I'm gonna scream! I've already cried!

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I'm gonna scream! I've already cried!

Postby Caz1980 » Wed Aug 17, 2011 11:07 am

I'm so so so angry, sad, down and just p!553d off with GPs! I dragged myself out of bed at half eight this morning to go to see my GP in open surgery as I haven't been able to get an appointment with her for weeks. When I got there I was told she was on holiday ( despite someone already saying on the phone yesterday she would be in ) so I had to see someone else. I explained that the pain killers I was on ( co codamol 30/500s ) were not helping enough as my pain is sooo much worse over the last six months and I also mentioned that taking eight a day only allowed me two weeks worth on repeat proscription so could he up the amount they gave me and give me something stronger for when I need it.
He did neither - told me I needed to come off the co codamols cause the dluoxitine I take should be enough for my fibro pain!!!!!!
I cried all the way home, why do doc's do this? I've spent most of the last six months in bed in too much pain to eat most of the time! What can I do? My normal GP doesn't really have a clue either and I've tried to find a GP with more knowledge of fibro but can't. I'm so frustrated and at the end if my tether now. Sorry to moan on but your the only ppl who understand! Hope everyone else had a better morning than me xx
Last edited by FluppyPuffy on Wed Aug 17, 2011 11:47 am, edited 1 time in total.
Reason: Edited profanity as on open forum
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Re: I'm gonna scream! I've already cried!

Postby FluppyPuffy » Wed Aug 17, 2011 12:00 pm

There seems to be a lot more people experiencing similar attitudes and comments from their GP as what you've had this morning Caz :grouphug: :grouphug:

Are there any other GPs in your surgery that you could make an appt with and see how they are with you :?: :?: Maybe even ask the staff when you make an appt if there is one who could have a better approach to you and FM :dunno: :dunno: The option after that would be to start looking for a new GP :shock: :shock:

I think it was denys who made a similar comment to this earlier today...........when you go in for an appt, tell your GP that you're seriously considering looking for a new one due to the way you've been treated and advised re your FM. It's a genuine and recognised condition with it's own pages on the NHS Choices site. There are treatment suggestions on there, and you want a GP who will work with you in finding the right thing, or combo of things that will make a difference to you.

A comment like the one you had this morning is just a sweeping generalisation. FM is as unique to each of us as are our fingerprints. Just because the duloxitine may be enough for one FMer, it doesn't mean that it is for you, or others.

I'm off my soapbox now, been up and down on it all morning, getting a bit dizzy and tired now :facepalm: :facepalm:
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Re: I'm gonna scream! I've already cried!

Postby Ldyalb » Wed Aug 17, 2011 2:39 pm

Everything Flup said. He has NO right to talk to a patient like that. There is no 'should' about anything medical, we're all different, we all respond differently to different medication, the same illness affects different people in different ways. I'm 23, I 'should' be able to tell the time, I 'should' be able to distinguish left from right, I 'should' be fit and healthy - thanks to dyspraxia, hypermobility and fibro I can't do, or am not, those things.

I can't believe he would say that you 'should' be fine with a certain type of medication, you've told him you're not, you're still in too much pain so he should prescribe you more relief. It reminds me of a GP I saw when I first became ill, at the time she suspected RA and got annoyed when I refused to take Ibuprofen (due to a former GP telling me I was reacting to it and should never take it (heart and chest pains and an irregular heartbeat)), she actually said 'oh you don't want to be allergic to Ibuprofen if you have Rheumatoid Arthritis' - well no, but that doesn't alter the fact that I AM allergic to it... plus if I did have the power to change that situation I'd opt for my health back rather than to be free of the allergy!

I'd seriously consider complaining, his bedside manner leaves much to be desired. It's Drs like that who scare vulnerable patients away from seeking medical help.
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Re: I'm gonna scream! I've already cried!

Postby denys » Wed Aug 17, 2011 3:21 pm

I agree with the others Caz, its not right and as Flup said there are more and more FM'ers having problems with their GP's at the moment its not right at all, make another appointment and stay strong YOU and only you know how bad your pain is and if you require something else then they need to take you seriously and prescribe something :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:

ps if anyone wants to swear can you use the little swearing smillie :swear1: :swear1: :swear1: :swear1: :swear1: thanks
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Re: I'm gonna scream! I've already cried!

Postby tonydin » Thu Aug 18, 2011 7:05 pm

hi caz im going to say something differnt from the others ,, the reason the docs are so cautios about medication is frightenly simple.
they know fibro wont kill you ,, but they also know that a lot of medications will if taken in large nos over a long time will .
this is why they try to not over prescribe ,

its alway a case of the benifits outwieghing the risks .
do the co codamol really improve your pian by a huge ammount , if they do then of course you should keep on them. i only use butrans patches they help but dont stop the pian at least i can cope with it nost of the time ,, if they had something that made me pain free i would take it regardless of risk , but they dont , only things that help a bit , that i would rather not take due to the long term risks my gp is very happy with my take on this as he is concered about the risks of over prescribing if they dont actualy relive the condition

just another angle as apparently one of the biggest causes of death is presciption medicines ?????? :yikes:
regards
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Re: I'm gonna scream! I've already cried!

Postby Nellyphant » Tue Aug 23, 2011 8:51 am

I take co-codomol alongside duloxetine and amitriptyline. I can't cope without them. They take some more of the edge off. I get mine prescribed by my GP. Maybe it's time you found a new GP surgery. I'm really lucky as I live in a village and my GP works by himself so I only see him. I went to see a pain specialist and he said that the meds my GP has put me on are perfect for fibro as I can't take gabapentine or pregabalin.
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I'm gonna scream! I've already cried!

Postby Caz1980 » Wed Aug 31, 2011 11:37 pm

Thanks so much for all your replies! I agree with what you are saying Tony and I don't wAnt to take anything that doesn't really benefit me either which is why I came off the amitrip. I just need a doc who is prepared to help me find something that does take the edge off the pain and am fighting for a referral to a specialist for help. X
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Re: I'm gonna scream! I've already cried!

Postby caroleirene » Mon Nov 28, 2011 12:59 am

:roll: Hi my name is Carole i am new to the forum.i take a cocktail of meds for my fibro
including Amitripyline, codeine phosphate15mg, sertraline and bacofen, plus
paracetomol and ibrufen.My gp is very understandig but i am finding work increasingly
difficult and i am off work at the mo with sciatica he said he would not put fibro
on my certificate as i was off in july and august.I work as a cleaner at the university
it is heavy tiring work on my feet for 6hrs is taking its toll ,i can not afford to give
up has anyone got any advise they could share with me i feel lonely and depressed
and have cried alot at work due to pain and tiredness Thank you Cx
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Re: I'm gonna scream! I've already cried!

Postby ribbons » Mon Nov 28, 2011 10:55 am

Caz, put a complaint in to the practice manager about the gp's attitude and question whether he is up to date, if no-one complains, nothing changes, by all means find another one but if no-one is complaining they will treat the next fibro patient the same x

Carole, get in touch with a disability employment advisor, they may be able to help. If you do a search on here there is a thread from someone who used to be one , welcome btw x
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Re: I'm gonna scream! I've already cried!

Postby caroleirene » Mon Nov 28, 2011 4:10 pm

Thank you i will try that :) will let you know how it goes x
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