer's

Postby painedprincess » Mon Mar 02, 2015 5:54 pm

This is what I need to show people as my illness has caused a lot of disagreements in my family.
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Re: One to show the non believer's

Postby TrayC » Thu Mar 05, 2015 12:30 pm

I just wanted to thank you Shazq for putting this into words that can be shared with the world of non believer's and sadly there are so many of them both professionally including some of our family and friends :(

I have printed this off to give to all the non believer's who have questioned my sanity for many years :(

I have this illness like so many others and it is not through choice or through pretence or because we are seeking attention.

So many of us would like to say to those non believers "who would ever wish this illness on another human being let alone themselves" certainly not any of us who suffer every minute of everyday....there is no light at the end of our tunnel :(

All we ask for is for others to believe that what we have is real, they believe that the pain we feel is real, and what we go through on a daily basis just to make it through each day is real and feels matter how many non believers there are out there believe in us as this is real and wont go way.

To all of my fibro friends out there.....I believe you because I know you believe me and with this we share our pain and respect for each other and these feelings they go along way across entire continents and around the world we will share and maybe we will make more non believers into believers one day at a time.

With love and respect.....TrayC xXx
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Re: One to show the non believer's

Postby Saffie » Thu Apr 02, 2015 2:26 pm

That is so right. You have put into words all that my fibrofog prevents me from doing.

Thank you so much.
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Re: One to show the non believer's

Postby ixel-chick » Sat Apr 11, 2015 5:02 pm

Just spotted this in a group, and thought it was good at portraying how fibro feels like:
10847563.jpg (93.59 KiB) Viewed 7210 times
☐ Fibro Mode / ☑ Normal Mode
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Re: One to show the non believer's

Postby Yorkbelle77 » Wed Apr 22, 2015 10:55 pm

After having a attendance review today and trying to explain FM, this would have been a great way to start. May share with my doubtful employer! X
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Re: One to show the non believer's

Postby scatty » Tue Apr 28, 2015 3:03 pm

hi everybody,, im scatty,,,never been on a sit before,,,i was being nosey,Properly ready to come out off my shell,, because off this one lady,, she was the first one i read,,one to show the none delivers,,,,,,,,,i read it and read it and cried and cried, its made a big different to me,, so this is all new to me,,,i was told i had FM about 10 years go,,never been explained to me wat it all about,, iv only read a little, becouses at the time i did not believe i had it, my doc dident no a lot, bless him, his now retired, :( , pain management dident explain to me ,my daughter has been told she has fm, as her doctor no,s a lot on FM, she got it really bad, shes mostly in bed, she has to see doc every month to motioner her,and all the drugs she,s on,,,,, you know the hardiest thing with all this,it hurts to see my daughter in pain all the time,,,i carnt do nothing for her,, now that's hard,,,, to see your baby going throw wot your going throw,,, becouses we no wot the pain is like,,, its there and its reel,, not in our head,s there's nothing i can do for her, thats the hardiest thing to do on this plaint?????, i no,,i keep my self to myself, so i haven't got to explain how or wot im filling that day,, so its very easy to stay at home,, im soooooooooooooooooooooooooooooooooooooo gratefull for this lady for writing about how we fill, no body could right this better,, yes we fill different thing,s on different days.and we suffer in silence,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,.,,,,,,,,,,,,,BUT WE STILL HAVE PAIN,,, ever day 24,7,,,,,,,,thank you,,,scatty,,,, fairy_dust
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Re: One to show the non believer's

Postby Jud.smiles » Sun Sep 27, 2015 2:07 pm

I still dont have a diagnosis but everthing is "pointing"towards fibromyalgia ... all tests come back with inconclusive results
Your post is unreal, am 100% sure beyond any doubt in my mind that my condition is FMS you have even included symtoms I had no clue were even connected ... I am taking a copy to my dr on Wednesday if that is ok?
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Re: One to show the non believer's

Postby Ranja eS » Wed Oct 14, 2015 4:35 am

I was crying when I was reading this. Thank you for writing this. Always when I'm trying to explain why I am like this and especially when I'm not looking sick for others I'm crying. That's why I am avoiding this topic. People are thinking that I'm lazy crybaby. Right now I can show them your text and maybe they will understand a little bit of my suffering.
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Re: One to show the non believer's

Postby lynda 24 » Mon Nov 30, 2015 3:49 pm

it sums everything i feel so well xx thank you
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Re: One to show the non believer's

Postby Donna-e » Tue Dec 01, 2015 12:12 am

Beautifully written explanation of my life....and a brilliant first encounter inside the forum.
tears have fallen, tears that i can't really explain...smiling tears, thank you
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Re: One to show the non believer's

Postby Daydream » Tue Dec 01, 2015 9:41 pm

Thank you for summing FSM up so very well.

I need to show this to my Husband as after years of suffering in silence as I thought I was going nuts!
I finally get my diagnosis and he really doesn't understand, brilliant it will help in so many ways :-)

Butterfly hugs,

Daydream xx

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Re: One to show the non believer's

Postby willowthewisp » Tue Apr 03, 2018 2:24 pm

I only joined this site yesterday. I was diagnosed in 2007. I so wished I had read this before and showed it to my doctor yesterday.

I left my surgery in tears and felt I was going insane. I was told by Doctor that FM is all in my head and should look at my relationship with my husband and grown up kids. (my husband is the most caring loving man and I have a wonderful relationship with my children) Basically my doctor inferred I had depression! Yes I do I had a breakdown 6 years ago did 2 years of hard counselling which was the best thing i have EVER DONE. I refused antidepressants and I was the one who chose the counselling route. It worked for me. Depression never leaves you I understand that, but to be told that FM is in my mind and there is nothing any one could do for me except take more amitriptyline (I am on 10mg a night to help me sleep) I went to the Drs as I am having a bad flare this is the first time in 3 years that I needed to go and see a doctor regarding this condition. I am on painkillers amitriptyline and Ibuprofen which is on a repeat prescription. I felt I wanted to see the specialist as not seen a specialist since i was diagnosed. The Rheumatoid specialist gave me the diagnoses then said there's nothing they can do so I was discharged. I have had to find out for myself any info regarding Fibro.
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