Gp for Pramipexole

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Gp for Pramipexole

Postby adam24 » Tue Oct 18, 2011 4:25 pm

Hi,

I was wondering if anybody could help me out.

My GP is not going to give me this drug (Pramipexole) despite the fact I have been given 3 weeks worth by a specialist Dr Bansal and have been taking it for 2 weeks already.

Dr Bansal said I have not got Fibro but have instead "Chronic Widespread Pain" and discharged me. I still believe I have got something very similar to Fibromyalgia and Dr Andrew Holman (The main protagonist of Pramipexole) would agree with this.

So my GP probably won't let me carry on taking the medication on even though I think it may be helping me significantly. He was very rude about it as well!

Without a specialist or a helpful GP Im just left to deal with things alone again.
So basically Im looking for a new GP near Surbiton, Surrey.

Has any body got any suggestions please?

Does anybody know a GP they can recommend for my purpose?
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Re: Gp for Pramipexole

Postby adam24 » Tue Oct 18, 2011 4:29 pm

I mean of course - importantly - a GP who will give Pramipexole!
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Re: Gp for Pramipexole

Postby denys » Tue Oct 18, 2011 5:06 pm

Hi Adam, have you spoken to the practice manager of your surgery??? maybe they can give you the reasons behind your GP's reluctance :dunno: :dunno: :fingerscrossed: :fingerscrossed: :fingerscrossed:
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Re: Gp for Pramipexole

Postby adam24 » Wed Oct 19, 2011 9:34 am

Hi Denys,

The bottom line is they won't do anything because the drug is not licensed for Fibromyalgia. Ive tried 4 different doctors at the practise now including the practise manager.

I tried a different (Senior) doctor and he surpassed the others in reaching a new low in rudeness. Even my girlfriend who likes everyone was shocked at his rudeness!
Dr Moore, Oakhill Clinic is his name.
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Re: Gp for Pramipexole

Postby Fly1970 » Wed Oct 19, 2011 10:34 am

Hiya,

I take Pramipexole in low dosage (2 x 0.88mg per night) and it was prescribed to me by my GP to combat Restless Leg Syndrome.
Fly

Possible Fibromyalgia and Chronic Fatigue (still not dx'd), Pain, Fibro-Fog, Tremors, Restless Leg Syndrome, Migraine, Depression, Anxiety, IBS, Tinnitus, Grave's Disease (in remission) and a partridge in a pear tree!! :-P
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Re: Gp for Pramipexole

Postby denys » Wed Oct 19, 2011 12:14 pm

Have you got a local support group Adam, maybe calling in there and asking the members might give you an answer :dunno: :dunno: :dunno: :dunno: sorry I cant be of anymore help I just cant think of anything else you could do apart from ringing all the surgeries in your area :yikes: :yikes: :yikes: :yikes: :yikes: :yikes:
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Re: Gp for Pramipexole

Postby adam24 » Wed Oct 19, 2011 4:50 pm

Thanks anyway Denys.

Fly1970 - does it help?
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Re: Gp for Pramipexole

Postby *Lisa* » Thu Oct 20, 2011 12:15 pm

Thats the thing adam, GP's will not take a chance and go against the rules if pramipexole is not licenced for fibro.

Have you tried a pain clinic? they may perscribe you this medication and are licensed to give out other meds.
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Re: Gp for Pramipexole

Postby FluppyPuffy » Thu Oct 20, 2011 1:12 pm

There are criteria that needs to be satisfied for a med to be prescribed off-label
Prescribing medicines for use outside the terms of their licence (off-label)

19. You may prescribe medicines for purposes for which they are not licensed. Although there are a number of circumstances in which this may arise, it is likely to occur most frequently in prescribing for children. Currently pharmaceutical companies do not usually test their medicines on children and as a consequence, cannot apply to license their medicines for use in the treatment of children. The use of medicines that have been licensed for adults, but not for children, is often necessary in paediatric practice.
20. When prescribing a medicine for use outside the terms of its licence you must:
a. Be satisfied that it would better serve the patient's needs than an appropriately licensed alternative
b. Be satisfied that there is a sufficient evidence base and/or experience of using the medicine to demonstrate its safety and efficacy. The manufacturer's information may be of limited help in which case the necessary information must be sought from other sources
c. Take responsibility for prescribing the medicine and for overseeing the patient's care, monitoring and any follow up treatment, or arrange for another doctor to do so (see also paragraphs 25-27 on prescribing for hospital outpatients)
d. Make a clear, accurate and legible record of all medicines prescribed and, where you are not following common practice, your reasons for prescribing the medicine.

http://www.gmc-uk.org/guidance/ethical_guidance/prescriptions_faqs.asp#6

Maybe you need to reconsider your approach to GPs where this med is concerned. Instead of being bound by the constraints of a 10min appt, could you produce a detailed explanation as to why you feel this particular med could make such a difference to you, including as much verifiable supporting evidence as possible, as well as showing how you feel you meet the necessary criteria. You could give this to your GP and let them take it away to read thru all you what you have supplied, then hopefully they can make a calm, considered decision as to whether they feel it would be of benefit to you. A follow-up appt could then be made for you to be advised about their decision and/or what else may be a suitable possibility.
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Re: Gp for Pramipexole

Postby Fly1970 » Sat Oct 22, 2011 11:32 am

adam24 wrote:Thanks anyway Denys.

Fly1970 - does it help?


Hi Adam,

Yes, it does seem to help. I had to start with one tablet a night and for a few weeks the "Riverdancing" in the bed seemed to be a lot worse, on some nights but better on others. I spoke to GP and he agreed to up the dosage to two tablets per night. This seems to have done the trick and although I still get twitches and the odd shaking in my legs it isn't anywhere near as bad as it was before. So, it took a while (maybe, 6-8 weeks) but it was worth the wait.

If you suffer with it like I did I really do hope you manage to get a prescription for Pramipexole to give it a try and see if might help.

All the best,
Fly

Possible Fibromyalgia and Chronic Fatigue (still not dx'd), Pain, Fibro-Fog, Tremors, Restless Leg Syndrome, Migraine, Depression, Anxiety, IBS, Tinnitus, Grave's Disease (in remission) and a partridge in a pear tree!! :-P
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Re: Gp for Pramipexole

Postby adam24 » Sun Oct 23, 2011 11:32 am

Hi,

Thanks for your replies. I wanted to try it because Andrew Holman -who promotes it - impressed me in his lecture on You tube
http://www.youtube.com/watch?v=Ei8LbUDkQno

He seemed to at least make sense to me. Since the doctors and so called specialists in this country offer no alternative or often don't seem to give a XXXX, I was attracted to it. Dr Holman had the decency to reply to my email - free of charge!- for example. The doctors in this country cant even be bothered to try and help me even when Ive waited many months to see them face to face!

Also it (Pramipexole) apparently helps libido which is a serious problem I have caused by 20 years on SSRIs - again the doctor dont offer me an alternative. I believe I have something called - PSSD. This could be permanent sexual dysfunction. It is denied by most doctors - but then they don't have to live with it like I do.

I am going to see a specialist sex doctor who I hope may give me a Dopamine Agonist any way. So lets hope that help.

As for my GP I am going to change them. The last one reached a new low in rudeness which even my girlfriend - who normally sees no bad in anyone - was shocked by. He told me he was going to contact me by phone. He hasnt. Just as Dr Bansal hasnt. I told them it was urgent as my medication is running out.

Adam.
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Re: Gp for Pramipexole

Postby adam24 » Sun Oct 23, 2011 11:38 am

Btw FulppyPuffy,

Your approach sounds fair enough but I know these people won't listen. They like to be in control.

And besides I have not got time. My medication is running out.

If a letter from a so called specialist (Dr Bansal) hasnt convinced them I dont think they are going to listen to me.
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Re: Gp for Pramipexole

Postby adam24 » Sun Oct 23, 2011 11:40 am

Lisa,

I may consider the pain clinic again. But again Im going to have to join a waiting list and I need the medication now. Ive been on it 3 weeks nearly and its running out.
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Re: Gp for Pramipexole

Postby geb0205 » Wed Oct 26, 2011 7:51 pm

adam24 wrote: I know these people won't listen. They like to be in control.

Actually, it's got nothing to do with them "being in control", it's about them making a safe, rational decision about how to do the best for YOU as an individual. They run the risk of thm being heavily sued if they DO give it to you and it all goes wrong. THEN who are you going to blame? "Oh the bloo**y GP's gave me this, how dare they when they knew it wasn't licensed!!"

I'm sorry your having a difficult time, but they DO only have your best interests at heart. The internet is a bad thing for medical research. And no, I'm not a GP or anything to do with the NHS. :goodluck1:
Registered Osteopath and Medical Acupunturist.
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