Been back to the GPs today.

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Been back to the GPs today.

Postby blueeyes64 » Thu Nov 10, 2011 1:14 am

I had to go back to the Drs today as she wanted a week just to look at my past Drs appointments and see my history.She said looking back at the times i have been and what the symptoms were that it is condusive with Fibromyalgia.She asked me to have another blood test for rhemotoid arthritus and something else, not sure what it was, as i havnt been tested for those for a few years.At least she is being thorough and she is really nice.She also asked if i wanted to see a specialist rhematologist.I said i had seen a specialist about my knee (i had bursitis in it ) and she said he was probably an orthopeadic Dr, so she would find out and if that was so she will refer me to a rheumy specialist. She has put me on 25mg of Amitryptiline to be taken at night.I am a little worried about taking these as i was on anti depressents for 2 years 3 years ago now and for the first month or so i was like a zombie.That was a different med though and a stronger dose.I am suffering a lot of anxiety at the moment, i think due to symptoms being bad and causing so much tension in my body, so i am hoping this will ease on the meds.Loud and sudden noises are a problem for me at the moment and i get worse if anyone else starts stressing.I saw a post about shaking on the inside and i get this a lot too and feel jittery and lightheaded a lot.I am sufferring shortness of breath when i walk the dogs too, not sure if this is due to fibro or anxiety or both, its hard to tell sometimes.
i was driving home today and in half an hour i decided to count how many times i got a sensation, either a shooting pain, throbbing, aching, or tingly/crawling sensation amywhere just to see actually how often it was happening.I got to 50 fairly easily and it ranged from my feet/ ankles up to my head and everywhere inbetween.Some were only mild pains and some were the ones that make you do an intake of breath and say ow outloud, and some were just an irritating feeling.It made me realise how often i do get them though.I have always made an exuse for them before like i must have banged the area or maybe its just an age thing etc etc.
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Re: Been back to the GPs today.

Postby iandp » Thu Nov 10, 2011 9:03 am

Hi

Your Dr sounds as if she cares and actually wants to find out and confirm what it is, which is good as i've read many don't as mine is sometimes, i think it's more to their ignorance of FM more than caring but that don't help us when we need them. The problem i have now is Dr put's everthing down to my FM even though symptoms don't match but do match something else.

I was on 25mg of Amitryptiline, all they did for me was made me wanna sleep.

Good luck and hope you find out all you need soon
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Re: Been back to the GPs today.

Postby ribbons » Thu Nov 10, 2011 11:24 am

i am on 20mg ami, i take it at 8pm so i don't feel groggy in the morning. Sounds like you have a great gp x
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Re: Been back to the GPs today.

Postby shazq » Thu Nov 10, 2011 1:30 pm

Hi
AMI`S` affect everyone differently but they can take up to 4 weeks to kick in. I take 75mg at 10pm and they dont affect my sleep at all. I am still awake more than i am asleep.

:goodluck1: I hope they work for you. :hugs:
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Re: Been back to the GPs today.

Postby Nellyphant » Thu Nov 10, 2011 2:39 pm

I've been on ami's for years now. Originally as an anti-depressant and sleep aid as I was only dx with fibro in Feb. I took take mine about 8.30 pm to help with the grogginess. I take 50mg now and also duloxetine. Does sound like you've got a good Doctor.
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Re: Been back to the GPs today.

Postby blueeyes64 » Thu Nov 10, 2011 3:39 pm

Took the first tab last night before bed at midnighht.Woke up this morning to take daughter in to town at about 8 and felt awful ! Sooo tired and groggy.I nearly fell asleep at the wheel several times was so tired.I lay down when i got home and woke up at around 11 .30.I still felt like a zombie and was getting a numb tingling in my face and hands.I can feel it has relaxed all my muscles as my jaw isnt clenching up like it used to, but the aches and pains are still getting through the same and if anything are worse as i am feeling them more being so relaxed.I feel spaced out totally and feel like this has only made things worse.My neck feels like it cant hold my head up which i get sometimes anyway.I cant stand the thought of being like this for a month at least.I keep just staring into space too and feel i am in slow motion.The last time i was on anti deppressents i had gotten pretty bad anyway so i was used to feeling groggy so i didnt care that the tabs made me feel so weird and after a month or so i was feeling better.Im not depressed this time though, just was getting anxious feelings and still enjoying things in life,so not the same.Do you think its because i took the tab so late ? Is it worth continuing to take these and will these horrible side effects go ? Starting to think maybe i was better off not knowing i had Fibro and muddling through as i always have just putting it down to arthritus or age and so on.Please can someone tell me this will get better or that there is a natural remedy that will do the same thing maybe.I dont see the point in taking tabs if you still get the symptoms plus more besides.In the end how do you know what is down to the tabs and what is your normal state ? Noises are even more intensified too today. :roll:
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Re: Been back to the GPs today.

Postby ribbons » Thu Nov 10, 2011 4:00 pm

take them earlier, the ami's are supposed to help you reach a deeper level of sleep which most fibro's do not do. Tiredness makes things worse..i would keep taking them and see if things improve rather than have very poor quality sleep every night. I prob don't go to bed til midnight but i still take them at 8pm x
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Re: Been back to the GPs today.

Postby Salgor » Thu Nov 10, 2011 4:09 pm

blueeyes64 wrote:Took the first tab last night before bed at midnighht.Woke up this morning to take daughter in to town at about 8 and felt awful ! Sooo tired and groggy.I nearly fell asleep at the wheel several times was so tired.I lay down when i got home and woke up at around 11 .30.I still felt like a zombie and was getting a numb tingling in my face and hands.I can feel it has relaxed all my muscles as my jaw isnt clenching up like it used to, but the aches and pains are still getting through the same and if anything are worse as i am feeling them more being so relaxed.I feel spaced out totally and feel like this has only made things worse.My neck feels like it cant hold my head up which i get sometimes anyway.I cant stand the thought of being like this for a month at least.I keep just staring into space too and feel i am in slow motion.The last time i was on anti deppressents i had gotten pretty bad anyway so i was used to feeling groggy so i didnt care that the tabs made me feel so weird and after a month or so i was feeling better.Im not depressed this time though, just was getting anxious feelings and still enjoying things in life,so not the same.Do you think its because i took the tab so late ? Is it worth continuing to take these and will these horrible side effects go ? Starting to think maybe i was better off not knowing i had Fibro and muddling through as i always have just putting it down to arthritus or age and so on.Please can someone tell me this will get better or that there is a natural remedy that will do the same thing maybe.I dont see the point in taking tabs if you still get the symptoms plus more besides.In the end how do you know what is down to the tabs and what is your normal state ? Noises are even more intensified too today. :roll:


I have found for a while that I suddenly realise that I am clenching my teeth, at anytime of the day, and have to consciously try to relax my jaw. I this something that others have experienced as well.

I also find myself staring into space at times and my husband has commented on this. Sometimes I have to re-read directions or a paragraph in a book or newspaper because I don't take in in the first time. Is this also a usual symptom?

Sally
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Re: Been back to the GPs today.

Postby tonydin » Thu Nov 10, 2011 8:14 pm

sally i think thats perectly normal for someone with fibro??? wife says i go into my own world but i never notice???
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Re: Been back to the GPs today.

Postby Salgor » Thu Nov 10, 2011 9:23 pm

Thanks Tony
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Re: Been back to the GPs today.

Postby blueeyes64 » Thu Nov 10, 2011 9:49 pm

From around 3.30 pm i started to come round and by 4 i had the energy to get on with some housework.I also started getting waves of like a feel good factor coming over me, it felt really nice, like having a legal high ! I still feel a little light headed but much happier and less anxious already.I have taken the tab at 8 pm tonight and will see if that makes a difference when i get up tomorrow (hoping it will ).My memory is still poor though and still have aches and pains but can handle them a bit better now i am relaxed.Rhanks everyone for your input :)
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Re: Been back to the GPs today.

Postby blueeyes64 » Thu Nov 10, 2011 9:50 pm

Oops ! Sound like scooby doo on the last bit !
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Re: Been back to the GPs today.

Postby ribbons » Thu Nov 10, 2011 10:10 pm

:D :D :D
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Re: Been back to the GPs today.

Postby FluppyPuffy » Fri Nov 11, 2011 1:31 am

Blueeyes, as shaz has already said, the amis can take up to 4 weeks to fully get into your system. With it being the first one you took last night, that could explain why you've felt like you have done, as you could be experiencing initial side effects. As you take them, and your body gets used to them being in your system, the side effects should gradually ease off.

For now, it might be an idea to decide on a time to take them and stick to it for a while. It'll give then a chance to get in and for you to get used to them.

Hope they make a difference for you :fingerscrossed: :fingerscrossed:
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Re: Been back to the GPs today.

Postby meyer12 » Fri Nov 11, 2011 9:37 am

hey, just read your post about being groggy in amytriptalin. If you still feel groggy and arent happy with the groggyness you should ask the GP about lowering the dose. I was on them a few years back and started on the 25mg streight away but couldnt handle feeling so out of it so i went back and told the GP and she started me out on 10mg for one week then increased it untill i was at the dose they first suggested. For me doing it that way stopped the groggyness.

Just thought id suggest it as it seems a shame to have to consider stopping something which is helping you. x
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