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The UKFibromyalgia Forums • View topic - Pain Clinic, such a Pain!



Pain Clinic, such a Pain!

Anything to do with the NHS or Private Healthcare.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Pain Clinic, such a Pain!

Postby shazq » Sat Aug 13, 2011 9:31 pm

:goodluck1: Caroline. :fingerscrossed: someone else on the pain clinic might live near you.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Pain Clinic, such a Pain!

Postby Loz23McG » Sat Aug 20, 2011 7:20 pm

It's really interesting to see the wide range of experiences people have had at Pain Clinics and I have to say I have had the same thing myself. Bit of background: I've been unwell now for 4 years and 5 months and have been scanned, swabbed, prodded, injected and drained - but still no one seems to want to tell me what I have.

17 months ago the Rhumy I was seeing told me I had a "Fibromyalgia-type condition" and referred me to the Pain Clinic at UCLH (London). Unfortunately I found out it was going to be over a year before I was seen and I was tempted to jack it all in - just shut up and take the pills and watch my life get slowly taken from me :( . In a moment of angerI fought back and stumped up some cash to see a private doctor; he said I had a "Fibromyalgia-type condition" (again the avoidance of just saying it!) and referred me to a local Pain Clinic in Hove. I only had to wait a week and so duly went, and was subjected to a rather harsh presentation where I and a group of others were told we could attend a course but *only* if we were prepared to swear that we had *completely* given up any hope of ever being better. We were warned that we only had one shot - turn up late and you're off, miss a class for ANY reason -sickness, death of a relative, whatever - and you're off, make any kind of slip up in class and you're off - and once you're off there's no coming back - EVER! :shock: And that was it, no other options, no chance to talk about trying other medication, no chance to ask if there was anything else that I could do that might help, nothing. I was appalled and so disheartened I nearly didn't go to the appointment at UCLH - I presumed it would be the same horrible experience I'd had at Hove.

I could not have been more wrong.

At UCLH I was apologised to about the wait and about the mess the NHS have made of diagnosing and helping me; I was listened to and helped to describe my pre-pain life and my present hell; I was genuinely comforted when, to my horror and surprise, I burst into tears; I was given an X-ray, new blood tests, an MRI and loads of new medication options! I was basically given back my Future and I now have something in my life to aim for. :D It was so wonderful I cried several times on the train home and went back to work with a red nose and eyes. :oops:

So my message is: Please don't give up hope, not all pain Clinics are bad. Don't take the first answer you're given as The Be All And End All; there are loads of options in healthcare, lots of Pain Clinics out there to choose from, it just sometimes takes a bit of time/research to find the best one for you, and this site and the people on it are great for that. I was referred to UCLH in the first place as a result of a recommendation on here, so Thank You to everyone who makes this such a great place to be! :clap:
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Re: Pain Clinic, such a Pain!

Postby Angie D » Fri Sep 02, 2011 1:09 pm

Hi folks
I must admit I was sent to pain clinic after being discharged from rheumatology the doctor could not have been nicer , I was prescribed gabapentin and was given a leaflet on how to increase my dose the doctor called me at home on a few occasions to ask how I was getting on and over time now on 900mg x 3 daily ( not 900mg as stated on newbie memory slips some times :roll: )It does help but pain is still there, they also sent me to another member of the pain team for lesson on using tens machine I have used it but should maybe use it more, again they called at home to ask how I was getting on with the tens .
The past two days have been not so good as pain in my feet are terrible even fell over last night trying to get up from the chair :oops: thank god it was at home and no where else.

Angie x
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Re: Pain Clinic, such a Pain!

Postby Roop » Wed Nov 09, 2011 6:13 pm

Hi everyone.
Can anyone tell me if they have had anesthetic injection in the neck. I'm waiting for my injection but worried about having it in my 5th and 6th vertebrae? that is where I need some relief as I can't in through this pain for much longer. Can anyone help?
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