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The UKFibromyalgia Forums • View topic - Fibromyalgia - Prison sentence of pain
Page 1 of 3

Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 12:56 pm
by Claire Spong
Fibromyalgia – Prison sentence of pain

I didn’t ask for this, why did it choose me?
But now I have it, why can’t people see
The pain I feel is etched upon my face?
But of it they seem to see no trace.
To me it is obvious, all-encompassing and severe,
To them; “Oh yes, I get aches too dear”.
After a list of their minor aches and pains,
How do I then find the energy to explain?
The exhaustion that makes you tired before you’re even out of bed,
The way the Fibro messes with your head.
The pain that is there, daily, from top to toe,
No let up, no way to make it go.
The way some days I can barely walk,
And other days I can’t find the words to talk.
The way I have to plan everything I do,
Because if you do too much Fibro bites back at you.
Too much exertion means the next day in bed,
Or dragging around limbs made of lead.
The way just going upstairs makes my legs fill with pain,
Then wobble and shake as I go down them again.
The depression I feel that this is now me forever,
The prison sentence of pain that will never get better.
The fear of how much worse it could get,
A wheelchair? Housebound? I don’t know yet.
If I am lucky I won’t get much worse,
But even so it is still a curse,
To know that I can’t do the simplest of things,
Like ironing or gardening or emptying the bins,
Without forward planning and lots of breaks,
Which quadruples the time it used to take,
To try to avoid being struck by pain,
That will force me to be bed-bound again.
To have to refuse things I’d like to do,
Because I can’t manage it, is upsetting too.
How I wish I could go back to how I used to be,
Little did I know then what was waiting for me.
If I had known I would have done more,
Had children, got married, had a career I adore.
Now, for me, all those dreams lie in tatters,
And because of that my heart just feels battered.
But the ability and energy just isn’t there,
My body’s in pain just washing my hair.
Just getting your way through each day is a chore,
So there is no way for the things I hoped for.
So if people curse me and say I’m a quitter,
Make sure you tell them that you know me better,
Because you’ve read this poem and have the insight,
As to how having Fibro can change someone’s life.
And if they don’t believe you, tell them again,
That no-one would want this prison sentence of pain.

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 2:40 pm
by MichelleJ
Claire, that sums living with fibro up so well.

Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 2:46 pm
by Niki d
An amazing poem Clare only a person with fibro could write some think like this.
When you know somebody feels exactly like you do life seems a bit more bearable.
Hugs and flowers niki 

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 3:24 pm
by carrieokay
Brilliant - one for the unbelievers!
Sorry I can't cheer you up today, will try again tomorrow.
x

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 5:04 pm
by Claire Spong
It cheers me up just to know you appreciate the poem. Unfortunately none of my friends on Facebook would appear to have read it! Maybe I should give them the benefit of the doubt, after all it is a nice day so maybe they are out and they haven't been on Facebook yet today!

Sent from my HTC Wildfire using Tapatalk

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 5:13 pm
by shazq
Very good Claire. :clap: :clap: :clap:

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 8:01 pm
by Nellyphant
Brilliant! Going to save that. Thanks for sharing.

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sat Apr 23, 2011 9:04 pm
by denys
Nice one Claire :clap:

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Sun Apr 24, 2011 10:16 pm
by angelina101
wow thanx for this poem claire its exactly how i feel.its brilliant.i wish i could explain it so well.x

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Mon Apr 25, 2011 10:47 am
by fabme
So true, it defiantly feels like that somedays :(

Thanks
Fab :D

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Mon Apr 25, 2011 5:28 pm
by Ellen Tracey
:clap: :hugs: :flowers:

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Tue Apr 26, 2011 1:05 am
by crystalkaz
:clap: :clap: Claire thats brilliant,sums up exactly how im feeling at moment, you just do not know how your going to feel from the time you wake up...every day brings different symptoms for us to cope with. Thanks for sharing your poem :hugs: :flowers:

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Tue Apr 26, 2011 5:55 pm
by emily73
Hi Clare

What a great poem it hits the spot so well, it explains how we all feel and i have saved it to explain to people how i feel as i never know how to put it to words.

Brill

Emily xx

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Wed Jul 20, 2011 5:56 pm
by Ellen Tracey
Just brilliant :clap:

Re: Fibromyalgia - Prison sentence of pain

PostPosted: Thu Jul 21, 2011 2:38 pm
by loubie
:clap: :clap: :hugs: :flowers: :blowkiss: