Doctor Required, please help! Newly Diagnosed with FMS

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Doctor Required, please help! Newly Diagnosed with FMS

Postby Lifestyles » Thu Oct 25, 2007 1:26 pm

Hi

I have just joined this forum as I have recently been told that finally after 5 years of problems, pain + deterioration that I have fibromyalgia. I have seen an Immunologist, Rhemuatology, Pain Clinics etc etc but no one could come up with the reason behind my symptoms & pain. I already suffer with raynauds & RSD. Luckily for me whilst my GP was on his hols I saw the new GP for a routine appointmnet & she took an interest in my case. After lots of blood tests they ruled out Lups (SLE) + have suggested FMS may be the condition behind all this.

I am 24 years old & have been wearing a splint on my left hand for 5 years now & a year later had to walk permanently with crutches.

I am feeling relieved at last that we now know what is wrong with me!! However my GP is struggling to find a specialist to sent me to that we look at all my symptoms & be able to advise me. I am willing to pay to see a specialist privately and do not mind if I have to travel. I live in Leicestershire.

Can anyone help??! Your advice would be much appreciated.

Looking forward to hearing form you & hopeully making some new friends :D
Best wishes

Abbs x
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Postby pauline » Thu Oct 25, 2007 6:00 pm

Funny, I would have thought your doctor would know of a good rheumatologist in your area with some knowledge of the condition that could help, but failing that this site does have links to local fibro help groups in your area. You could try contacting them via the link on this site and asking the members there who their consultants are. Hope this helps....pauline
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Postby Lifestyles » Fri Oct 26, 2007 2:04 pm

Hi Pauline

Thanks for your reply.

I am back seeing my original GP now & he is currently trying to find someone for me to se but it taking a while. :(

This link that you mention, could you let me know what it is or where I find it on the site.

Many thanks in advance.
Best wishes

Abbs x
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Postby pauline » Sat Oct 27, 2007 8:55 am

As you enter the UKfibromyalgia.com website. Press the support tab at the top of the page. The next page shows a number of arrows pointing to various headings. Go to the SUPPORT heading and you will find a sub heading marked UK support groups, click on this and it will take you to a list of groups operating in your area. Hope this is clear I am hopeless at giving directions to anyone. I dread it when drivers stop me in the street to ask for directions. They regret ever asking me as they go away more confused and lost than they ever were in the first place :lol: ...pauline
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Postby tina » Thu Nov 15, 2007 1:29 am

hi pauline, i think yours is the only name i recognise on this site from 2005 as not been here since 2005/2006 been coping with a PMA attitude (positive mental attitude) since and has worked well for me!! still suffering but will not give in and as FM is becoming more widespread doctors have to learn more about symptoms/affects of illness to help every-one in future. In early days illness was making me depressed nowadays depression is making me ill, what a turn around!! i wonder how many out there feel the same!! haven't gassed so much in ages hope to hear how you are getting on

take care tina
if the sun ain't smiling give it a help in hand!!!!
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Postby pauline » Tue Nov 20, 2007 7:50 pm

:D Hi Tina, lovely to hear from you again. :lol: It does you good to talk.
Sorry not replied to your posting earlier and sorry to everyone else I may have missed but I've been rather ill. Got the flu along with infections of my ears nose and throat and a fibro flare. (I don't do things by halves do I) Needed lots of high dose penicillin.I have been in bed for a week and I still don't feel anywhere near well yet, but I'm getting there. My postings will be few and far between though for a while as it is still painful to use the computer. I've gone through all the symptoms in the docs medical book over the past week I think :oops: temperature, 8) sore eyes, :evil: irrational, :roll: illucinations, :lol: hysteria, :cry: crying, :? pain, the pain was horrendous even my tramadol didn't help and my back is still aching around my kidney area, :mrgreen: sickness. I couldn't breathe, my sugar levels caused great concern and I kept having to check my keytones. my blood pressure either went sky high or rock bottom causing the poor doctor no end of problems. I have tried to stay away from my husband as much as possible because his immune system is very low following his cancer treatment but unfotunately he told me today that he feels a little rough around the edges and has a sore throat.
I only hope that he does not suffer the way I have and that he has just caught a slight chill and weill be feeling better in a couple of days. Anyway everyone, I will return soon in a better frame of mind and will get us all in the christmas spirit. Take care everyone......................pauline
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Postby tina » Tue Nov 20, 2007 9:44 pm

sorry you're feeling so poorly pauline hubby too!. Yes it is good to talk now as i feel better mentally to cope with FM/CFS. In early days i would not accept this as happening to me and searched for years for cure, listening and sharing with others thoughts and ideas but in end realised too much information can be a bad thing so i had to take a break from the forum we used to visit as no fault to the members but there was too much negative chat all the time and it made me worse. Thats not it for most people so do all keep posting when you feel up to it and we must have some good chit chat to keep every ones spirits up !!

take care tina
if the sun ain't smiling give it a help in hand!!!!
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Postby cat123 » Sat Dec 01, 2007 2:29 am

hi pauline just a note to say hope you are ok and feeling better.Let us know how things are going take care ....cat
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