doctors grrrrr

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doctors grrrrr

Postby caroline2530 » Tue Sep 27, 2011 8:51 am

Hey everyone

Was at my doctors yesterday & boy did i feel like a bag of rubbish after it.Im not to sure what I was expecting when I went over, I haven't been diagnosed with fibro yet, but my mum has suffered years with it, & im showing all the symptoms, so I have a rough idea.

I went for an mri scan about 5 weeks ago & was at the docs yesterday, he told me then & there that nothing showed up on my scan, I half expected that but it was still a shock, but when he read that out to me everything changed his whole attitude. It was as though he didn't believe a word I was saying.

He said that im halfway through the waiting list to meet the neurologist at the hospital there's a six month waiting list & the made a request for an appt for me back in June, so im still waiting. he mentioned that it could be arthritis or fibro, I said to him that my mum suffers from both & could it be fibro but he skirted around all my questions.

I told him that I had to give up my part time job so that I could look after my 2 year old because I couldn't cope with work then having to come home to look after her. I told him that in the morning, im still like the walking dead after a full nights sleep, & that I am like an 80 year old woman when I try to get up out of bed because I am so stiff,

I told him that I have good days & bad days & yesterday was a bad day, he told me that on my good days I shouldn't over do it just pace myself, I said on my good days I want to do things with my daughter because the majority of the time she is stuck in the house because the bad days outdo the good.

he also said that because my pain is so widespread that if it was fibro it would only be on certain parts called the pain points?? is this true??he never gave me any more pain relief said that the pregabalin I was on should be enough for me & that I should go back to him in 4 weeks & that was it.........I came home & cried my eyes out, I just need answers now, its been going on for too long, now I am back to thinking that its all in my head & that im going mad.........

Sorry for ranting, but I didn't know where else to let it all out .........

Caroline
Last edited by denys on Tue Sep 27, 2011 6:05 pm, edited 1 time in total.
Reason: breaking up of paragraphs
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Re: doctors grrrrr

Postby Fly1970 » Tue Sep 27, 2011 9:35 am

Aww, Caroline... rant away! It helps to let it all out... (even in a typed format)

I really feel your frustration. I think many GPs are reluctant to give any firm diagnoses for "syndromes" without further consultation with various specialists - which, ironically, for us is partly a good thing (even if the waiting lists do drive us nuts!) My GP is excellent but even he is very cautious with what he "presumes" might be a cause, etc.

If you are really unhappy with your current GP - is there another at that surgery who you could see? Or perhaps another surgery nearby?

Sending you big {gentle} hugs :hugs: and hoping your long awaited appointment comes through soon.

OH... PS: I don't have all the tender/pressure points either (well not on the good day when I was tested by a Pain Management Specialist but having done a bit of research this doesn't mean a lot and certainly doesn't rule out Fibromyalgia - it can be present without those tender/pressure points too).

All the best,
Fly

Possible Fibromyalgia and Chronic Fatigue (still not dx'd), Pain, Fibro-Fog, Tremors, Restless Leg Syndrome, Migraine, Depression, Anxiety, IBS, Tinnitus, Grave's Disease (in remission) and a partridge in a pear tree!! :-P
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Re: doctors grrrrr

Postby shazq » Tue Sep 27, 2011 2:06 pm

Hi Caroline

You should get your Gp to refer you to see a Rheumy to rule out arthritis the Rheumy will also be able to tell you if its fibro.

If your GP is not going to be supportive is there another in your surgery who you could see? if not it might be an idea to change docs, having a good gp makes a big difference with fibro.

Your pregablin might need to be increased/changed or you might need another pain med to help control your pain so i would go back and tell the gp you are not coping with your pain. Sometimes it can take a combo of meds to get your pain under control. :goodluck1: hope you feel better soon. :hugs:
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Re: doctors grrrrr

Postby denys » Tue Sep 27, 2011 6:07 pm

Hi Caroline I have broken your post up alittle as it is difficult for us to read long text all at once, I have to agree with Shaz you need a supportive GP to start with and then :fingerscrossed: they will understand and be able to help :wave:
Denys

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Re: doctors grrrrr

Postby tonydin » Tue Sep 27, 2011 6:55 pm

no the pian will be every were , consultant told me it will be fealt any were between the tender points and they re all over arnt tyey
tony
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Re: doctors grrrrr

Postby caroline2530 » Wed Sep 28, 2011 5:41 am

Thank you everyone :)

I am going to make another appointment to see a different doctor. I think the reason he didnt want to up my pregabalin was because incase it made me more dopey (not that i can get much more dopey lol). I have to wait for a week before I can see a different Doc, so just going to grin & bare it for now.

Thanks again for listening :)
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Re: doctors grrrrr

Postby caroline2530 » Mon Oct 03, 2011 12:27 pm

Thought I would give you an update.

After being at my doctors last week, I was so fed up that I started keeping a diary & a list of all my symptoms, after having quite a bad weekend, I decided to go back to my surgery for an emergency appointment. I took my diary with me.....

It was a different Doctor that I saw, & of course had to explain everything again, she told me to stop taking my pregabalin straight away & now I have to try amitriplyine along with my 30/500 co-codamol, & to go back & see her in 2 weeks time. She gave me a leaflet on fibro, told me to have a read through...this doctor seems a little bit more understanding than everyone else I have seen.

Not sure about taking the amitriplyine though, ive heard mixed stories about it.....I suppose time will tell...

Still waiting on my neurologist appointment coming through & not been referred to rheumy just yet.

Thank you for listening..
Caroline :)
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