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My pain started in my elbow and spread to my shoulder within 3 weeks. Agony wasn't the word. 2 steroid injections later I felt a lot better, but had no idea about what was to come. Had to give up work and took a year to get back on my feet.
That was 14 years ago. Now I have since had 2 children who are now 12 and 10 but I think it helps that they've never known me to be any different. Mum has Fibromyalgia, but to them I'm just Mum. They know I have bad days and good days and help me out when it's been a particularly bad week.
I too have found it frustrating to try and explain to people, but as the years go on they do tend to understand bits. I have completely changed my lifestyle now to make sure that the bad days are less and less. I still manage to work and I declared my disability and work for a very understanding organisation with an understanding boss. I have a mobility scooter - but can't get around because the organisation unfortunately has treated its equal access as a tick box exercise rather than an equality issue.
Having FMS and being a single mum is very difficult at times. I long for the days in the summer when I can go slowly because the kids are enjoying the sunshine! If I could move to a warmer country I definitely would.
The changes that I now have in my life are motability car, scooter, walking sticks, online shopping (never ever go shopping any more because it is so draining), xbox and sky movies to keep me and the kids entertained, tumble dryer, robot cleaner (one of the best things I ever bought!) Now I know some people may look at that list and think it all costs money - even the £5 for Tesco delivery - however, I don't spend money on much else so it means I have money that goes on these things. Spending money on these things means I have a better quality of life because I have a little bit more energy than I would do (or a lot more at times) if I did the shopping or ironing or tried to hang out the washing on the line.
It is difficult and I've just found a FM support group in my area after living here for 9 years! The Dr didn't know about it, but that doesn't surprise me. Apart from the pills, he's not interested in helping me. Went to the pain clinic and it was a complete waste of time. I'm now having massages and reflexology to help me out.
So glad this online group forum is here, sorry for the waffle!
Brain fog is a big problem and affecting my work/life more of late, but having a diary makes sure I at least remember some thing.
Hope everyone isn't having too much of a bad day.
Karen

Working to live, not living to work. Keep fighting, keep positive and don't let it get you down!